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Old 04-25-2005, 03:05 AM   #1 (permalink)
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Default hi im new to the board.

Hi everyone Im new! my name is shanna and I live in kansas. heres my story....
I was diagnosed with pcos when i was 18( 3 years ago).I was on 2 different doses of Met over a years time before I took myself off it. It made me so terribly sick. My doc advice me to not eat any kind of sugars, and to cut back a lot on carbs since side effects are worse when you do so. I listenend to him, but i would still throw up or feel dizzy and faint almost daily .I also had terrible food cravings, or I had a complete change in tastes on certain foods. Grilled chicken made me sick as soon as I smelled it. But I craved weird foods, or foods that i had never tried before. Once i switched to a lower dosage,I still got ill AND i was always tired and groggy. I never really wanted to do anything but lay in bed. It was so hard, since I found out about having PCOS when i was 18 and away from home at college for the first time ever. It was so hard for me to explain to everyone what I was goin through.It seemed like I just made up something as an excuse to why I always felt sick. Most of my friends kept tellin me it was in my head. I know for sure it wasnt.Im scared to go back to my doctor because I dont want to ever go back on met. I was on it for a year, I ended up gaining 20 lbs. When i graduated high school 3 years ago i weighed 115 lbs. I know I weigh close to 200lbs now. My doc swore up and down Met would have helped me but it didnt. I took it faithfully too.I was a competitive gymnast till i was 17, I was use to working out 40 times a week before i quit. sooo gaining all this weight is sucha a shocker. I gained 40lbs in less then a year after quittin gymnastics, but i hadnt changed my diet. I still stick to a diet and I still work out (yoga pilates walks and runs) but cant get the weight off. I hate how Pcos has changed me. I havent been to the endocrynologist for over 2 years now. Im scared to go back quite frankly. Hiopefully soon I can get back into the doc. because Im afraid that its only getting worse. I was told that I was IR 3 years ago. i have been getting more symptons to pcos.I have 3 dark hairs that keep growing on my chin! I use to have really thick hair that has been fallin out, so much that just the other day my friend ask what had happen to all my hair I also get really my lower stomach spasms that will last for days! I dont have a regular cycle. i usually go about 6 months in between periods, when i was a gymnast i just blamed it on gymnastics.. The only good thing I liked about Met, was that it really cleared up my skin. I dont have bad acne but it has been getting worse. annnd i have all the weight gain especially in my stomach. gosh i hate it . anyway Im glad my friend was able to show me to this board. Hopefully it will convince me to get back into the doc asap.
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Old 04-25-2005, 03:17 AM   #2 (permalink)
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Welcome to SC! Glad your friend showed you this site, and I hope its helpful to you. I'm sorry you had such a bad experience with Metformin. I guess everyone is truly different in how they react. I hope that you'll go back to the doctor, because untreated, it may only get worse, hon.

Hope to see you around.
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Old 04-25-2005, 03:03 PM   #3 (permalink)
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Hello! Glad to meet another newbie. I think I might as well add in my story as well since I am sure there are a few of you who are wondering who the heck I am.

I'm finaly back home in Canada after ten years of living in the USA. PCOS runs on my fathers side and what you all probably don't know is that son's seem to have a role in the possible genetics of PCOS too. He had undiagnosed metabolic issues which caused him to have higher levels of estrogen and low levels of testosterone. Obese and diabetic he eventually died of estrogen positive Breast cancer. (hmm anything sounding simularly reverse to PCOS?) Two out of three aunts lost all capabilities to have children at age 23. My other aunt started having children at 22 and now have 3 beautiful cousins because of it.

I have had symptoms of PCOS since 16, I started to develop early at age 8, not getting my first AF until 12. My doc at 16 knew what was happening but couldn't get the tests to come back so she could start treating me. that was 7 years ago and I was finally diagnosed last year. The 40lb. weight gain on the dieticians diet was enough to get the doc's attention in Canada. Since that time I have gained over 80lbs this past year, gone through 5 different treatment plans and they are at wits end with me. I've lost about 2/3rds of my hair, but it was slowly returning while taking licorice root. I have seemed to go through psudo- pregnancy which included the whole morning sickness, craving odd foods, nose that could smell everything 10X's more than usual, exhausted constantly and seemed to have lost my brain at times. Started the loosing of massive chunks of tissue this past week and the doctors keep on mentioning that hysterectomy thing. Not happening until I have at least one munchkin. Soooo - I am TTC, because I know its a matter of now or never. My current BF, who is planned to marry me anyways is very supportive about the whole thing is one who has kept me on track and from firing another doctor. I am still waiting to see the gyno- but at this point I am sick of waiting 1-5 months to see a specialist in Canada. SO after I finish my degree in Management and get to be a stay at home mommy for a while I am heading back to university to become a reproductive endocrinologist so I can try to help all of us with PCOS.

Just remember... there are other treatments besides Met- I have probably already tried them . Try reaserching some of the alternatives like Cypterone (SP?). IF your doctor isn't open to new alternatives then find a new doctor. There always has to be someone who graduated at the bottom of the class.

Don't avoid the doc's sweetie. Things only get worse. The only reason I am off of all my meds is for testing purposes. they can find alternatives for you.
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Old 04-25-2005, 07:57 PM   #4 (permalink)
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HI Welcome to SC. Glad you found us. Contact me if you wish. See you around.
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