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Old 01-25-2008, 04:20 PM   #1 (permalink)
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Default hidradenitis suppurativa

Anyone experience this?

Common symptoms include:
  1. Solitary or multiple isolated abscess formation without scarring or sinus tracts. (A few minor sites with rare inflammation; may be mistaken for acne.)
  2. Recurrent abscesses, single or multiple widely separated lesions, with sinus tract formation. (Frequent inflammations restrict movement and may require minor surgery such as incision and drainage.)
  3. Diffuse or broad involvement across a regional area with multiple interconnected sinus tracts and abscesses. (Inflammation of sites to the size of golf balls, or sometimes baseballs; scarring develops, including subcutaneous tracts of infection - see fistula. Obviously, patients at this stage may be unable to function.)
I was recently diagnosed with this skin condition. Common indicators are know to be:
  • females are more likely than males
  • genetic predisposition
  • plugged apocrine (sweat) gland or hair follicle
  • excessive sweating
  • bacterial infection
  • sometimes linked with other auto-immune conditions[7]
  • androgen dysfunction
  • genetic disorders that alter cell structure
  • stress can bring on outbreaks
  • being overweight makes it worse, however this condition is not caused by obesity and weight loss will improve but not cure it.
  • cigarette smoking tends to encourage outbreaks as well
Just curious if anyone else has this and also has PCOS. I am trying to see if there is an actual link or just a coincidence with me. I've been suffering with this for about 8 years now and only recently has it gotten really bad, similarly to the increase of issues I've had due to PCOS...

Thoughts? Thanks!
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Old 01-25-2008, 04:27 PM   #2 (permalink)
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welcome to sc i have hs as well. There are quite a few of us that do. If you do a search there are other posts about it here at sc.
eva
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Old 01-25-2008, 04:27 PM   #3 (permalink)
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Yes. There are a few threads about this if you search. I first found the name for it in one of my PCOS books. I had just assumed it was cystic acne in some not so great places.
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Old 01-25-2008, 04:28 PM   #4 (permalink)
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You're not alone.

See these soulcysters links: http://www.google.com/search?sourcei...lcysters%2enet
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Old 01-25-2008, 04:28 PM   #5 (permalink)
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Bleh, I did a search and nothing came up.

Sorry. I always try to search before posting especially when I am a newbie.

I guess I can ask the Mods to erase this one. Can you post a link to the latest HS thread since I couldn't locate one in the search.
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Old 01-25-2008, 04:31 PM   #6 (permalink)
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Quote:
Originally Posted by Lillygrrl View Post
Can you post a link to the latest HS thread since I couldn't locate one in the search.
I think we were posting at the same time. Click on the link in the post above your last one.

hidra...is such a long term, that the message board search doesn't always work, so I used the google site search to find the threads.
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Old 01-25-2008, 05:23 PM   #7 (permalink)
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I too have this condition and it is rather frustrating and painful at times.

I've heard from my doc that eating Raisins can help
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Old 01-25-2008, 06:46 PM   #8 (permalink)
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raisins?? wow. How many do you have to eat each day I havent had a flair up in a year. (amazing for me). Ive been drinking 2 cups ginger tea a day and also 3 cups of green tea a day. I cyster recommended it to me - and so far so good.
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Me - 42, hubby 37 son 12. Married 15 years

She is buffeted by the wind, but she does not sink.



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Old 01-25-2008, 07:31 PM   #9 (permalink)
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Quote:
Originally Posted by Eva37 View Post
raisins?? wow. How many do you have to eat each day
and why 'raisins?
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