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Old 10-19-2006, 12:42 AM   #1 (permalink)
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Default Hidradenitis suppurativa (boil/cyst in armpit or groin)

This is a strange PCOS symptom I have. It's not mentioned in most books, so I thought I would bring it up here. Dr. Thatcher in PCOS: The Hidden Epidemic describes it in this way:
Hidradenitis suppurativa is severe chronic inflammation of the aporine glands of the armipt (axilla) and groin region. Mild cases of hidradenitis are relatively common and appear much like several small "boils" that are reddened, hardened and contain pus. They may appear much like an infected hair follicle, which in reality is close to the truth. Applications of warm wet compresses can offer some relief. Because this disorder is hormone-related, oral contraceptives and anti-androgens may be used with some success. The severe infections, which sometimes occur, are very difficult to treat and surgical excision may be necessary.
I've haven't gotten any since I started taking Metformin (knock on wood). I just thought I would share the information.
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Old 10-20-2006, 09:22 PM   #2 (permalink)
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ooooh! This could be what I'm getting!
I get these painfull little lumps in my armpits, kind of like when you get a spot deep under the skin. Sometimes they can be further down my armpit almost in my breast. They get really uncomfortable and hurt when you squeeze or poke them. They last for a few days then go away on their own.. I've never bothered seeing a doctor about them though. They'd be gone before I got an appointment.
Never had them in the groin though..
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Old 10-20-2006, 09:36 PM   #3 (permalink)
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Yep they are quite painful.
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Old 10-21-2006, 12:33 AM   #4 (permalink)
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I guess that would explain why I've stopped getting them since I've started taking hormone balancing products!
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Old 10-21-2006, 07:10 PM   #5 (permalink)
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After reading some more stuff on this online.. I definatly have a very mild case.. going by some of those icky pictures!
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Old 10-22-2006, 07:05 AM   #6 (permalink)
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I have had those. Never thought it could be related to pcos or even a hormone problem. I went on antibiotics for them recently and have not had any since. They seemed to take along time to clear up.
Hopefully now that i am on met i might not get them again - there has to be some benefits for met
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Old 10-22-2006, 11:35 AM   #7 (permalink)
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My mum and I have been getting them for years (as well as the rest of the women in her family). Mum's had several surgically removed. They are really awful. She has not had a single one since she had a hysterectomy. If that's not a sure sign that its hormone related I don't know what is.
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Old 10-22-2006, 09:57 PM   #8 (permalink)
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hi

ive got this, too. Had lots removed surgically, too.

eva
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Old 10-22-2006, 10:26 PM   #9 (permalink)
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I get them DOWN THERE. Man do they hurt!!!
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Old 10-22-2006, 10:28 PM   #10 (permalink)
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I get them the week before AF is coming. I know she's on her way when one appears. They are so painful!
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Old 10-25-2006, 09:43 AM   #11 (permalink)
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thanks so much for posting this
i never knew it was related to hormones! i definitely have a mild case and will have to bring it up the next time i visit my doc.
i posted this in another thread about this topic, but i'll put it here as well, Monistat Soothing Care Chafing Relief Powder-Gel has helped prevent/reduce irritation for me
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Old 10-25-2006, 01:16 PM   #12 (permalink)
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I have a couple of them on my inner thighs. I had no idea that was also pcos related.
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Old 10-25-2006, 07:04 PM   #13 (permalink)
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WOW! I had no idea those awful painful things were related to PCOS! I had several of them in the first 6 months after stopping BCP, but then when I started seeing an RE I stopped getting them, but I didn't put 2 and 2 together until just now.

I was also getting styes on my eyes regularly... I wonder if they are related to the underarm/groin cyts?
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Old 10-25-2006, 07:39 PM   #14 (permalink)
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O my gosh... I have HS also. There are actually alot of websites to read on them. I was diagnosed with HS about 6 years ago. My doctor (Infectious Disease) says its one of the worst cases he had ever seen. I have had gastric bypass (Overweight doesnt cause it but it does make it worse) and had NUMERIOUS operations. (Actually this week I am waiting to find out when my next surgery to remove them all under my armpits is. If anyone has any questions on this or is in the houston area I can give you a great doctor. You guys no guys get it too and sometimes worse. Sorry I can go on and on on this subject. Glad im not all alone!!

Here are so good websites on it:
http://www.hs-foundation.org/
http://www.hidradenitis-suppurativa.org/
http://hs-usa.org/
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Old 10-25-2006, 07:48 PM   #15 (permalink)
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I knew I'd found a good GYN when she knew what I was talking about with these. I've never had to have them surgically removed. I've always been able to take a hot bath for a few days and the squeeze. Sorry, I know it's gross. I had a couple of Dr's try to tell me they were probably ingrown hairs, but as I tried to explain to them, I don't have any hair there. I didn't know what they were until I read the book I mentioned in my original post. I still haven't seen them mentioned in any other PCOS material.

Raeannan ~ Thanks for the websites. I wanted to be sure others knew there was a name for the little buggers. It sounds like you are the unfortunate expert.
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