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05-01-2008, 02:25 PM
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#136 (permalink)
| | Wishin' & Hopin'
Join Date: May 2008 Location: Southern Texas
Posts: 139
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OMG. I can't believe I'm over here crying after reading this.
I was dx with PCOS when I was 19 but I've had HS since I was 15-16. I've been SO embarrassed about it and it's really effected my confidence. DH knows about it & it doesn't bother him in the least bit but it bothers me. I don't have a horrific case (not like some I've read about) and I've never needed surgery. I do have a lot of scars and darker skin patches where they've been in the past.
My gyn & my regular doctors kept telling me they were ingrown hairs. No. They're. Not. When I was 15-16 my mom took me to this doctor who did dx it as HS right away and then told me no caffiene, no peanut butter, no deodorant, no tight fitting clothing. I'm not even lying, she suggested I wear a moo-moo around then house. She actually said moo-moo. Yeah....a 16 year old is going to be REALLY receptive to that.
I'm blown away that there are so many other people with this and that I'm not alone. | 
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05-01-2008, 04:13 PM
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#137 (permalink)
| | UK Mod
Join Date: Mar 2004 Location: South Wales
Posts: 13,067
My Mood:  Points: 29,120.87 Bank: 1,641,734.92 Total Points: 1,670,855.79 |
jess -welcome to sc - this website is amazing!!
eva
__________________
PCOS, LOCAH, Lichen Planus, IBS, HS,alopecia - raised bp/ cholesteral. Wheat and dairy intollerance Meds: Spiro, Bendrofluazide, Amlodopine, Simvastatin, Met, Prednisolone, Mirena iud, Colpermin multi vits,
Me - 41, hubby 36 son 11. Married 14 years
She is buffeted by the wind, but she does not sink.
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05-01-2008, 11:26 PM
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#138 (permalink)
| | Gold Miner Wife
Join Date: Apr 2008 Location: Elko, NV moving to Anchorage, AK
Posts: 124
My Mood:  Points: 1,295.75 Bank: 1,277.79 Total Points: 2,573.54 | 
Quote:
Originally Posted by Jess1216  OMG. I can't believe I'm over here crying after reading this.
I was dx with PCOS when I was 19 but I've had HS since I was 15-16. I've been SO embarrassed about it and it's really effected my confidence. DH knows about it & it doesn't bother him in the least bit but it bothers me. I don't have a horrific case (not like some I've read about) and I've never needed surgery. I do have a lot of scars and darker skin patches where they've been in the past.
My gyn & my regular doctors kept telling me they were ingrown hairs. No. They're. Not. When I was 15-16 my mom took me to this doctor who did dx it as HS right away and then told me no caffiene, no peanut butter, no deodorant, no tight fitting clothing. I'm not even lying, she suggested I wear a moo-moo around then house. She actually said moo-moo. Yeah....a 16 year old is going to be REALLY receptive to that.
I'm blown away that there are so many other people with this and that I'm not alone. | I know that tanning is a NO NO but, I have found that it also seems to help. SO I tan twice a week, it and meds help the flare ups for me.
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Diagnosed Jan '05
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05-01-2008, 11:33 PM
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#139 (permalink)
| | Wishin' & Hopin'
Join Date: May 2008 Location: Southern Texas
Posts: 139
My Mood: Points: 11,381.70 Bank: 37,799.16 Total Points: 49,180.85 |
I've been thinking about going tanning too actually. I know it's not good but I also have eczema and the tanning helps with that a lot too. Maybe I'll kill to birds with one stone! | |
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05-01-2008, 11:54 PM
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#140 (permalink)
| | Gold Miner Wife
Join Date: Apr 2008 Location: Elko, NV moving to Anchorage, AK
Posts: 124
My Mood: Points: 1,295.75 Bank: 1,277.79 Total Points: 2,573.54 |
I honestly thought that I was so crazy because I just couldn't get my body to behave! It breaks out my periods were weird, and I always had this weird feeling that getting preggers would be hard...since I was like 10. I am very glad now that I have found this site and I can talk to others like me. I have also found that my body likes secret's new clinical strength deodorant. It works well and doesn't seem to clog my pores.
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Diagnosed Jan '05
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05-02-2008, 09:41 AM
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#141 (permalink)
| | Registered User
Join Date: Feb 2008 Location: Illinois
Posts: 233
My Mood:  Points: 10,724.68 Bank: 0.00 Total Points: 10,724.68 |
I love this thread!!!
I was just posting on another topic about my "boil". I had no clue that this could be a side effect of PCOS. My doctors all just blow it off too. Tell me that it is just a ingrown hair or scar tissue. Well a dermatologist finally told me the truth...I need to have this surgically removed. I am way scared to do that but it is on my right inner thigh...below the crease of your leg. So no shorts or bikini bottoms for me...Not that I would wear them anyway! LOL
And this boil is insane, it is hard all the way around it. Very odd. I am glad I am not alone in this!
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Amanda 29
DH 31
TTC #1 since 2/08
HSG 4/14-Clear / SA 3/08 Normal
Met - 1500mg
#1 -May Clomid 50mg - 16mm follie cd 13--P4 10.2 cd 21--O'd cd 18--AF showed cd 30-BFN
#2 -June Clomid 50mg- 14mm follie cd 13--O'd cd 19--
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05-02-2008, 03:37 PM
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#142 (permalink)
| | *hooch puppy*
Join Date: Jan 2008 Location: broadway,( very small town)north carolina
Posts: 261
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i get mine on my inner thioghs uhh its disgusting n worse its painfull there reduish n sometimes purple when ifirst statred to get them i thuoght i t might be because i was overweight n my thights rub together lol or something or maybe i needed to shower more often but i shower twice daily on most days
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05-02-2008, 03:43 PM
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#143 (permalink)
| | Registered User
Join Date: Apr 2008
Posts: 11
Points: 217.24 Bank: 0.00 Total Points: 217.24 |
I always thought they were ingrown hairs....interesting to hear its related to the PCOS | |
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05-03-2008, 12:41 AM
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#144 (permalink)
| | Gold Miner Wife
Join Date: Apr 2008 Location: Elko, NV moving to Anchorage, AK
Posts: 124
My Mood: Points: 1,295.75 Bank: 1,277.79 Total Points: 2,573.54 |
Hot baths sometimes help. I was told that it was bacteria that LIVES UNDER the skin not on it. See if you can get some antibiotics to help kill the flare up. I had to take them for 3 mos to get it better under control. This was before I found that I was PCOS.
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Diagnosed Jan '05
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05-03-2008, 01:36 AM
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#145 (permalink)
| | Wishin' & Hopin'
Join Date: May 2008 Location: Southern Texas
Posts: 139
My Mood: Points: 11,381.70 Bank: 37,799.16 Total Points: 49,180.85 |
I was put on a cycle of tetracycline (sp?) years ago and the doc told me it should help but he also said it was a short term thing, obviously you can't stay on them forever because you become resistant.
That's when I learned that ANY time I get put on an antibiotic I DEMAND a rx for a Diflucan too. TMI (but I know I'm not the only woman who gets this) but being on antibiotics gives me yeast infections. As if I needed another thing to deal with! It did help with the inflamation though.
I've been pretty lucky lately. No horrible ones...although I have one of the usual ones acting up a little...and there's a nice little hole the size of a pinhead. Lovely. | |
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05-03-2008, 02:29 AM
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#146 (permalink)
| | *hooch puppy*
Join Date: Jan 2008 Location: broadway,( very small town)north carolina
Posts: 261
My Mood: Points: 4,109.36 Bank: 1.64 Total Points: 4,111.01 |
yep you said it girl everytime i get on a antibitic i get the big y
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05-03-2008, 05:20 AM
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#147 (permalink)
| | UK Mod
Join Date: Mar 2004 Location: South Wales
Posts: 13,067
My Mood: Points: 29,120.87 Bank: 1,641,734.92 Total Points: 1,670,855.79 |
me too!! got my hs playing up - getting my anti biotics today. Got yi at the moment anyway. And my af  n: my gp has said now that anytime i have the anti b. i need yi treatment, too. Although why nobody ever worked out thats what i needed to do years ago...... 
eva
__________________
PCOS, LOCAH, Lichen Planus, IBS, HS,alopecia - raised bp/ cholesteral. Wheat and dairy intollerance Meds: Spiro, Bendrofluazide, Amlodopine, Simvastatin, Met, Prednisolone, Mirena iud, Colpermin multi vits,
Me - 41, hubby 36 son 11. Married 14 years
She is buffeted by the wind, but she does not sink.
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05-05-2008, 07:19 PM
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#148 (permalink)
| | Registered User
Join Date: Aug 2007 Location: NY
Posts: 10
My Mood:  Points: 1,011.74 Bank: 0.00 Total Points: 1,011.74 |  Not sure if its this?
So while looking online I can across this word (aka Acne Inversa) I get cysts on my sides and armpits. Gross! I hate them and they are painful. My PCP sent me for blood work to check my sugar and I mentioned to him this word and if it could be PCO related. He wasn't sure... Bloodwork came back fine. No problems with my sugar at all. He prescribed me Benzaclin.. It definitly worked! I just wish I knew how to prevent it or if It is completed associated with PCO... Anyone know?
__________________ ~ Lynn ~ I'm 22 (Dx @ 16y/o)
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TTC #1 w/ DH (38) since 1/2008
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*1500mg Met* *Prenatals* *Clomid x1 - 6/3/08: No 'O'* *Clomid x2 - Awaiting Test Results* | |
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05-05-2008, 07:23 PM
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#149 (permalink)
| | Wishin' & Hopin'
Join Date: May 2008 Location: Southern Texas
Posts: 139
My Mood: Points: 11,381.70 Bank: 37,799.16 Total Points: 49,180.85 |
In the first post the OP was saying that there is a link between HS and PCOS. So it probably IS related to PCOS.
IF you have HS and bezaclin is an antibiotic it's a short term fix. At least that's what my doc said. Different people treat these differently. I've heard losing weight can help HS, being on BCP's can help....some people it's so bad nothing but surgery seems to help. All I know is that it SUCKS! | |
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05-05-2008, 08:00 PM
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#150 (permalink)
| | Registered User
Join Date: May 2008
Posts: 1
Points: 109.27 Bank: 0.00 Total Points: 109.27 |
Hi Everyone, this is my first post. I've been reading all the msg's about boils and scarring - I found that when I went tanning and at the same time was using jergen's self tanner, the scars under my arms were barely noticeable! However, after coming back from holidays, and I didnt keep up with the tanning, I lost my tan and now you can see them again. Just thought I'd add something that helped me at least MASK the scars  | |
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