Hidradenitis suppurativa (boil/cyst in armpit or groin) - Page 2

raeannan · 10-25-2006, 07:05 PM

Yeah i guess u could say that.. And they say that HS is genetic but no one in my family has it. And they say it comes up in folds of skin and in sweat glands, which for the most part is right, but I have gotten them on my feet and had to have 2 major surgeries on my eyes because they come up under the eyelids. I have had about 10 surgeries below the waste. and a handful above. I am about to have all the skin under my arms removed because they keep coming up so bad. It has been so many years that my body is immune to about every medicine they give me. I cant sit in a tub and wait a couple of days anymore because they dont "pop" anymore. I mean they do.. but on the inside and then Trac out to other places.. Here are some pics some arent pretty.. but thats what hs is. I am not complaining though. Just more excited that there are cysters in the same boat!!!

My personal site..
www.raeannan.com

Some pictures of my HS...
My eyes before and after the HS was removed.
http://www.raeannan.com/r115.htm

My last lower body surgery to remove HS
http://www.raeannan.com/r162.htm

sugar'n'spice · 12-27-2006, 02:07 AM

I think I may have HS, but the weird thing is that it seems to have just popped up during my pregnancy. I freaked out when I saw the cysts/boils "down there" and thought something was very wrong. Upon examination my ob said it was just a rash of some sort, gave me some rx powder and sent me on my way. The powder seems to help, but the boils seem to come and go as they please. Has anyone heard of this condition starting during pregnancy?
Is this something I should be concerned about - i.e. is it in any way harmful to my baby and/or contagious? My ob doesn't seem concerned, but since this is something new for me I like to get as much info as possible. From the info I've found on the net, my symptoms seem to fit perfectly, I'm just wondering how it is being pregnant.
If anyone has any information please let me know, I'd appreciate it much!

Thanks!

HOLLAND · 12-27-2006, 10:43 AM

That's probably what it is. I would think that if your OB is not worried about it then don't worry yourself. Mine come up in the same places everytime as well. They hurt like heck. I have about 5 of them right now. It hurts to even sit.

I feel for you!!!!

hela · 12-29-2006, 08:36 PM

Hello all, my first post here and what a subject to start on!
I've had these little bleeders too, and it is a huge relief to find out I'm not alone.

Been on metformin for about 5 months now and in the last month or so only had one "down there" Thank goodness, as they sure are painful.
The gross warm bath and squeeze aproach has thankful worked for me but boy does it hurt while you do it.

Hela

soccerwidow10 · 12-29-2006, 10:09 PM

I came to this site because of a thread on medication that I take....I had no idea that some of you suffer from this like I do.

I was diagnosed about 6 years ago and I started having signs around the onset of puberty. I have always had it but, was embarrassed to talk to anyone about it.

I started getting the cysts on my breasts a few years backand about a year ago I started getting them on my armpits.

I have not had to have any surgeries but....bathing suits and sleeveless shirts are a no no!! Well, if the bathing suit has a long enough skirt I can get away with it.

Before diagnosis, I thought I had it because of being fat, sweaty and just plain disgusting. HS is a very emotionally devasting disease. I still have low self esteem at times because of it. My DH is very understanding.

When my diabetes is under control the "down there" ones aren't as bad. But, my breasts are always sore and yucky. I think it is because they are big(D), Florida is humid and sweaty, and well, they only "air out" at night.

Thanks for sharing and listening to me.

*~SugarPlums~* · 12-29-2006, 10:22 PM

Pam-I get these ALL the time. I have been hospitolized 2 times because they had gotten so infected and huge. 1 even tested positive for strep. Alot of other times I had to have them lanced at the clinic

I use bactroban cream on them. But when I get the bad ones that have me out of commision I use epsom salt in a warm rag, placed it right on the boil and then put a heating pad on that, and the heat draws the crap right out. I have done that with the last 2 real bad ones I have had. 1 was just a couple weeks ago. I typically have to get those lanced but that has been working.

Quote:

Originally Posted by NicMarc1213

I get them the week before AF is coming. I know she's on her way when one appears. They are so painful!

Nicole! I have asked this before and I am happy to know that it is not a coinsidence. I hardly ever have a natural af, but every once in a while I get a bad boil (I have these ALWAYS-the real bad ones I get a few times a year) about 7-10 days later af comes. It also happens when I use provera. My theory??????Higher progersterone is one of the causes of these suckers.

*~SugarPlums~* · 12-29-2006, 10:25 PM

Quote:

Originally Posted by soccerwidow10

I came to this site because of a thread on medication that I take....I had no idea that some of you suffer from this like I do.

I was diagnosed about 6 years ago and I started having signs around the onset of puberty. I have always had it but, was embarrassed to talk to anyone about it.

I started getting the cysts on my breasts a few years backand about a year ago I started getting them on my armpits.

I have not had to have any surgeries but....bathing suits and sleeveless shirts are a no no!! Well, if the bathing suit has a long enough skirt I can get away with it.

Before diagnosis, I thought I had it because of being fat, sweaty and just plain disgusting. HS is a very emotionally devasting disease. I still have low self esteem at times because of it. My DH is very understanding.

When my diabetes is under control the "down there" ones aren't as bad. But, my breasts are always sore and yucky. I think it is because they are big(D), Florida is humid and sweaty, and well, they only "air out" at night.

Thanks for sharing and listening to me.

Diabetics get thes alot too. When I have been bad with what I eat and my sugars are real high I will get them too.

*~SugarPlums~* · 12-29-2006, 10:28 PM

Quote:

Originally Posted by hela

Hello all, my first post here and what a subject to start on!
I've had these little bleeders too, and it is a huge relief to find out I'm not alone.

Been on metformin for about 5 months now and in the last month or so only had one "down there" Thank goodness, as they sure are painful.
The gross warm bath and squeeze aproach has thankful worked for me but boy does it hurt while you do it.

Hela

Try the heat pad, it's so hot it numbs the pain , but beware, have a towel right under you because it will bust and you won't feel it. That is the only way I can deal with them aside from getting them lanced and let me tell you, that is PAINFUL.

*~SugarPlums~* · 12-29-2006, 10:31 PM

Quote:

Originally Posted by sugar'n'spice

I think I may have HS, but the weird thing is that it seems to have just popped up during my pregnancy. I freaked out when I saw the cysts/boils "down there" and thought something was very wrong. Upon examination my ob said it was just a rash of some sort, gave me some rx powder and sent me on my way. The powder seems to help, but the boils seem to come and go as they please. Has anyone heard of this condition starting during pregnancy?
Is this something I should be concerned about - i.e. is it in any way harmful to my baby and/or contagious? My ob doesn't seem concerned, but since this is something new for me I like to get as much info as possible. From the info I've found on the net, my symptoms seem to fit perfectly, I'm just wondering how it is being pregnant.
If anyone has any information please let me know, I'd appreciate it much!

Thanks!

I believe progesterone may be a cause for some of mine the other time it's my diabetes. Have you been checked for gd?

Eva37 · 12-30-2006, 10:17 AM

hi

ive had mine removed surgically , too.

eva

HOLLAND · 12-30-2006, 10:29 AM

When do they decide to remove them? Does it have to get to a certian point first?

10-25-2006, 07:05 PM	#16 (permalink)
raeannan ReRe Join Date: Feb 2006 Location: Deer Park Texas Posts: 1,212 My Mood: Points: 11,099.60 Bank: 0.00 Total Points: 11,099.60 Donate	Yeah i guess u could say that.. And they say that HS is genetic but no one in my family has it. And they say it comes up in folds of skin and in sweat glands, which for the most part is right, but I have gotten them on my feet and had to have 2 major surgeries on my eyes because they come up under the eyelids. I have had about 10 surgeries below the waste. and a handful above. I am about to have all the skin under my arms removed because they keep coming up so bad. It has been so many years that my body is immune to about every medicine they give me. I cant sit in a tub and wait a couple of days anymore because they dont "pop" anymore. I mean they do.. but on the inside and then Trac out to other places.. Here are some pics some arent pretty.. but thats what hs is. I am not complaining though. Just more excited that there are cysters in the same boat!!! My personal site.. www.raeannan.com Some pictures of my HS... My eyes before and after the HS was removed. http://www.raeannan.com/r115.htm My last lower body surgery to remove HS http://www.raeannan.com/r162.htm __________________ IUI #4 Did it for us!! To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. Logan Michael's Website To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

12-27-2006, 02:07 AM	#17 (permalink)
sugar'n'spice Registered User Join Date: Sep 2006 Posts: 7 My Mood: Points: 514.00 Bank: 0.00 Total Points: 514.00 Donate	Question on HS and being PG I think I may have HS, but the weird thing is that it seems to have just popped up during my pregnancy. I freaked out when I saw the cysts/boils "down there" and thought something was very wrong. Upon examination my ob said it was just a rash of some sort, gave me some rx powder and sent me on my way. The powder seems to help, but the boils seem to come and go as they please. Has anyone heard of this condition starting during pregnancy? Is this something I should be concerned about - i.e. is it in any way harmful to my baby and/or contagious? My ob doesn't seem concerned, but since this is something new for me I like to get as much info as possible. From the info I've found on the net, my symptoms seem to fit perfectly, I'm just wondering how it is being pregnant. If anyone has any information please let me know, I'd appreciate it much! Thanks!

12-27-2006, 10:43 AM	#18 (permalink)
HOLLAND Hoping for a baby Join Date: Aug 2005 Location: Virginia Posts: 3,577 My Mood: Points: 89.65 Bank: 4,325,536.19 Total Points: 4,325,625.84 Donate	That's probably what it is. I would think that if your OB is not worried about it then don't worry yourself. Mine come up in the same places everytime as well. They hurt like heck. I have about 5 of them right now. It hurts to even sit. I feel for you!!!! __________________ *Me 29 / DH 27* *Married to my Dutch Boy since 12/23/2000* *Cancer Survivor - Leukemia* To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. TTC Since 5/2004 2 IUI'S A BUST To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

12-30-2006, 10:17 AM	#25 (permalink)
Eva37 UK Mod Join Date: Mar 2004 Location: South Wales Posts: 12,558 My Mood: Points: 21,976.86 Bank: 1,041,115.92 Total Points: 1,063,092.78 Donate	hi ive had mine removed surgically , too. eva __________________ PCOS, LOCAH, Lichen Planus, IBS, HS,alopecia - raised bp/ cholesteral. Wheat and dairy intollerance Meds: Spiro, Bendrofluazide, Amlodopine, Simvastatin, Met, Prednisolone, Mirena iud, Colpermin multi vits, Me - 41, hubby 36 son 11. Married 14 years She is buffeted by the wind, but she does not sink. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

12-30-2006, 10:29 AM	#26 (permalink)
HOLLAND Hoping for a baby Join Date: Aug 2005 Location: Virginia Posts: 3,577 My Mood: Points: 89.65 Bank: 4,325,536.19 Total Points: 4,325,625.84 Donate	When do they decide to remove them? Does it have to get to a certian point first? __________________ *Me 29 / DH 27* *Married to my Dutch Boy since 12/23/2000* *Cancer Survivor - Leukemia* To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. TTC Since 5/2004 2 IUI'S A BUST To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

12-29-2006, 08:36 PM	#19 (permalink)
hela English cyster Join Date: Dec 2006 Location: Winchester, UK Posts: 1,017 My Mood: Points: 2,665.25 Bank: 30,754.14 Total Points: 33,419.40 Donate	Hello all, my first post here and what a subject to start on! I've had these little bleeders too, and it is a huge relief to find out I'm not alone. Been on metformin for about 5 months now and in the last month or so only had one "down there" Thank goodness, as they sure are painful. The gross warm bath and squeeze aproach has thankful worked for me but boy does it hurt while you do it. Hela

12-29-2006, 10:09 PM	#20 (permalink)
soccerwidow10 Jen Join Date: Dec 2006 Location: Florida Posts: 9 Points: 221.93 Bank: 0.00 Total Points: 221.93 Donate	I came to this site because of a thread on medication that I take....I had no idea that some of you suffer from this like I do. I was diagnosed about 6 years ago and I started having signs around the onset of puberty. I have always had it but, was embarrassed to talk to anyone about it. I started getting the cysts on my breasts a few years backand about a year ago I started getting them on my armpits. I have not had to have any surgeries but....bathing suits and sleeveless shirts are a no no!! Well, if the bathing suit has a long enough skirt I can get away with it. Before diagnosis, I thought I had it because of being fat, sweaty and just plain disgusting. HS is a very emotionally devasting disease. I still have low self esteem at times because of it. My DH is very understanding. When my diabetes is under control the "down there" ones aren't as bad. But, my breasts are always sore and yucky. I think it is because they are big(D), Florida is humid and sweaty, and well, they only "air out" at night. Thanks for sharing and listening to me.

12-30-2006, 11:08 AM	#27 (permalink)
~SugarPlums~ !Que Sera, Sera! Join Date: May 2006 Location: Indiana Posts: 3,960 Points: 7,397.26 Bank: 54,493,936.01 Total Points: 54,501,333.27 Donate