Hidradenitis suppurativa (boil/cyst in armpit or groin) - Page 3

soccerwidow10 · 12-30-2006, 01:47 PM

Holland- as long as it is draining that is a good sign. They need to heal from the inside out because of basically being holes.

I have never had to use pain pills. I use tons of Advil though!! The anti-inflammatory helps to ease the pain of the redness around the site. Although, I am probably damaging some other organ due to the amount of Ibuprofen I ingest.

I have actually taken knives to myself to break open and drain....I am going to try a heating pad next time. It sounds......less painful???? LOL

Reading everyone's experiences really lets me know I am not alone in this. For such a long time I thought I was.

Does having the boils/cysts affect intimacy? I know it does for me. I feel so many things...gross, smelly, infectious...how do you deal? My DH has never made me feel this way....it's all me and my head. Daytime or lights on sex is out of the question. I don't want him to see the scars, the bandaids, or the possible rupturing.

Does anyone get them where it is not a "hotspot"? I have gotten ones on my stomach nowhere near a waistband. I have gotten them on top my breast/chest. Nowhere near sweaty. Those hurt so bad because you don't have the "natural" moist/heat to hurry along the rupturing.

TMI....I don't think it is too much. It lets me know I am not the only one. I keep saying that I know.....but.....HS has been so mentally and physically damaging to me.

People who don't have it or know someone who does.....can't understand.

Julius · 12-30-2006, 02:09 PM

Quote:

Does anyone get them where it is not a "hotspot"? I have gotten ones on my stomach nowhere near a waistband. I have gotten them on top my breast/chest. Nowhere near sweaty. Those hurt so bad because you don't have the "natural" moist/heat to hurry along the rupturing.

Yes! My calves! Go figure. The first one I got there, I didn't realize it was a boil and thought it was a spider bite or something. I've had a few there now and scars for each one.

When I have them, they do definitely affect intimacy, regardless of where on my body they are. I'm afraid he'll squeeze my leg too hard and get a nasty surprise. Or if it's a groin one - forget about it. It hurts to walk let alone get some action. Like your husband, my boyfriend has never made me feel bad about it, but I always do.

PBLayzod · 12-30-2006, 02:15 PM

Luckily (???), mine were always limited to the groin. I stopped getting them after I began taking Met. I haven't had any since getting pregnant. I guess the hormone change did it for me. It will be interesting to see if they come back after the baby. I'm VERY glad to not have the severe ones you all have described.

*~SugarPlums~* · 12-30-2006, 03:32 PM

I get them on my breast and tummy too, just mostly the groin. I feel the same way about intimacy also but dh has always been good about it. When I get one that is bad and I can barely walk due to the friction, I wear an ace bandage, not loose, kind of snug and that helps me be able to do things and get around. I also will put neosporin if I am out of bactroban under bandage.

I don't wear bathing suits or tank tops. You are not the only one. /my brother gets them too just as bad. I don't like for dh to EVER see them, they suck. They have definately affected my life in a bad way.

Eva37 · 12-30-2006, 04:54 PM

hi

mine are usually under my arms, and on my head. Having them on the head is quite rare, apparently......... :rolleyees:
eva

terri1977 · 12-30-2006, 07:18 PM

Quote:

Originally Posted by sugar'n'spice

Is this something I should be concerned about - i.e. is it in any way harmful to my baby and/or contagious?

I was diagnosed with PCOS and HS as well. My doctor said that HS was not contagious and to not worry. I used to be on BC and when I was, it seemed to clear up.....only scars remained......But now, they took me of BC because it was messing with my blood pressure. I've been on met for over 2 years and I read someone else's post here mentioning that since they been on met, there was no flare up. Unfortunately, that isn't the case for me. For me, since I've been off BC they've come up all over again.

It's nice to see that I'm not alone!!

soccerwidow10 · 12-31-2006, 12:38 AM

I was a lucky one too with my pregnancies....never a one. It must have been the hormones. Also, being diabetic and pregnant I ate better and took care of myself. No greasy foods, etc.

sweetmelissa26 · 12-31-2006, 04:05 AM

I have had them too they HURT!!,lol I have actully had one and as a matter of fact it seems to becoming back but on my tail bone area.I have actully had one of my close cuz take a needle and pook it,lol but it went away for about a year now,ouch.

NicMarc1213 · 12-31-2006, 11:13 AM

Quote:

Originally Posted by sweetmelissa26

I have had them too they HURT!!,lol I have actully had one and as a matter of fact it seems to becoming back but on my tail bone area.I have actully had one of my close cuz take a needle and pook it,lol but it went away for about a year now,ouch.

Melissa- The one on your tailbone is a polynitol cyst (sp?). If it comes back again, you need to go to the dr and get it lanced and packed, so it can drain. I had one a long time ago, and I had to keep it packed and open for over a month so it can heal from the inside out.

soccerwidow10 · 12-31-2006, 11:43 AM

Quote:

Originally Posted by NicMarc1213

Melissa- The one on your tailbone is a polynitol cyst (sp?). If it comes back again, you need to go to the dr and get it lanced and packed, so it can drain. I had one a long time ago, and I had to keep it packed and open for over a month so it can heal from the inside out.

Yep, she's right. I had to have surgery on mine when I was 19. There is actually a pocket that is not sealed while in utero that can become pussy and infected. The only way to permanently get rid of a polinidal cyst is surgery.

There are some wicked cool medical reports about finding "twin tissue" in the polinidal sacks. No such luck with mine. Just puss.

Smurfie · 12-31-2006, 05:16 PM

Hi girls. I have HS, and it's terrible. I've had it for 7 years. I started rapidly gaining weight and saw the first sign in my groin area. At the time, I didn't even know I had PCOS or what the hell was going on with all these boils! Yeah, TMI, but the majority are "down there". They are very painful and when they heal, they usually come back later or leave a hole with a black spot around it. I have some on my breasts and armpits as well.
Some have gotten as big as a golfball. I found draining is almost unavoidable. Sometimes I light a the end of a needle on fire and stick it to drain. Sorry, TMI, but it works to drain them so they aren't so damn painful.
My gynie says I have the worst case she's ever seen. It's emotonally and physically draining at times. Not to mention the embaressment of letting a DR se them, and DH. Thank God DH could care less!!!!
You're not alone girls. ((HUGS))

Smurfie · 12-31-2006, 05:23 PM

Quote:

Originally Posted by soccerwidow10

Does having the boils/cysts affect intimacy? I know it does for me. I feel so many things...gross, smelly, infectious...how do you deal? My DH has never made me feel this way....it's all me and my head. Daytime or lights on sex is out of the question. I don't want him to see the scars, the bandaids, or the possible rupturing.

Does anyone get them where it is not a "hotspot"? I have gotten ones on my stomach nowhere near a waistband. I have gotten them on top my breast/chest. Nowhere near sweaty. Those hurt so bad because you don't have the "natural" moist/heat to hurry along the rupturing.

Intimacy - besides my own inhabitions, it can be painful. The rubbing against them and such. I agree, no lights, cameras (lol) etc. I also have to wear bandaids so they don't "leak" all over my clothes after a rupture. The scars are not so pretty, but DH could really care less, as long as he's getting some. LOL! KWIM? He loves me, and it's just my own insecurities.

I have gotten them around my waistband, and under my nipples. It can sometimes be a hot spot. We should wear looser clothing to avoid the sweating and rubbing when infammed.

((hugs)) You're not alone.

Smurfie · 12-31-2006, 05:24 PM

I've heard that tree oil keeps them at bay and has actually cured a cyster that I know. Anyone have any experience with tree oil?

sweetmelissa26 · 01-01-2007, 02:59 AM

Quote:

Originally Posted by NicMarc1213

12-30-2006, 02:15 PM	#33 (permalink)
PBLayzod Librariless librarian Join Date: Oct 2006 Location: Alabama Posts: 3,329 My Mood: Points: 70,766.23 Bank: 0.00 Total Points: 70,766.23 Donate	Luckily (???), mine were always limited to the groin. I stopped getting them after I began taking Met. I haven't had any since getting pregnant. I guess the hormone change did it for me. It will be interesting to see if they come back after the baby. I'm VERY glad to not have the severe ones you all have described. __________________ Pam (32) Rob (35) Otis the Doberman (2) TTC #1 since 01/03 2003- Clomid - HSG - SA 2004- Lap - Gonal-f 2005- Break 2006- Met - BFP 10/06 Kate arrived July 16, 2007 To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

12-30-2006, 03:32 PM	#34 (permalink)
~SugarPlums~ !Que Sera, Sera! Join Date: May 2006 Location: Indiana Posts: 3,960 Points: 7,397.26 Bank: 54,493,936.01 Total Points: 54,501,333.27 Donate	I get them on my breast and tummy too, just mostly the groin. I feel the same way about intimacy also but dh has always been good about it. When I get one that is bad and I can barely walk due to the friction, I wear an ace bandage, not loose, kind of snug and that helps me be able to do things and get around. I also will put neosporin if I am out of bactroban under bandage. I don't wear bathing suits or tank tops. You are not the only one. /my brother gets them too just as bad. I don't like for dh to EVER see them, they suck. They have definately affected my life in a bad way. __________________ To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. Mom to twins Chris & Sophia, twin Angels born at 18 weeks, Sarah & Joshua & 4 early Angel babies (5 miscarriages)

12-30-2006, 04:54 PM	#35 (permalink)
Eva37 UK Mod Join Date: Mar 2004 Location: South Wales Posts: 12,558 My Mood: Points: 21,976.86 Bank: 1,041,115.92 Total Points: 1,063,092.78 Donate	hi mine are usually under my arms, and on my head. Having them on the head is quite rare, apparently......... :rolleyees: eva __________________ PCOS, LOCAH, Lichen Planus, IBS, HS,alopecia - raised bp/ cholesteral. Wheat and dairy intollerance Meds: Spiro, Bendrofluazide, Amlodopine, Simvastatin, Met, Prednisolone, Mirena iud, Colpermin multi vits, Me - 41, hubby 36 son 11. Married 14 years She is buffeted by the wind, but she does not sink. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

12-31-2006, 05:16 PM	#41 (permalink)
Smurfie Happy New Year! Join Date: Jun 2004 Location: Illinois Posts: 6,538 My Mood: Points: 2,445.80 Bank: 101,673.82 Total Points: 104,119.62 Donate	Hi girls. I have HS, and it's terrible. I've had it for 7 years. I started rapidly gaining weight and saw the first sign in my groin area. At the time, I didn't even know I had PCOS or what the hell was going on with all these boils! Yeah, TMI, but the majority are "down there". They are very painful and when they heal, they usually come back later or leave a hole with a black spot around it. I have some on my breasts and armpits as well. Some have gotten as big as a golfball. I found draining is almost unavoidable. Sometimes I light a the end of a needle on fire and stick it to drain. Sorry, TMI, but it works to drain them so they aren't so damn painful. My gynie says I have the worst case she's ever seen. It's emotonally and physically draining at times. Not to mention the embaressment of letting a DR se them, and DH. Thank God DH could care less!!!! You're not alone girls. ((HUGS)) __________________ Stephanie 30, DH 33, DS 11, DSS 14 Dx PCOS officially November 2003 Click below for a new PCOS board! All are welcome! To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. - A Friendly, Open Board for ALL Cysters.

12-31-2006, 05:24 PM	#43 (permalink)
Smurfie Happy New Year! Join Date: Jun 2004 Location: Illinois Posts: 6,538 My Mood: Points: 2,445.80 Bank: 101,673.82 Total Points: 104,119.62 Donate	I've heard that tree oil keeps them at bay and has actually cured a cyster that I know. Anyone have any experience with tree oil? __________________ Stephanie 30, DH 33, DS 11, DSS 14 Dx PCOS officially November 2003 Click below for a new PCOS board! All are welcome! To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. - A Friendly, Open Board for ALL Cysters.

12-30-2006, 01:47 PM	#31 (permalink)
soccerwidow10 Jen Join Date: Dec 2006 Location: Florida Posts: 9 Points: 221.93 Bank: 0.00 Total Points: 221.93 Donate	Holland- as long as it is draining that is a good sign. They need to heal from the inside out because of basically being holes. I have never had to use pain pills. I use tons of Advil though!! The anti-inflammatory helps to ease the pain of the redness around the site. Although, I am probably damaging some other organ due to the amount of Ibuprofen I ingest. I have actually taken knives to myself to break open and drain....I am going to try a heating pad next time. It sounds......less painful???? LOL Reading everyone's experiences really lets me know I am not alone in this. For such a long time I thought I was. Does having the boils/cysts affect intimacy? I know it does for me. I feel so many things...gross, smelly, infectious...how do you deal? My DH has never made me feel this way....it's all me and my head. Daytime or lights on sex is out of the question. I don't want him to see the scars, the bandaids, or the possible rupturing. Does anyone get them where it is not a "hotspot"? I have gotten ones on my stomach nowhere near a waistband. I have gotten them on top my breast/chest. Nowhere near sweaty. Those hurt so bad because you don't have the "natural" moist/heat to hurry along the rupturing. TMI....I don't think it is too much. It lets me know I am not the only one. I keep saying that I know.....but.....HS has been so mentally and physically damaging to me. People who don't have it or know someone who does.....can't understand.

12-31-2006, 12:38 AM	#37 (permalink)
soccerwidow10 Jen Join Date: Dec 2006 Location: Florida Posts: 9 Points: 221.93 Bank: 0.00 Total Points: 221.93 Donate	I was a lucky one too with my pregnancies....never a one. It must have been the hormones. Also, being diabetic and pregnant I ate better and took care of myself. No greasy foods, etc.

12-31-2006, 04:05 AM	#38 (permalink)
sweetmelissa26 Registered User Join Date: Dec 2006 Location: Dearborn ,Michigan Posts: 3 Points: 186.38 Bank: 0.00 Total Points: 186.38 Donate	I have had them too they HURT!!,lol I have actully had one and as a matter of fact it seems to becoming back but on my tail bone area.I have actully had one of my close cuz take a needle and pook it,lol but it went away for about a year now,ouch.