My doctor recently took me off Aldactone and as a result the boils came back. But this one is the absolute worst.
I've been bed ridden for 4 days. I was in extrme pain and couldn't walk or stand. 3/4 of my abdomen has been swollen. On Monday I went to the doctor. He gave me an antibiotic but wouldn't lance it. Then yesterday when I got out of bed to try and fix breakfast it burst and so I had to go back to the doctor to have him finish draining it. It was so painful.
I'm doing better today but still in a little bit of pain. Anyways, as a reminder, when you see these boils occuring keep an eye on them and go see your doctor. I'm also going to ask my doctor if I can go back on the Aldactone because I can't tolerate any more of these!
__________________ 34 yrs, DH 30
Dx in 2001
Cystic Acne, Hydrenitis Superativa, hirsutism, 80pounds overweight
Spironolactone, Effexor, Provigil Daily
**************************************** God, give me patience but I want it right now!
aww ((hugs)) and ((hugs)) I know how awful hs can be!!
Hope you feel better soon. pm me if you want
Eva
__________________ Age 35, dh 30, married 8 years, one son 5 years old
DX pcos Jan 2001
DX ibs Dec 1999
Dx LOCAH Sept 2001
Hidradentis Suppurativa
(lumps)
Cervical Ectropion
Raised blood pressure
High Cholesterol
Loads of meds - too many to mention!!
"She is buffeted by the waves but she does not sink"
To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Oh girl, I feel your pain! HS is absolutely the worst! I can't even wear a swimsuit in the summer because of the scars on my thighs. Luckily, I've never had one get that out of control, but I can remember a couple right on the pantyline in my groin area that literally had me barely able to walk because of the panties rubbing against it. If you are not opposed to birth control pills, they completely cured mine while I was on them (I am off now, so dealing with HS again). Antibiotics cleared it up too -- both Bactrim and minocycline -- until I became allergic to both.
__________________ Me 32 ~ DH 33
Mom to Anna Kate, my Russian Miracle
b ~ 7/18/01 a. 2/11/02
Aldactone is an androgen inhibitor, which means it lowers testosterone levels. High testosterone levels have been shown to be a leading cause of HS. It worked for me!
__________________ Dear Lord, Please keep one hand on my shoulder and the other firmly over my mouth...
Shelly 36, DH 39
Dx 1999, no kids yet.
Not actively TTC, but not preventing.
Student, working while in school, who knows where after school is done!
Still trying to decide what I want to be when I grow up.
Lamaanlove, while I was on the Aldactone, I did not have ANY symptoms of the HS. And, of course, the facial acne cleared up completely. It was amazing.
As much as I hate taking Aldactone, it sure did work.
__________________ 34 yrs, DH 30
Dx in 2001
Cystic Acne, Hydrenitis Superativa, hirsutism, 80pounds overweight
Spironolactone, Effexor, Provigil Daily
**************************************** God, give me patience but I want it right now!
I honestly don't know if it was the losing weight or controlling insulin or Saw Palmetto, but I don't get HS any more.
__________________
Maureen 36, DH is 35
Momma to Declan Christopher, born 9/2/03
STILL happily and proudly breastfeeding my big boy! To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Before pregnancy, went from 175 to 136 thanks to To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. , exercise and low glycemic index foods. Polycystic appearing ovaries are gone; ovulated regularly; bloodwork normal.
Improvement in hirsuitism and androgenic alopecia is greatly improved. AN and cystic acne are gone!
Improvements in skin and hair due to To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. , standardized, 160mg 2x day. (no longer on it due to PG and BFing). To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
OMG...I think I have this! I was coming on here tonight to ask if someone had the same issues I had and lo and behold, here this is! Thanks for starting the thread and giving me a medical term to start a search on!
__________________
To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Wife to Rocco (1/21/05) + Mommy to 3 cats +
Academic Advisor + Graduate student = 4 Full-time Jobs
Hidradenitis Suppurativa - No Laughing Matter 
I can't even wear a swimsuit in the summer because of the scars on my thighs. Luckily, I've never had one get that out of control, but I can remember a couple right on the pantyline in my groin area that literally had me barely able to walk because of the panties rubbing against it. If you are not opposed to birth control pills, they completely cured mine while I was on them (I am off now, so dealing with HS again). Antibiotics cleared it up too -- both Bactrim and minocycline -- until I became allergic to both.
