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Old 04-10-2003, 01:29 AM   #1 (permalink)
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Unhappy hidradenitis suppurativa (sp?)-- i could cry

i have two big cysts right now and i feel like a freak. they hurt terribly and all i can do is put tea tree antiseptic on them and hope they'll go away soon. does anyone have any other advice?
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Old 04-10-2003, 05:16 PM   #2 (permalink)
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Hi there. HS royally sucks doesn't it? I have lots of info in my siggy and you can contact me at kat71va@yahoo. com if you like!
Hugs and healing,
Karen
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For Hidradenitis Info, Check out
http://hs-usa.org/home.htm
Official HS Website
Also here is a link of an excellent medical description of HS.PRINT IT OUT AND TAKE IT TO YOUR DOCTOR!
http://www.mf.uni-lj.si/acta-apa/acta-apa-00-4/papadopoulos.html
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Old 04-10-2003, 05:25 PM   #3 (permalink)
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Hello

I've got hs too. Isn't it just HORRIBLE!!

pm me if you want

Eva
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She is buffeted by the wind but she does not sink
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Old 04-10-2003, 11:45 PM   #4 (permalink)
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Default thanks KAT71NY

those links are really helpful.

do you think it would be helpful to put the tea tree cream (or any of the other suggested remedies) on a cotton pad and leave it there over night?
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Old 04-11-2003, 01:29 AM   #5 (permalink)
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Hi,

I get HS too. I've notice that I don't get them or don't get them as often if I eat/drink organic dairy products, mainly milk. I still eat regular cheese sometimes though. I attribute it to all of the steriods/estrogens they give cows to produce more milk. I also used to drink organic coffee, but now am caffeine free. Don't know if that really helped, but it's worth a try. I also try to by Tyson chicken products because they're hormone free.

Hope this helps!
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Old 04-13-2003, 12:16 AM   #6 (permalink)
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lamaannalove- I have done that with the Tea Tree Oil when I have an HS lesion that just wont come to the surface but is painfull. I will have to warn you though, it will melt your adhesive tape or whatever you use,and will make it an oooey gooey slimy mess. But it works for me. Try the Tea Tree Oil first as just a wipe on type thing. Some people are really sensitive to it.You can dilute it with vitamin E oil or even olive oil.

I hope that you find some relief soon. I should mention that for me, I see a big reduction when I take my metformin and eat a good diet, as I am IR as well, it helps when I am a good girl and get my blood sugar in line.
This usually helps keep things to a minimum, but when I get a flare up, I take long hot baths with epsom salt and then do the tea tree oil on a pad overnight thing.

hopen4acur- you had some good advice hun. I too find dairy can do it for me. Definitely stay away from the hormonally enhanced milk and all that. Drink lots of H2O and try lots of things and see what works best for you. I also got your note and I will try and respond soon with more info. I am just moving to VA and still settling in and don't have much time for details, but will reply soon.

I would be happy to answer any other questions anyone might have, feel free to email or PM me!

Karen
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PCOS,Insulin resistant,Rosacea,
Hidradenitis Suppurativa(There is a connection)
For Hidradenitis Info, Check out
http://hs-usa.org/home.htm
Official HS Website
Also here is a link of an excellent medical description of HS.PRINT IT OUT AND TAKE IT TO YOUR DOCTOR!
http://www.mf.uni-lj.si/acta-apa/acta-apa-00-4/papadopoulos.html
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Old 04-13-2003, 01:22 AM   #7 (permalink)
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KAT71NY / Karen,

I will check out your web sites on your signature. Duh, I didn't realize that you had them there until after I send the reply

If you have some more info I'd love to have it too. Take your time. I'm in no hurry. Good luck w/ the move!

Kellie
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500 mg BID, cont met 'til 6 weeks, low progest early preg - vag supp 50 mg BID 'til week 11, PT labor @ 29 weeks, tx w/ terbutaline DS born on Halloween '02
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Our little pumkin - what a treat! Currently SAHM, high cholest, HS, AN, Hirsut/MPB, depression, taking Lexapro, omega 3, MVA, doing high protein/low carb diet
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Old 04-13-2003, 12:38 PM   #8 (permalink)
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http://groups.yahoo.com/group/HSheal...ivennutrients/

No problem Kellie

The above is a Yahoo club that uses the holistic approach. I thought you might find it interesting. Also, the main Yahoo club

http://groups.yahoo.com/group/Hidradenitis/


Is a great place if you want immediate info. That is a VERY active group and someone will answer your questions in no time at all!

Hope this helps as well!

Karen
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32 years old
PCOS,Insulin resistant,Rosacea,
Hidradenitis Suppurativa(There is a connection)
For Hidradenitis Info, Check out
http://hs-usa.org/home.htm
Official HS Website
Also here is a link of an excellent medical description of HS.PRINT IT OUT AND TAKE IT TO YOUR DOCTOR!
http://www.mf.uni-lj.si/acta-apa/acta-apa-00-4/papadopoulos.html
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Old 04-13-2003, 04:24 PM   #9 (permalink)
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Thanks Karen I really appreciate the sites! Can't wait to check out the holistic one more!

Kellie
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Me 32, DH 36, DX w/ PCOS 10-01, self dx earlier, preg w/ met only after 8 days
To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
500 mg BID, cont met 'til 6 weeks, low progest early preg - vag supp 50 mg BID 'til week 11, PT labor @ 29 weeks, tx w/ terbutaline DS born on Halloween '02
To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Our little pumkin - what a treat! Currently SAHM, high cholest, HS, AN, Hirsut/MPB, depression, taking Lexapro, omega 3, MVA, doing high protein/low carb diet
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