I'm new here, but I have been reading the forums for months.
Without typing a long story on my medical history, I just came here to vent to anyone who cares to read this.
I know people deal with much worse problems than I. I know that many who have the same problem as I have it worse as well.
I do not know what is wrong with me. ever since I started college I stopped getting a period. Then another symptom began, insatiable hunger attacks. I went to the nurse practitioner who took blood tests and an ultrasound which revealed I had polycystic ovaries. She then told me "but you don't have the syndrome"
I was thin then, but had gained a few pounds prior to the symptoms.
From then on she put me on birth control pills and I have been a rollercoaster of hormones ever since, going from doctor to doctor with no definitive answer.
I have been told my anovulation is due to stress. I have had to have an MRI done on my adrenal glands. I have had to test for Cushing's Syndrome. I have been accused of having an eating disorder because I was complaining of increased hunger but was not overweight. I am on thyroid medication.
I have good phases and bad phases and I am going nuts inside.
I can't enjoy life because my health is always on my mind.
*hugs* it sounds like you've been through a lot. it took me a long time to get dx'ed w/pcos and i am steal dealing with some of the emotional issues. are you seeing an endocrinologist? they can help you get your hormones under control. if you're not seeing one already, i highly suggest seeing one.
also, are you seeing a therapist? sometimes they can really help you deal. i've had periods when health anxiety was overwhelming, and they really helped me through those rough patches.
best of luck to you. feel free to pm me if you need to talk.
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I went through a similar spat of issues when I was in my mid-20s. However, back then, no one ever talked about PCOS, Cushings, etc. I was placed on the pill because it was supposed help control my hormones and control my pelvic pain and -- I kid you not -- get rid of my "cyst problem." I was told that.
It was just as awful. My hormones went all over the place. My blood pressure became dangerously high. I was depressed all the time, and I had medical doctors telling me to see a psychiatrist. Thank God I didn't buy this line, and after several years of severe anxiety and depression and major weight gain and constant hunger I tossed the Pill in the garbage.
The weight remained. The hunger remained. And surprise! My cyst pain and horrible periods came back with a vengeance. It took several more years of this before I was finally diagnosed with PCOS.
My advice: see a reproductive endocrinologist. PCOS is an endocrine disorder, not a gynecological one, and endocrinologists will offer treatment options different from the OB-GYN's office.
Also, you can reject the Pill as a treatment option. It's not the be-all-end-all of drugs. I've noticed over the years that doctors like to prescribe them because they tend to be cheap and they kinda sorta work for most women with whatever their complaints are. You probably don't fit into that category, and the pill may not be the answer.
Besides, the pill turned me into a hormonal monster for years, and it hurt my career, my friendships, everything. Since being treated for PCOS, I've peeled away much of that depressed, anxious, impatient, and angry me. You may find that if you go to the right doctor and get a more tailored treatment, you don't need the Pill, and there may be a better you smothered underneath all those hormones.
__________________ PCOS DX: September 2006
Age: 37
Metformin XR 1500mg
Spironolactone 100mg
Hyzaar 50mg
Weight Loss
April 2006: 212
July 2007: 159 February 2008: 145
The moment my life changed:
The doctor examined my lab results, quietly flipping through page after page. He sighed, closed the file, placed it on the table and then looked up at me over his glasses and said, "You just dodged a bullet."
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This is my first post and I am so glad I found this site. I have been diagnosed with PCOS due to Insulin Resistance or Metabolic Disorder. I am seeing and endocrinologist and a gyno. The endo has me taking metformin which has helped with the insulin resistance. But due to the fact that the metformin increases ovulation, I was out on the pill by my gyno. I have had so many issues with the pills now, that I feel like I am going crazy. If the pill doesn't make me vomit, give me a headache, it makes me moody or depressed. I am at the point that I do not know what to do anymore. I do not want to get pregnant, but I am not sure what else to do. If I do not take the pill, even with the metformin, I am not having my periods. I was told that without the periods, the lining can build and turn to cancer. I am scared to death of the options. I take the pill and I see my marriage being a nightmare. I quit taking the pill and I chance pregnancy and possibly cancer. I recently went off one prescription pill and went into an emotional breakdown. I started a fight with my husband, who until 6 months ago I never fought with, that last over a week and I am still feeling "crazy". I started a new prescription about a week ago and am now facing the nausea and headaches along with the emotional baggage as well. Last week I broke down crying and had to leave work early it was so bad. I am driving my husband crazy I am sure. Anyone have any ideas or similar situations as far as the meds and not wanting to get pregnant? I am going back to school right now and do not want to add that into my life as well right now.
knoxie- i know the pill isn't for everyone. some women feel much better when they are not on it. personally, i am one of those women who need it for balance. i have pmdd and it helps to keep my hormones level. there are also a lot of different pill options for you; what have you tried/what are you taking now? it may be that you haven't found the right med combo.
i'm sorry you're experiencing such emotional turmoil. it's not fun. *hugs* have you thought about seeing a therapist to maybe help you learn some coping mechanisms and deal with the emotions. i found that to be a huge help.
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About 5 years ago I was on Ortho Tri Cyclen. Within the last year and a half I have tried Necon, Yaz, Yasmine, Loestrin, there is another 2 that I cannot think of and the one I was on till last week and I cannot think of the name of it either. I have the nuvoring that I am supposed to try now. I am waiting till Monday to try it though. Both hubby and I needed a break from the craziness! I am feeling so clear headed right now, that I am dreading what this may cause. I also tried the Mirena IUC and that did not work out either. It may come down to them manually starting my cycle every so often and being really careful not to get pregnant until I reach the point where they will remove the uterus so I can quit having to worry.
Horrible Hormones 
