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Old 06-17-2005, 02:14 PM   #1 (permalink)
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Default I don't know what I'm doing!

sorry if I'm doing this wrong. I've never posted a message before but everyone seems really nice and helpful here and I'm desperate for some information. I've been suffering from horrible symptoms for 13 years and a lot of doctors don't know anything about this disease. Does anyone else have a low LH level because everything I read about PCOS refers to a high LH level. I'm worried that maybe I don't have PCOS and instead have something else.
Thank you!
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Old 06-17-2005, 02:20 PM   #2 (permalink)
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Welcome to Soul Cysters!! What symptoms do you have?
PCOS isn't all-inclusive- you could have some symptoms and not others and still have it! I hope you can find a doctor to diagnose and treat you!
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Old 06-17-2005, 03:00 PM   #3 (permalink)
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I have a normal LH level and am underweight. I was diagnosed with PCOS in November. my symptoms include mulitple cysts on my ovaries and acne on my face. I also have not had a period in almost two years.
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Old 06-17-2005, 03:09 PM   #4 (permalink)
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Welcome to Soulcysters. What kind of doctor are you going to? What are your symptoms? I would recommend seeing an Endo that way they can do tests and diagnose you properly.
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Old 06-17-2005, 03:12 PM   #5 (permalink)
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Hi and welcome to SC!!

I'm in the same boat as you. I have all these symptoms that say that I have PCOS and IR, but while I don't want to have it, I'm scared that this won't be what I have. I've been sick for a long time, tested for nearly everything under the sun (though funnily never for PCOS or IR) and I just want to get a diagnosis so I can start treatment and get on with my life.

I hope you get your diagnosis soon
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Old 06-17-2005, 05:03 PM   #6 (permalink)
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Hi Welcome to SC. Glad you are here. See you around.
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Old 06-19-2005, 02:24 AM   #7 (permalink)
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to SoulCysters! Glad to have you! You're at the right place for answers to all your questions! Look around and ask away.

Btw, your first post was great!
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Old 06-19-2005, 02:47 AM   #8 (permalink)
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wish i had the magic answer....you have however found the best place to be and a wonderful place for information and support.....good luck.............lisadukk
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Old 06-21-2005, 02:23 PM   #9 (permalink)
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Wow! I can't believe you guys responded to my message. I'm so used to being ignored or told I'm crazy by people (especially doctors). That's why I love this website because it's full of info and people that can sympathize with the symptoms etc. I'm seeing a specialist in the fall, but I'm worried because I've been through this several times before with no luck and my hair is falling out by the handfuls. I feel sooooooo tired and crappy but my blood tests always come out normal or borderline, so I thought maybe I was overlooking something that had to do with a LOW LH level (rather than high). Oh well, I guess I'll just have to take notes on "what to ask the doctor" section and hope for the best. Thanks again
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Old 06-21-2005, 02:31 PM   #10 (permalink)
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I really wish you the best with your doctor!

If your doctor doesn't help you (it happens unfortunately - it sounds like you already know all about that sadly), I highly recommend digging thru the PCOS Friendly Doctors section here at SC. These are doctors recommended by other cysters because they've gotten the help they need!

See you around the boards I hope!
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Old 06-21-2005, 10:02 PM   #11 (permalink)
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If your doctor doesn't help you. Find another one that will.
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