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Old 12-09-2005, 11:59 AM   #1 (permalink)
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Default I don't want to go bald

I have male pattern baldness its progressing rapidly and nothing nothing has slowed or halted its progression ..

I am in a pity party today because I jsut DONT WANT TO GO BALD .. I don't want to spend the rest of my life in a wig .. or a hairpeice ... I don't want to worry about the expense of it and panic about it every morning ... I hate looking in the mirror and some days I just want to have a mini breakdown
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Old 12-09-2005, 02:32 PM   #2 (permalink)
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hi

I sooooooo know what you mean.
Eva
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Old 12-09-2005, 06:23 PM   #3 (permalink)
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Aww yeah life deals bads eggs alot but thing could be worse hun. Just try not to think about it and stress about it. I read in a Dear Abby column yesterday about a woman who wears a wig and get compliment all the time about who is her hairstylist and such. So maybe it won't be tooo bad, at least if you had to do it you could get some great hair.

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Old 12-09-2005, 06:37 PM   #4 (permalink)
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I'm so sorry you are feeling bad today....I have many days like that also...As Elaine said, sometimes I almost think it would be easier to just wear a wig...At least then I would know my hair looked good everyday. But it will never replace having a nice full head of your own hair...I've thought so many times that I would just shave it all off and be done with it.

((hug))
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Old 12-09-2005, 06:43 PM   #5 (permalink)
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(((((((((((heartfelt hugs))))))))))) to you, Sally!

Other than infertility problems, I think that hairloss is one of the most terrible, heartbreaking symptoms of PCOS. I too, have male pattern baldness and it's hard not to obssess about it. I try to keep busy and go on with my life, but there are times that I don't want to leave the house for fear that people will be staring at that bald spot on top of my head.

I have white hair and can cover it with talcum powder, but it seems to be getting harder to cover up as the spot gets wider and pinker, particularly on the top and right back side of my scalp. I have to wash and "fluff" my hair every day to hide the spot.

I wish I had the answer for you. I use Nioxin shampoo and conditioner and that has helped slow down the loss quite a bit, but I don't see much if any new growth.

What has helped is the fact that I have realized that I do notice people with hairloss much more now, which makes me tend to think that until this problem started happening to me, I wasn't noticing hair loss at all. So, I am hoping that most people are just going about their business and not noticing mine, just as I never noticed their hairloss (really!) until it happened to me. Hmmm, does that make ANY sense?

At any rate, I can relate to the awful, panicky feelings that you are talking about and you have every right to vent here. Us cysters understand.

hugs,

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Old 12-09-2005, 06:52 PM   #6 (permalink)
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Thats a good point Kat, I never thought of that...Until my hair was thinning, I never noticed it on anyone else...Now I notice it only because I feel the need to compare myself to everyone. I wonder if most normal people don't even think twice about...The probably don't even care, really....
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Old 12-09-2005, 06:57 PM   #7 (permalink)
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Thanks Girls

Its just so traumatic I have never been so down about anything beofre like I have wiht this hair loss .. every hair that falls from my head feels like a knife in my chest ... I am covered in hairs all the time.

There isnt anything to be done in my case e. I am letting it go .. I just cant bear to think of how I will look in a year's time its hard to cover the thinning now.....

ONe day I WILL have great hair.. but no it wont compensate having my own ....

I wish hairloss in women was more common in that it wouldnt be considered weird if Iwas bald
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Old 12-09-2005, 08:00 PM   #8 (permalink)
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(((hugs)))

I completely understand the mini-panic attack feeling and not wanting to be weird. I have to remind myself everyday there is nothing I can do about it right now so I'm not doing myself any favors by obsessing about it. It's still hard, but at least I know I'm not the only one feeling like a freak sometimes.

That's an excellent point, Kat & Kristina. Now that I think about it, I never noticed thinning hair on other women until my own starting going. Some days I've wondered why people don't point and laugh at my head. Is it possible they just don't notice??

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Old 12-09-2005, 08:12 PM   #9 (permalink)
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It is totally true that until you have hair problems yourself you do not notice someone else's hair loss. Now I actually look for it when I go out(can't help it) and I notice LOTS of women have thinning hair it is just something people don't talk about or joke about because women are sensitive to this. Until I decided that I am myself people like me for me and I am not in grade school anymore I did the same thing you are doing. I had 5 different doctors telling me to go to mental health, Yeah I wanted to tell them where to go. But now I talk about it with people and in turn find out a bunch of other people have the same problem, it is not some uncommon freakish thing. Plus I have noticed the less I stress the less it falls out(although that is hard to not stress). I am sorry you are feeling this way but your hair does not make the person, trust me. Hope you have a better day!!

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Old 12-10-2005, 07:26 AM   #10 (permalink)
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Quote:
Originally Posted by Kristina921
sometimes I almost think it would be easier to just wear a wig...At least then I would know my hair looked good everyday.
And that, my dears, in a nutshell, is exactly why I do wear a hairpiece. And soon will be wearing full wigs.

Yep, it is easier to get up every morning, and know your hair looks good. Yes, I'd rather have my own, but that's not going to happen. Ever again, for me. And, some ladies are OK with continuing to wear their own hair in spite of thinness, and if they keep their hair groomed, they look just fine. But that's not working for me. I have enough hair gone that I look UNHEALTHY and 20 years older than I am. Not to mention that my hair is grey, icky grey.

You would be surprised at what you can and will do if you have to do it. Wearing a wig is not the end of the world, by any means. And it doesn't mean giving up. It means going forward, and claiming your life back.

And Sally, I know you have heard me say this before at WS.....I know that feeling of panic, and the realization of knowing I have to deal with this every day for the rest of my life. Hugzzz, girl!

And Kristina is right. Most people don't notice, and most people who DO notice, don't care. They are really far too caught up in their own issues, being the star in their own dramas, to really care about someone else's. And dammit, who cares what they think anyway?
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Old 12-11-2005, 03:05 AM   #11 (permalink)
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I too know how difficult it is not to obsess about it. Some days I think I just don't have the strength to go to the mirror and begin the daily process of doing my hair so that I shield the thin spots so I can go to work and feel comfortable. It's a horrible feeling. I've been dealing with this for over 10 years now and I'm in my mid 30's. One thing I have to say is you HAVE to BELIEVE your hair will grow back. You cannot give up. I was exercising regularly 3 years ago, lost weight, and my hair had grown back (not completely) but it looked great. Now it is thinning again and I am back to worrying about it. I am using Rogaine, Nioxin products, and a shampoo by Nexus called Biotin that really does help - it comes with a spray on conditioner that you come through and it makes your hair look much thicker. Finally, I just purchased Biotin vitamin and am taking 3000 mcg a day. 2000 in the morning and 1000 at night. It may just be a fluke but I noticed when I took it at night, my night sweats were reduced. I will keep you posted on the Biotin but I've hears some great things and I'm excited to have started on it. Don't let it get you down - you are not alone. Email me whenever you need a pep talk and keep thinking positive.
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Old 12-11-2005, 04:38 AM   #12 (permalink)
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I am SOO sorry for you! I started losing hair over a year ago and the doctor put me on Armour and as soon as 2-3 days went by my hais stopped coming out. All of my friends were notincing and it was breaking my heart! I hope you can find a cure to stop it!!!!
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Old 12-12-2005, 12:21 AM   #13 (permalink)
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I know how you are all feeling. Everytime i take a shower clumps of hair fill the drain. Then when i brush my hair clumps come out. It has even gotten so bad that my cat will end up eating a peice and when she goes to the bathroom the hair is inside of her with poo attached and when she gets some of the poo out she freaks out because its hanging from my hair. So I have to pull it out. It makes me want to cry all the time. My life is bad enough without going bald too. My favorite feature of mine was my thick full head of hair and now thats going away too. I dont know what to do anymore. Between PCOS and everything else i just dont know how to be happy.
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Old 12-13-2005, 04:59 AM   #14 (permalink)
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I am losing my hair also. I can live with a beard, stretch marks, loose skin - anything but this. It took several trips to different doctors but I finally found one who will help.


I went to a derm & she called in the head doctor for a consult. The head doctor said that she prescribes Propecia for women losing their hair & she's seen it "grow hair like crazy" - her words, not mine. I asked for a scrip & she said no because I'm of child bearing age, but if an obgyn signs a form saying I can't have children she'd give it to me. Screw that, I asked another doctor & in January I can have it. I was desperate enough that I was going to have my dad get the scrip for me. Anyway, from what I understand, if you have AA & get rid of the DHT (with any drug), your hair can't fall out. I know Propecia's a strong drug, but I'm willing to try it.



BTW - I was asking for Flutamide, but after hearing what the doctor said I'm going with Propecia. I've read about it, & a lot of women have had success with it.
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Old 12-13-2005, 07:20 AM   #15 (permalink)
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Please please keep us posted on the progress. I am 35 years old and was blessed to have 1 child with clomid. I'm not planning on having anymore (not willing to go through the fertility process again) but we are considering adoption. I would go on Propecia in a second if I thought it really works. Let us know - I'll stay in touch!
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