I feel really overwhelmed and pretty alone

Kitterp · 06-28-2004, 01:24 PM

I was wondering if anyone had some words of wisdom for me. I was diagnosed about 1 month ago. I had been suffering with crazy symptoms for 3 years. I had tried herbal remedies, as I read some websites that described candida and I thought that is what I had. I tried antidepressants which seemed to help for a while at least with keeping my chin up, but eventually these drugs made me shake for no reason and my doc took me off. I have food allergies that I never had before and so I supplement with digestive enzymes which really seems to help. Every time I have gone to a doctor they look at me like I am crazy. My problem is that I think somewhere along the line I began to think this was true. I have been let down by doctors, for so long now that I almost don't believe I have PCOS (even though I have all the classic symptoms). It is hard for me to accept and have hope I guess. I have really good days and really bad days. Today I guess is one of those really bad days, were I feel very hormonal and emotional (pretty much for no reason). Does anyone else feel like this? Sometimes I feel like I will tackle this and I can take on the world and other time I feel completely overhwelmed by it and powerless.

I guess I need a little support.

sun · 06-28-2004, 01:33 PM

I'm sorry I can't answer any of your questions. But I did want you to know you're not alone! And I'm sending (((HUGS))) your way.

Pattyannruss · 06-28-2004, 02:37 PM

My heart is hurting for you.
There is no worse feeling than being made to think we are crazy or"It is all in your head". That is BS!!

There are real reasons for each concerne. Finding the first steps are always the hardest. Then over coming denial is the next big step.

I would guess the majority here at SC are still facing the "denial" part. We know what needs to be done to get our lives back...but making it happen are just out of reach.

Above that, you will find HOPE. Hope is what each and every one here still has. Many have dif reasons or dif goals. But we all have hope. As long as you remind yourself at your lowest point, "I still have hope for a better future" You can pull out and move on.

I want to address each of your written issues and compare them to me.

Antidepressants...I tried several. I wouldn't last more than 2 weeks on anyone of them. I too had adverse side effects from them. The longer I was on them..the more severe they became.
I now take Xanax. But I don't take them daily. I only take them when I have a melt down coming on.(usually work related)
I don't know if another Dr would be willing to do this. But my Dr trusts me and I keep close track of when and how I take them.
I make a scrip last for 2-3 months too. So that prob helps.

Another thing to remember about all vitamins and meds. They have "fillers" to bulk up the pill. There are so many people that have allergies to certain ingrediants. So I would say you need to try to figure out what filler you are intolerant too. My Mom is very sensitive to soy and yellow coloring. Colorings with # after them are proven to trigger many mental illnesses. ADHD is the main one they have documanted information on. Sugar/carbs can also be a trigger.(My trigger) If I have too much like a mini benge...I will have a hang over the next day. No joke.

Now, when you talk with a doctor, do not show fear.
Read up and be very knowlegable so they don't dismiss your issues so quickly. They are busy, only have about 10 mins to talk with you. Make a specific list of your concernes. It will make the appt go faster with better results.
So you need to be very direct, tell them want you want(scrps) and tell them your short term goals for these meds.

Not all Dr have good sympathy for their patients. They expect everyone to do exactly what they are told. It doesn't work that way. Especially for those of us with certain phobias related to our health.

I would suggest your first step today is to start working on yourself and let your self know that PCOS is NOT a death sentance.

You are the only person to control your eating and mental wellness. You can't be in good health if you are always putting yourself down. You have to change your attitude.
You need to know it is ok to have emotions. You have the right to cry and be sad. But you have even more right to be happy for who you are.

Now you have the power. Never let anyone make you feel inferier again.(hard I know) It takes time. You need to keep reminding yourself. If you forget how...Come here, I will remind you.

It has been 3 years that I have been DX. I am still working on all these issues. I just want you to know, you will find a time when you don't hurt as much.

I wish you much peace in your heart.

Patty

Kitterp · 06-28-2004, 02:49 PM

Thank you. Your post made me cry but I think that is what I needed.

Little_Lady · 06-28-2004, 05:53 PM

*phew* how can i follow that essay? lol!

hey hun, just wanted to wish u well. its a hard confusing time for u at the mo but u will come through this stronger than u ever imagined

if u can just hang in there.
i echo what pattyannruss said about those dreaded #e-numbers.. both of my brothers have ADHD, probably mostly a coincidence of the nutty gene but also because of excessive consumption of those.

I 'suffer' with depression and i find that when i drink to much caffeine or products containing loads of additives i feel more lethargic & weepy,triggering an 'episode' (for want of a better word'

search for a doctor who u 'connect' with. it really does make a difference. in my opinion, gettin diagnosed is the hardest part....it can only get better from here!! It is not 'all in ur head' don't ever let anyone make u believe that. If its in urs,what does it say for the rest of us?! lol. i hope u feel better soon.t/c xxx