I have what?!!!!!

sexyswamprat · 09-21-2008, 05:20 PM

This isn't really off topic but I thought it would be interesting to find out what the first thing was that went thru your mind when your docotor said "you have PCOS"

When I found out I had pcos it wasn't a big shock to me. It was really more of a confirmation when she said "you have pcos". But the first thing I thought was okay, why me? Why not one of my 2 sisters? Why, Why, Why!!!

StudentNurseGirl · 09-21-2008, 08:38 PM

When I first started being concerned about my symptoms from PCOS- it was May and I hadn't had a period since November... and deciding that my facial hair could NOT just be nothing.... I started reading up on things online- and suddenly discovered that PCOS made sense as a diagnoses for me. A while later I went to the university health center, and the nurse practitioner there told me that I probably had PCOS, and that she thought that I should have a bunch of lab tests done- and that she thought I should see a gynecologist. Unfortunately this was the last week of school, and I was spending the summer at a camp... so she prescribed me a round of Provera, and I went to camp for the summer. In the fall (last week) I went to the gynecologist, and she also told me that I have PCOS, and prescribed me meds and tests etc... so when each of these people told me that they thought I had PCOS- I had already kind of wondered if I did to begin with- so it was really just a confirmation... as well as a hard blow- because one thing I really want to do is be a mom someday, and I know this will make it way harder, as well as having all these other health risks- none of them sound like good things.

GuitarBee · 09-21-2008, 08:51 PM

my gut reaction was "You're taking my life away from me. I'm a college student and I can't live like this!"

Constance · 09-21-2008, 10:01 PM

I was to ditzy to really understand. I was 19 and thought Oh Ok. Whatever.
To this day I don't think of it as a horrible ailment. I mean there are so many other worse things that people deal with. Do I wonder what it is like to not have to battle acne at the age of 30? Sure. Do I wonder what it is like to not wonder when my period will come or when it wills stop? Sure.
I do find that I have some sense of control by working out even when I dont want to. It may not make me the bean pole I want to be but at least I feel better knowing I am tone under my fat roles.
No its not cool to have but like I said there are worse things.

ttara123 · 09-21-2008, 11:07 PM

Quote:

Originally Posted by Constance

I was 19 and thought Oh Ok. Whatever.
To this day I don't think of it as a horrible ailment.

I agree with this 100%. I was 17 or 18 when I was diagnosed, and it wasn't like some kind of dramatic life-changing thing so much as me rolling my eyes and thinking "oh, bother. I don't want to take medicine for the rest of my life. How annoying." And the more I learn about PCOS, the more I do feel in control of it - because I can anticipate my problems, and I have all of my wonderful soul cysters to help me through the tough times. I don't feel handicapped by PCOS.

I'm not saying that PCOS isn't somewhat of a curse, but rarely do I think about what it would be like not to have it. This is me, this is the body I'm stuck with, and I just deal with this every day. It's not the hugest thing in the world to me - I mean, I'm used to it all by now.

sexyswamprat · 09-22-2008, 01:59 AM

I really want to thank everyone who has taken the time to tell their story.

*~SugarPlums~* · 09-22-2008, 03:39 AM

When I was told that what I had actually had a name, PCOS, I was overjoyed! I knew that now I had a reason for my infertility, hairyness, and recurring miscarriages. With that knowledge, came HOPE! That day, a huge rock was lifted off my chest and I was able to start getting the treatment I needed.

novachick · 09-22-2008, 11:19 AM

Quote:

Originally Posted by ttara123

I'm not saying that PCOS isn't somewhat of a curse, but rarely do I think about what it would be like not to have it. This is me, this is the body I'm stuck with, and I just deal with this every day. It's not the hugest thing in the world to me - I mean, I'm used to it all by now.

Ditto. I was just happy my suspicions were confirmed. It's not like I'm dying....so, for me, it's not a big deal.

After the best friend got her APS (blood clotting disorder, she had a stroke at 26) diagnosis, it would be a bit pathetic to whine about PCOS, y'know? She's got all the baby-creatin' problems we do, plus the added fun that she could die at any minute, even while taking her blood thinners. Who the hell am I to complain? There's a lot of girls worse off out in the world than I. If I can't have a kid, whatever, I'll adopt or just NOT have kids. I refuse to feel sorry for myself over this.

Disclaimer: I'm just talking about how I feel, etc, etc. No, I'm not putting you down, no, I'm not belittling your experience. Just my two cents.

*~SugarPlums~* · 09-22-2008, 04:32 PM

Oooh. I found out I had aps last January! I know that aided in my miscarriages, but I think it kinda all goes hand in hand with pcos. I also have type 2. Among some other things. Aps is serious. I had surgery 2 months ago and had to be admitted earlier just for iv blood thinners.

***FOR ME IT GOES HAND IN HAND***

nylittlejen · 09-22-2008, 07:18 PM

I went to the doctor because I thought I was pregnant. I had gone off the pill, gained weight and my face was turning into pizza. When they told me I had PCOS, all I could say was "So I'm not pregnant?" It was definitely a shock since twins ran in my family, then I found out that Clomid is why twins run in my family.

tiggarat · 09-22-2008, 11:28 PM

for me, I found out on my own (read an article in Reader's Digest, and checked off the symptoms mentally...I had nearly all the symptoms), and it was a matter of finding a dr who actually knew what PCOS was...I found on whose daughter also has PCOS, so she knew a lot about it (more than just from a medical book anyways), but I switched medical insurance and lost that awesome dr...the new dr, who used to be an ob/gyn, didn't know what I was talking about.

SN3W14 · 09-22-2008, 11:40 PM

My Aunt actually found information about it in a magazine article. I went to the doctor knowing that I might have it but when she ran all the test and told me I had it I thought I was going to die. I actually went into a depression because I ALWAYS wanted to have children and the thought of it being hard for that to happen made me really sad. I also wanted to know why this had to happen to me. I was 18 at the time when I found out. Now I think I have came to terms with it more than I did when I was 18 but I do get depressed once in awhile.

Mischa.simpson · 09-25-2008, 08:11 PM

I just found out on Monday (4 days ago).
I had plenty of strange symptoms (now I know they were PCOS related) but one Dr sent me to the next Dr. Finally my last referral was to a Fertility specialist here in Victoria. Monday was my consultation and I didn’t expect much more than a quick Q&A. I had forgotten I had given my Gynaecologist a diary of my health issues and symptoms in May’08 which he then forwarded to my Fertility Dr. When I walked in the Dr. introduced broke the ice if breaking the ice means saying “I’ve looked at your history & blood work and I think you have PCOS, if you don’t mind having an ultrasound right now we can confirm it.” (BTW he was very nice I was just unprepared) As I undressed for the ultrasound I didn’t believe it but when the doctor stopped counting at 25 cysts on the 1^st ovary I started to realize what it meant. It meant that the last year I have been searching for an answer it wasn’t in vain, it meant that I now could start treating my mystery monster, it also meant medication, change of lifestyle, the possibility of my sister & future daughters inheriting it.
As I took the bus back to work the numbness wore off and the urge to laugh or cry hit me.

I have plenty to learn but I have been pointed in the right direction

TheGigglingFrog · 09-25-2008, 08:47 PM

When I was 18 and found out, I was like "oh, okay. So this means I have to start figuring out tampons and pads."

I had a severe case of mono and went to a new Dr. She was asking me the general health questions and it came to my monthly moon and I said I never had it, and she very calmly said "oh, okay. Well, let's figure out what's happening. I know a great ob/gyn and we'll get you set up with an appointment." She had me take something with progesterone in it which made me have my first bleed and a week later I was at the office of the best ever ob/gyn (since moved far far away

) I had an ultrasound and some blood work and she said I have PCOS, gave me spiro and BC and sent me on my way... I slept for the next 8 months because of the mono and lost over 100#'s, but while I had the energy, I searched online for some information (and back then a yahoo search would turn up 3 sites and that was it, the WWW was soooo new). I figured out that I might have a hard time with having kids, which was totally fine at that age, and it still really doesn't bother me. I want to have kids, and I will end up caring for some precious lives, but wether they are my own or from some other woman I could care less... I just want to give the Love and I know the universe has a precise plan in what children go to what mothers and I have so much faith and trust in that belief that I feel nothing but peace

My life isn't about my ovarian & hormonal function, it's about my contribution and experience. PCOS is just sort of a rock in my shoe that reminds me to care well for my body.

DJZ · 09-26-2008, 03:21 AM

When gyno say I have PCOS I was like I thought I had it and now I know I do. I started to cry bc I want to have a baby and it's gonna take more time now.