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Old 04-13-2009, 05:36 PM   #1 (permalink)
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Hi everyone!

My name is Heidi. I'm 22, living in Arizona, and was FINALLY diagnosed with PCOS last Friday.

Here's my little story...

Over the last 10 months or so, I have been to the Emergency room five times for a horrible mysterious lower-back pain. It was mis-diagnosed as being a number of different things (back strain, constipation, UTI, etc). They always gave me painkillers and sent me home. I see my primary physician regularly... she FINALLY sent me in last friday to have an abdominal/vaginal ultrasound. She called me a few hours later with the results.... PCOS and Insulin Resistance (based off of my labwork). I'm waiting to have a few more tests done to find out about endometriosis.

This explains EVERYTHING. I could not believe how specific the side effects are. I've been experiencing:

Obesity (gained 50lbs this past year... trying to get approved for lap-band)
Hypertension
Anxiety (not 100% sure this is linked)
Fatty liver (currently on a liver cleanse diet)
Acne (worse than when I was a teen!)
Skin tags (yuck)
Dark skin on the back of my neck & armpits (since i was a kid)


I have an appointment with a gynecologist tomorrow... and I'm trying to decide between seeing a naturopathic doctor for the hormonal issues or an endocrinologist. My boyfriend's mom recommended the naturopathic doctor... and she sounds great... but I'm also concerned about the insulin resistance and whether or not she can help me with that.

Anyway... it's been a rough few days, I've been an emotional mess. I don't fully understand the disease, so it's still pretty scary... the insulin resistance terrifies me because my dad is a type 2 diabetic (exposed to Agent Orange during Vietnam) and I've seen how bad he suffers. And the thought of not being able to have children is absolutely devastating.

While I wouldn't wish any of this on anyone... finding this message board makes me feel a lot better. It's nice knowing that I'm not alone.

I look forward to getting to know everyone.

Thanks,

Heidi
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Old 04-14-2009, 04:42 PM   #2 (permalink)
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Hi! Welcome

I'm fairly new as well - I've been coming to these boards a lot but didn't post that often. I guess for the longest time, I was in denial about the disease but I've come to my senses Reading and writing posts on here does help a lot - it's so nice to be able to relate to sooo many women on this site. We don't always get the support we need from people we know in real life, so this definitely eases the fear.

As for the fear about possibly not being able to have children...I know what you mean. I was absolutely terrified when my doctor told me that I definitely will NOT be able to have children (needless to say...I switched doctors lol). That's not necessarily true as you'll see a lot of women on here saying how after years of TTC, they finally found a way to make it happen! Many, MANY women on here have beautiful, healthy children. We can't live in that fear, we just have to treat ourselves correctly and when the time comes, if we are meant to have babies...we will have beeeautiful ones It's sad the the journey may be a bit more difficult for us, but we're strong and can't let this bring us down *hugs*
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Old 04-14-2009, 09:56 PM   #3 (permalink)
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Welcome! I just found out I have PCOS yesterday, and it is a bittersweet relief to finally have a diagnosis. Good luck!
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Old 04-14-2009, 11:06 PM   #4 (permalink)
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Welcome! Glad you're here!
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