Hi! I was diagnosed at age 25 with PCOS. My periods were fairly regular, but the pelvic pain was so bad that at age 27 I had a wedge resection. Although this was a last resort, my surgeon found that my ovaries were 5x the size of what they should have been. This not only took away my pain for 10 years, but enhanced my ability to conceive.
Now I'm 38 and having perimenopause symptoms and the pelvic pain is back. My mood swings are worse than they ever were with PMS. Hair growth is mild and hasn't changed, but I've gained 25 lbs in a year, I'm exhausted, hot flashes, the works.
I went to a specialist wanting a hysterectomy but he counseled me to try other things. I was on an injection called Zoladex that gave me my life back but because of its long term use contributing to bone loss, I could only be on this for a few months. It suppressed my cycle and I had no pain, minimum mood swings, I was sleeping well, etc...
Now I'm on my third month of Lybrel, the BC pill that does the same as Zoladex. However the side effects of all things are cramping and bleeding, which both started for me last week. This week I am miserable.
I have my annual and the med check in a couple weeks and I'm at a loss of what to do. I am pretty much having every symptom of menopause so a hysterectomy inducing that, I don't see where that would change much. My surgeon said that how my body handled zoladex would be a good indicator or how I would tolerate surgery. The zoladex was wonderful.
My regular doctor was very firm that I should not have a hysterectomy, but he also admitted he is not up to speed on PCOS, especially an odd case like mine with such severe pelvic pain, weight gain only recently, etc...
So for those of you younger than me, when I got my diagnosis I was given very low hope of conceiving and I have a 10 year old and a 5 year old and I did miscarry once. I just refused to make his words a life sentence and I just believed. My hope is you are informed, but don't make a diagnosis a life sentence.
Anyone in my current circumstances, I'd love any info or input. I'm not meeting anyone with PCOS who is my age range with these symptoms and was told if I had endo., I'd be a clear cut hysterectomy.
I too am having a lot of pelvic pain and have been for almost a year. I went to the dr about a month ago and he said ua's looked good but gave me an antibiotic so if I was getting a bladder infection and I just didnt show up yet?!?! So when the week of anti's was up I went back and then I was told I have just pulled my back and the pain is just raditing to my lower ab. So he gave me pain pills. So bascially he told me to go take a pill so I would be to drunk to know it hurt?!? So today after a month of heating pads and ice and pain pills and anti inflammotories I have an app. I was really glad to see that the pain happens to more than one person so I can see ok dr, you have tried your toys out and they arent wotking now look at this do some blood work and give me some help plez! Thanks, and it is awsome for you to have 2 kids! Congrats. I have a five yrd old and never had ANY of these problem till 2 yrs ago I had an IUD. And it has been down hill since.
Are you able to find a different doctor? He sounds like he is not taking you seriously and constant pelvic pain is no way to live. Mine is getting steadily worse, it's sad but I really look forward to my appointment Friday.
I'm New-But not to PCOS 
ive got constant pelvic pain, too. Its horrible. Just got dx with an ovarian cyst last week, have you had any scans??
