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06-19-2005, 07:59 AM
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#1 (permalink)
| | ~* Xander's Mommy *~
Join Date: Jun 2005 Location: Southern Illinois
Posts: 4,388
My Mood:  Points: 113,940.11 Bank: 618,403.28 Total Points: 732,343.39 |  im a newbie and i need info
hey my name is nikki, i m 21 yrs old, 345lbs and have just been diagnosed with PCOS! i have always been overweight but now it is really bad!!!i have hair on my stomach, skin tags, dandruff i cant get rid of, dark circles under my eyes, discoloration of my neck and armpitsmy hair comes out in clumps sometimes, heartburn, jointand back pain and i am so depressed that i cant stand it anymore!!!!!!!!!!i had no idea that all this stuff was related! i have an appointment to see a reproductive endocrinologist in a week and i am scared!!
i cant seem to find much info about PCOS n e where, n e 1 have some that u wouldnt mind sharing? i am worried that i wont be able to have kids and that my husband can only put up with so much crying and mood swings. n e 1 have n e advice, questions or info?
thanx,
Nikki | 
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06-19-2005, 02:30 PM
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#2 (permalink)
| | nerdy cyster
Join Date: Jun 2005 Location: Dallas, TX
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I was just diagnosed recently, too. I am sorry you are so down--but with a diagnosis, there is treatment and hope! I went to my ob/gyn after 6 months of trying to conceive without any regular periods, and she sent me to a Reproductive Endocrinologist. If you have insurance coverage, you may want to find a specialist who can help control your PCOS symptoms, and give you advice on TTC when the time comes. The drug options seem to be effective, but your doctor should tailor them to your case, of course.
The information on this web site has been invaluable to me--read up on the PCOS symptoms and fixes--there is probably advice on every one you listed, along with helpful hints.
There are some recommended books, also: The Hidden Epidemic is one I plan on getting ASAP, but I'm sure there are others at the bookstore or library.
Take care of yourself!
__________________
metformin for PCOS
Levothyroxin for hypothyroidism
Bravelle for anovulation
several suppliments for thin lining
prenatals for hope
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06-19-2005, 05:24 PM
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#3 (permalink)
| | Blessed Mommy of One
Join Date: Jun 2002 Location: Richland, Washington
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Hi Nikki...glad you are here. IF you need to chat i am at yahoo...cathy_wood30 or aol leecathy4. See you around.
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Cathy 36
Lee 40
Married Feb 12, 1994
HSG Nov 2004
Brandon Aug 8, 2005 | |
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06-19-2005, 09:06 PM
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#4 (permalink)
| | Registered User
Join Date: Jun 2004 Location: Alberta, Canada
Posts: 5,488
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Hi Nikki, welcome to SoulCysters! I was diagnosed 3 years ago, and am still waiting to see an RE. I'm glad that you are able to see one so quickly! Good luck next week and if you have any questions at all, anyone here will try to answer them the best they can.
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Amber(25) DH (31)
First injectables cycle + IUI Jan '07 ~ bust | |
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06-19-2005, 09:08 PM
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#5 (permalink)
| | The Dancin' Elephant
Join Date: Jun 2002 Location: Ottawa, but Eganville, Ontario is still my home :)
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Welcome to SoulCysters Nikki!
I have many of the same symptoms as you and we are very close in age. I am here if you ever wnat to talk. PM me!
__________________
Ashley Victoria
22 years old
Dx - April 1999
Meds - Diane-35
Hopefully to restart Metformin again soon
. . .보고싶다 Sun
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06-20-2005, 07:57 AM
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#6 (permalink)
| | Registered User
Join Date: Mar 2005 Location: U.K.
Posts: 411
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Welcome to soulcysters, Nikki. There is an enormous amount of info here about every aspect of Pcos. Browse the stickies at the top of each board and ask as many questions as you like--someone on here is bound to be able to help. Now you know what's wrong, you can start to get it fixed. | |
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06-20-2005, 08:28 AM
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#7 (permalink)
| | Almost TTC #2
Join Date: Jun 2004 Location: Sydney, Australia
Posts: 811
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Welcome to SC, Nikki.
You've come to the right place for information, just explore the boards and ask questions in the right places!
I was diagnosed just over a year ago and it made me really down too. But things do get better as you start managing the condition and get used to the idea of having it. So don't stress too much.
My advice: get on a low GI diet ASAP... that helped me lose weight and get rid of lots of symptoms. Look here: http://www.amazon.com/exec/obidos/tg/detail/-/156924457X/qid=1119263255/sr=8-1/ref=pd_csp_1/102-1148235-1846510?v=glance&s=books&n=507846
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Me (26), DH (28)
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, married 12/02, Dx 04/04
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m/c 15 July
TTC #2 again ... soon | |
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06-22-2005, 02:24 AM
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#8 (permalink)
| | Go Bucks!
Join Date: Nov 2002 Location: Columbus, OH
Posts: 4,536
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 to SoulCysters!  Really you've found the best place for answers to PCOS. Definitely check out the boards here as there's loads of info, but don't forget SC's homepage! There's lots of info there on symptoms, treatment, PCOS friendly doctors, etc. http://soulcysters.com/
I'm happy to hear you're going to an RE! That's excellent. Best wishes with the doctor's appointment and please let us know how it goes! 
PS Here's an excellent page with lots of info.. http://soulcysters.com/info.html
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Amber.29.Ohio
Diagnosed Syndrome X (Hypothyroidism, PCOS, High Cholestorol) 2001.
Meds: Synthroid, Lipitor, & Yasmin BCPs
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06-29-2005, 01:10 AM
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#9 (permalink)
| | ~* Xander's Mommy *~
Join Date: Jun 2005 Location: Southern Illinois
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OK SO I WENT TO THE RE TODAY AND HE WAS GREAT!  IT WAS A 2 HR DRIVE BUT IT WAS WORTH IT!! HE IS SO NICE!!! N E WAYZ, HE CONFIRMED MY FAMILY DR.S DX OF PCOS AND IR SO NO NEWS THERE...HE GAVE ME A RX FOR METFORMIN 750MG /A DAY FOR THE FIRST WEEK AND 1500MG/A DAY AFTER THAT...HE SAID THAT I WOULD LOOSE WGT FROM IT AND SAID I SHOULD BE ON A LOW CARB DIET...HE SAWS THERES A BOOK TO GET TITLED "PCOS DIET" I WILL HAVE TO GET IT ASAP!!! HE ALSO SAID THAT IF GASTRIC BYPASS IS SOMETHING THAT I AM INTERESTED IN THEN HE WOULD HELP ME SET EVERYTHING UP AND SUPPORT ME IN GETTING IT DONE!!! SO COOL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I CANT WAIT, I HOPE THAT THIS MED WILL WORK AND EVEN ME OUT A LITTLE(PCOS SYMPTOMS)...HA HA...THE ONLY THING HE ASKED WAS IF I HAD IRREGULAR PERIODS...WELL DUH...AND THEN HE SAID "I HAVE NO DOUBT YOU ARE PCOS! I CAN TELL BY JUST LOOKING AT YOU AND LISTENING TO YOU TALK!!!" I HAVE ANOTHER APPOINTMENT IN 2 MOS. THIS LOW CARB DIET IS GONNA KILL ME!  COME ON CARB-ADDICTED CYSTERS, YOU KNOW WHAT I MEAN! I FEEL SO MUCH BETTER JUST KNOWING THAT I M NOT CRAZY AND THAT ALL OF THIS STUFF IS BECAUSE OF THE BEAST!---> PCOS
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06-29-2005, 01:19 AM
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#10 (permalink)
| | Go Bucks!
Join Date: Nov 2002 Location: Columbus, OH
Posts: 4,536
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AWESOME NEWS NIKKI!!! I'm so glad you found a great doc! Sounds like he's setting up a treatment plan.
Low carbing is so HARD! I've all but given up on it so I'm not a good example. My doc told me to cut out all sugar since I'm a sugar addict, and while its nearly impossible to cut out ALL sugar, I have gotten used to not drinking juices, and only drinking Splenda or diet drinks.
I'm so happy for you!!! Let us know how its going! See you around the boards! 
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Amber.29.Ohio
Diagnosed Syndrome X (Hypothyroidism, PCOS, High Cholestorol) 2001.
Meds: Synthroid, Lipitor, & Yasmin BCPs
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06-29-2005, 02:21 PM
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#11 (permalink)
| | Mommy & WLS Diva
Join Date: Mar 2002 Location: Stockton, CA, USA
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Congratulations Nikki! How awesome that he's willing to help you. I've had gastric bypass surgery so if you like...I can answer any questions you have. We have a thread on here on the Diet & Exercise boards called "WLS Divas". Feel free to drop in. Also, if you're considering gastric bypass check out www.obesityhelp.com. Good luck with the Metformin & the low GI diet!
Kristy
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Kristy (32) & Adam (35) & DDs Alice Kay & Amanda Kay
Founding WLS DIVA - RNY 8/3/04
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06-29-2005, 02:30 PM
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#12 (permalink)
| | 2SweetBabies
Join Date: Jun 2005 Location: Concord, NC
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Nikki, I am right there with you with carb addiction. I love carbs more than anything else including sweets. Offer me a bagel or a doughnut and I would pick the bagel anyday. I don't even need to add to my carbs. I am perfectly happy eating a plain bagel or slice of Italian bread. Unfortunately that is my problem with losing weight. I did do Atkins once and lost 75 pounds but I couldn't stick with it and gained most back. | |
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06-29-2005, 03:28 PM
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#13 (permalink)
| | Beating the darkness
Join Date: Oct 2004 Location: Long Island, New York
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Great Nikki! I can't give up my carbs either but I try to eat the good carbs and follow the IR Diet. If ya need anything just give me a shout!
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07-17-2005, 07:03 AM
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#14 (permalink)
| | ~* Xander's Mommy *~
Join Date: Jun 2005 Location: Southern Illinois
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ok so i have been taking the met for almost 3 weeks now and i hate it!!!! i am so sick, i feel like i have a really bad flu! i sleep all the time, i cant stay out of the bathroom and i feel like im gonna puke all day long!!!!!!!  i know that this is normal! but i hate it! the things we do for a baby!!! i still havent been visited by my dear AF yet!! i think that she dis-owned me!! i havent wieghed my self yet but i bet ive lost a few lbs. cause i eat only a little and/or throw-up most of what i eat! i still havent started my south beach diet yet!! i cant make myself do n e thing(depressed) let alone give up my comfort food! i know thats sad but i cant help it! DH says that next weekend we will go out to eat at all my favorite places (if i am feeling better) so that i can start my diet and be on it for 3 weeks before we go back to see my endo!! man...its like a last wish or something...thats real sad!
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07-17-2005, 09:01 AM
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#15 (permalink)
| | Let's Go Red Wings!
Join Date: Jul 2005 Location: West Michigan
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Sorry you're not feeling well! *hug*
__________________ Jules (34) Harrison (35)
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Sparky, our emergent cerclage baby, born at 23w1d on 3/4/07 through his cerclage. Died from NEC on 3/12/07.
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Tater Tot 9/10/05 9w4d
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Pucky 6/11/07 blighted ovum Dx PCOS 10/2003.
TAC placed 6/28/07 at University of Chicago.
Moving on to IVF after a year of infertility and 3 Femara cycles. Lupron started on 7/27.
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