Hey everyone I recently became a member of PCOS. Since being diagnosed on Dec 23rd 2008 things just have gotten worse. I thought my boyfriend would be trying to comfort me since I have been a wreck since this came into my life, but he hasn't. I'm upset and crying all the time. He is the man of my dreams but I feel things have changed. I know everytime he is sick I'm going above and beyond to make sure he is comfortable and well taken care of but when I told him all I got was a blank stare. Finally today we alked about it for a minute and he said he hates talking about it what I have. I am not trying to be selfish I just want him to comfort me but I don't know if I should just let him deal with it his own way. I am just so frustrated with all this. I just don't understand how in one month things could be so bad. I'm saying my car got totaled at the beginning of the month and now this. I feel like given up, the only person that is keeping me going is my son, but its so hard. I honestly feel alone, I feel that I have no one to really express how I feel and actually get some sort of comfort. I am in pain all the time on my right side because my right ovary is enlarged and a cyst on it just burst. In the past year I have gained 30lbs out of nowhere, I went from 180 to 210. I just want to beat PCOS.
As far as feeling hopeless and alone I totally understand; thats how PCOS makes you feel sometimes because those around you don't really know how to be supportive because they really don't understand what's wrong and all the things that come with having PCOS.
Don't fret, best thing to do is get informed. Read, Read, Read the posts and find out what others are doing that you could try. Also maybe you could give your boyfriend the link to this forum; there is a section for husbands and boyfriends of women with PCOS where they can read what other men are going through and it wouldn't hurt him to read up on PCOS. Maybe this way its something he can do on his own to better understand what he can do to make things easier on you and be more supportive.
Stay positive and know you are not alone :-)
Good luck!
ps. I am sorry about your car hope you get it all worked out, thankfully your ok.
I totally understand how you feel I have been dealing with pcos since about 16 but just dx in nov 2008. I have bad days where the only reason I get up and give it a try is because of my daughter. The more info you get the more you can try and handle and make sense of what it all means.
sorry about your car, my transmission went in mine last week
I'm new here today but I've had PCOS for 8 years (diagnosed). My husband is totally confused by anything emotional and "womens issues" particularly make him uncomfortable.
I wouldn't think your boyfriend is rejecting you. He probably finds PCOS a rather frightening subject with which he no way of identifying. Unfortunately, his lack of response is going to make you feel rejected or unloved but its important to break this down to the nitty-gritty because it isn't about love, it's about what he can cope with or understand.
These things are sent to test us, really. They challenge how we feel and how we relate and what we come to understand about the differences between us - how we overcome them, with grace or with fear?
I have a question..... i was just diagnosed and all my doc told me to was lose 10 pounds in three months. My blood tests were normal and she didnt put me on any meds. She just said she saw many cyst on my ovaries..... I'm so frustrated and all i kept asking if she was sure i could get pregnant. She just brushed me off..... My periods are usually between 26-29 days....HELP!!!!!
Oh please know you are not alone! I feel the same way sometimes and don't have a child to keep me going.
My first question would be: how old is your bf? My guess would be young, but I could be completely wrong.
Secondly, many men feel uncomfortable discussing these things because they don't understand the issue and they feel especially uncomfortable and even frustrated because they can't do anything to help.
My suggestion is to talk to him and tell him how you feel. You said his lack of interest makes you feel like he doesn't care. And right now you REALLY need him to care. Ask him why he's taken so little interest in your medical health. His answer may surprise you.
My guy was somewhat similar - he really didn't want to talk about it in the beginning. But time and TONS of communication have made it worlds better.
Good luck to you and keep your chin up! Things will get better!
Quote:
Originally Posted by cherylynn87
Hey everyone I recently became a member of PCOS. Since being diagnosed on Dec 23rd 2008 things just have gotten worse. I thought my boyfriend would be trying to comfort me since I have been a wreck since this came into my life, but he hasn't. I'm upset and crying all the time. He is the man of my dreams but I feel things have changed. I know everytime he is sick I'm going above and beyond to make sure he is comfortable and well taken care of but when I told him all I got was a blank stare. Finally today we alked about it for a minute and he said he hates talking about it what I have. I am not trying to be selfish I just want him to comfort me but I don't know if I should just let him deal with it his own way. I am just so frustrated with all this. I just don't understand how in one month things could be so bad. I'm saying my car got totaled at the beginning of the month and now this. I feel like given up, the only person that is keeping me going is my son, but its so hard. I honestly feel alone, I feel that I have no one to really express how I feel and actually get some sort of comfort. I am in pain all the time on my right side because my right ovary is enlarged and a cyst on it just burst. In the past year I have gained 30lbs out of nowhere, I went from 180 to 210. I just want to beat PCOS.
3 rounds Clomid - Sept-Nov '08 - no response
1st RE appt - 12/29 - PCOS Dx
Started 500 mg Met XR Jan '09 and worked my way up to 2000 mg after 4 months of trying - bad GI issues
HSG Feb '09 - good results
Horomone panel Aug '09 - high DHEAS level 390 - prescribed Dex
Starting Dex next cycle
Letrazole w/ Ovidrel cycle after that???
Currently waiting on flow - silly body!
I am sorry to hear you've had such a rough time the last few weeks, but trust me... things will gt better... I know you are devasted with your dx right now, but you CAN beat PCOS!!! Yes, it takes a fight, but you can beat it!
Now, about your boyfriend, girl I don't even know...LOL! I personally think we need a whole different forum to talk about dealing with the men in our lives when it comes to PCOS! I have these same issues with my DH. A lot of times, he doesn't understand why I am so emotional... He actually gets frustrated that I'm frustrated...LOL! All of that said, I don't think you have anything to worry about - I am sure his love hasn't changed... Right now, he just doesn't understand what you are going through.
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Steph luvs her Hubby!
Married 09/01/06
TTC since 01/2007
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Cinnamon, Flax Seed Oil, Prenatals, Baby Asprin
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I've just been to a PCOS clinic which specialises in alternative medicine and am giving up this medication to go onto something completely natural - Resist-X.
I've also discovered that taking the Pill can mask the symptoms of PCOS and make it impossible to accurately measure your hormones in order to treat it properly. I'm consequently also getting off the Pill.
I would juast like to thank everyone for your support. I almost feel there is hope to get past this and I understad it will take time for my man and I to adjust. I just don't understand one thing I have been prego twice and have only and had one child. My first child I had a miscarriage and I was wondering if that was because I had pcos, but my second pregnancy everything was fine and I had a lil boy. Is ther a possibility that I could have gotten pcos a few years after my son was born or have I always had it and my son was just a miracle?
If it were me, I would tell him how his reaction made me feel, and then I would give him time to start to come to terms with what it is and what it means. Consider how you felt the first day you found out. He's going through the same thing, without having the physical symptoms to connect to the problem, so it's probably pretty far outside of his realm of understanding/comfort.
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Kristan. Sick Since: September 2002. Currently: Undiagnosed.
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Cherylynn, you can be PCOS and successfully conceive, it is just very hard! And PCOS can develop at different stages in peoples lives. The only way to be sure is to be tested, but there are various tests and the definitive one would have to be a scan of your ovaries.
I was tested by hormone/blood but I was also not on any contraceptive Pill, which is important because you cannot get a proper hormone profile done on the Pill. The Pill, by its nature, regulates your natural hormonal behaviour.
That is why PCOS women ought to be a little sceptical about doctors who prescribe the Pill for PCOS - that is not treating the issue, it is masking the symptoms.
It is possible to treat the hormonal imbalance but only after you have been tested "cleanly" so you know what defficiencies/excesses to treat.
I can relate. I took me two years to get DX'd, and I had a streak of bad doctors who couldn't or wouldn't help me.
My advice: find a new doctor! If you've been dx'd with PCOS, you should probably find a good endocrinologist and a good gynecologist. I found a great OB/GYN through some friends at work. You need someone who will listen to you, address your concerns, and be honest with you about what's going on with your body, and what to expect. Don't be afraid to ditch your doctor for a new one - you deserve someone who will respect you.
There are plenty of things that can help with your situation. I was having insanely long periods (I bled for 62 days, no breaks, once), and my doc has given me meds to help regulate my periods. I almost lost hope with all of the docs that basically told me that nothing was wrong and there was nothing to be done about how sick I felt, but my DH, mom, and BFFs helped me keep working to find and get appointments with good docs. It took a long time, but it's totally worth it.
Good luck!
Quote:
Originally Posted by sumosumo
I have a question..... i was just diagnosed and all my doc told me to was lose 10 pounds in three months. My blood tests were normal and she didnt put me on any meds. She just said she saw many cyst on my ovaries..... I'm so frustrated and all i kept asking if she was sure i could get pregnant. She just brushed me off..... My periods are usually between 26-29 days....HELP!!!!!
Just Venting 
there is a link to the newbie roadmap in my siggie for you
