Just wanted to introduce myself..Just diagnosed today.
Hello all..
My name is Danielle, Im 18 years old and was just diagnosed with PCOS today. My 'journey', shall I call it, started when I was 16 and my period had ceased for around 4 months. Thinking I was pregnant, because I was sexually active, I went to the doctor. She ran some test on me, including a pregnancy test which came back negative, along with some other blood work (thyroid, and things like that). She came back to me with the news that 1. it appeared that I was borderline diabetic and 2. I was showing symptoms of having PCOS. Being 16 I had NO IDEA what this was, at first I thought "Oh that just means that I dont get my period on time" I asked NO questions, and honestly still do not fully understand.
For the next 2 years I went back and forth to doctors, some telling me that no I wasnt showing any signs of PCOS, other's saying that YES I definitly was. All the while being as confused and frankly, frightened, because I had no idea as to what was going on with my body and it didnt look as if I was getting any answer's anytime soon.
Today, I went to the doctor for a follow-up appointment to get the results on some new blood work they had done. The doctor comes in the room and tells me that I dont have Cushing's Disease (another thing they thought I had) but I definitly had PCOS. Also he adds that I have a type of diabetes, I am insulin resistant, and prescribes me a diabetic pill that he hopes will help the diabetes and also treat PCOS. Honestly, some hours later, I still have no idea what is going on and am extremely confused. Maybe it is a lot to take in at one time.
He also tells me that if I want to attempt to get pregnant in the future it would probably be close to impossible to do so on my own ,and that I would need help by way of infertility drugs. As if that wasnt enough, the diabetic pill has been known to affect people's liver and in RARE cases cause liver failure (my aunt is testament to that) so I have to go back in 2 to 3 months for a liver profile to make sure that Im tolerating the medicine.
It just seems like a lot to take in. Being 18 I just felt cheated. Like someone had taken something very important away from me, I felt empty. I thought, most 18 year olds dont hear that they have the potential to never have kids, and they have diabetes in one day. I've always wanted to have kids, and know hearing that that may be impossible. It's shattering. I know anything is possible and I shouldnt be down on myself, but its pretty hard not to be.
Anyway, I didnt mean for this to be so long. Just wanted to introduce myself and tell my story, I guess. Its good to know that Im not alone and maybe someone out there has gotten this some kind of potentially bad news, and turned it in their favor.
Welcome to sc hun I'm glad you found us but so sory that you have to be here too.
yeah you certainly got a lot dropped on you today & i totally understand I'm only 22 now but was 19 when they FINALLY diagnosed me.
I hope that you find this place as helpfull as i have & as informative theres a lot of well informed women on here! Don't stress about not really understanding I still really don't understand it all.
Sure you MIGHT not have children without help BUT there are lots of women here that have!! keep your chin up hun this is not a road block just a different direction.
Good luck with the rest of your journey.
__________________ dx.pcos 2001
dx.Antiphospholipid syndrome 2004
4 Angel Babies
TWO MIRACLES! Zane Sebastian! May 3rd 2006!!!! Sienna Rayne January 3rd 2008!!!!
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It took me a long time to be diagnosed correctly too. I've had PCOS symptoms since my teens. It is a lot to take in all at once, so you have to break it down into parts that you "can chew on". Learn about one thing at a time; educate yourself; empower yourself. I'm sorry the docter told you that you'd almost certainly have problems having baby's. Yes, PCOS does inhibit reproductive possibilities, but not in every woman. I'm one who has 4 children (twins in the middle) with no fertility medications or other issues. PCOS isn't a death sentence and neither is diabetes. It does mean that you have to start taking optimal care of yourself and be dilligent about the foods you eat and keep up on the medications that you're supposed to take.
Best wishes to you cyster, you're in good company here!!
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Welcome, Danielle. I feel bad this bomb was dropped on you like this. I felt overwhelmed too when the doctors finally confirmed my diagnosis. It's a good thing they ruled out Cushing's. To have tested you for it means they know what they're doing. I am glad for you they diagnosed you this early. That means you still have all the strings in your hands. Get that Metformin or Glucophage and get it to work on your messed-up hormones.
A baby may yet be in your future, who knows. Don't despair yet. After three years of trying for another baby I had given up too. I now have a beautiful and healthy Metformin miracle. Not everyone is that lucky, but who knows, maybe you will be.
Have you looked at some of the articles Kat has posted? Once you start reading about PCOS you'll understand better what's going on. It helped me feel in control again and I wasn't quite so scared anymore.
Welcome to the cysterhood.
__________________ Met rules! To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. It cleared my brain fog, brought back af, helped me lose weight, made me o' again, and helped me get pregnant. My first Metformin miracle is now 3 years old, my second (surprise one) arrived December11! To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
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Glad you found this place, there is lots of good info here. Your story sounds exactly like me, but you are lucky because your doctors actually diagnosed you. So, that's good and you know there are things you can do to help like Special insulin resistance diets and Met. I am still fighting to get Metformin or something. My gyno that diagnosed me only told me to 'lose weight'-duh without ANY help. I was 23 (had it for lots longer though). So this time I am going to an endocrinologist that I am putting all my faith in to get the medicine I know I need.
Good luck to you-and you are right this is a never ending journey and it doesnt seem fair. But, do the best with what you have! That's all you can do.
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Danielle,
Welcome to soulcysters. I too was just diagnosed with PCOS last Friday and it is a lot to take in but I must say that I have found the women on this site to be a tremendous source of comfort, as well as an overflowing fountain of knowledge.
Warmest Wishes,
emeritus
WELCOME ! I agree it is not fair at all! I was diagnosed in at age 16 by an endo. who seemed to know her stuff & care, but since she moved out of state I have had no luck or help from any dr's.I just found this website also & it's so helpful and full of great info. GOOD LUCK
I'm so glad you found this site. I sure wish I had found it sooner. I joined in was diagnosed with PCOS when I was barely 15 years old in 1992. I think I could have saved myself a lot of heartache if I had been here longer. When I was diagnosed I had no idea what it was and nobody said to much about it. I didn't even know that it ws related to my being boarderline diabetic. I found out while I was in the hospital with pancreantitis. All I knew is that it supposedly explained my long and irregular periods. I had no idea it had anything to do with anything else. It wasn't until a friend of mine began doing fertility treatments and was diagnosed with PCOS in 2000 that I began to realize the extent of what PCOS was. When she told me about it I was like "Hey, I have that!" I began seeing her RE shortly after and began treatment. They started me on glucophage first. Anyway, the rest is a really long story. I just wanted to say "I've been where you are and if you need anything just send me an email."
Awww I just wanna cry.....Danielle don't worry I was diagnosed on April 13th 2005, a few days ago to be exact...anyway I found out apparently I've had this since I was 13...it was actually in my files, my NEW obgyn found my past docs notes, she had n ever told me anything! not even a hint! makes me really mad, coulda saved me A TON of problems............but its life, and it is what it is...
I'm newbie here too. You are not alone as I found out yesterday when I joined here. I also had trouble with my periods I went thru the not consistent for about the time about 2 years after I started periods to about my last year in highschool where from then on I went with out a period for 5 years before I found the doctor who said hey somethings wrong here. my gen. doctor always said aslong as I'm not sexual active and with my weight problem it would be okay. Lets just say I found a new doctor. Hang in there. If you belive in God then Pray, he will be with you as I found out. I understand about being cheated. I can't have children not only with the PCOS problem but because I would be a high risk because of my high blood pressure. I'm 33 and single but my story , Its in more detail elsewhere, is similar to yours in some ways. But I felt and still feel as I've been cheated. but I know there is a greater plan somewhere for me as I know there has to be a reason for all this for all of us.
Hey guys! Thanks for all the comments and all the support. Sorry it took me so long to reply, computer has been down and I've been pretty busy around here with my senior year coming to an end It is really good to know that you all have been where I am right now, sometimes its so easy to think that im the only one and im totally alone in this but its really nice to know that I'm not. Right now im attempting to do some research on PCOS and writing down questions to ask my doctor the next time I see him. I just want to be as educated as I can.
I'm very happy for you that you have caught this problem so early. Now you can avoid any future problems! It took me about 10 yrs to figure out what was wrong with me (just diagnosed) and now my cholesterol is really high and I've had hair loss for a long time. So, yeah, I understand that your upset and it's a lot to take in but be glad that you've caught it early and you can take care of your health now. Hope your feeling better.
__________________ Dx PCOS w/ IR 4/05 High Cholesterol 9/00 Glumetza (Metformin) 2000mg
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Just wanted to introduce myself..Just diagnosed today. 
I feel bad this bomb was dropped on you like this. I felt overwhelmed too when the doctors finally confirmed my diagnosis. It's a good thing they ruled out Cushing's. To have tested you for it means they know what they're doing. I am glad for you they diagnosed you this early. That means you still have all the strings in your hands. Get that Metformin or Glucophage and get it to work on your messed-up hormones.
