Me--PCOS/IR, positive ANA
Brother--elevated estrogen, low testosterone (on Clomid)
Mom--pituitary tumor, rheumatory arthritis, positive ANA
Mom's older sister--thyroid problems and cancer (both she and my mom have had to have D&C's due to abnormal bleeding
Maternal grandmother--Multiple Sclerosis
Paternal grandmother--psoriasis and probable PCOS/IR maybe?
Diabetes on both sides of family but only in MEN. Many men on both sides have abdominal fat.
So I'm screwed all around.
__________________ Jen~25 To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. (Chris~29 To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. ) We're engaged!!!
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I am so sorry it's rough. I have found a remission state from the fybromyalgia (which took years to diagnose) with mannatech (www.mannatech.com) vitamins & Bowen Therapy a deep tissue massage and I read a book by Devin Starnyl MD that helped me a lot if you do a google she has a website too!
Let me know if you need anything! hope tis helps!
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Besides PCOS I have come down with a long list of allergies to chemicals/foods/pollens etc...I haven't been diagnosed with any auto immune disease,but I have IBS.....and leaky gut which is all linked to the immune system.....I believe your on to something as well...keep up the good research...may we all be healed!
I used to have asthma & really bad allergies. They are gone no more inhalers etc.. I take mannatech vitamins & eat local Honey . My kids too! Oldest son had sports induced asthma all of them had hay fever pretty bad! Now my daughter is off predizone & claritin(they all where on)oh & she also took Aderax. ALL gone!
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Well I just got back my test results today... My ANA jumped from 1:80 (which was high to begin with) to 1:320. So off I go to see a Rheumatologist. I'll update when they figure out what the heck is wrong with me this time. (Having nonstop headaches and joint problems.)
There definitely has to be a correlation between the two. My Rheumatologist is thinking it's Lupus too, but I won't know more until my next appointment on Oct 4th... getting a diagnosis is such a pain in the neck!! I have 6-7 of the 11 criteria, and you only need 4 for a diagnosis. But it depends on the weight of those criteria, and if they can be explained by anything else. It's hard to know where PCOS ends and Lupus begins. I'll update more after my next appointment. Hope everyone else is hanging in there as well!
Last edited by NurseBunny; 09-25-2005 at 12:19 AM.
I have PCOS and ENDO My mom and 2 of her sisters have Fibro and another cyster who has Lupis. Very strange. I have had bouts of severe joint pain on and off since I was about 5 years old but the doctors have never come up with any answers. I theres just too many of us with this for it to be a coinsidence.
__________________ Diagnosed-PCOS & endometriosis.
Symptoms- IR, Irregular AF, & Yo-yo weight beggining at 11 y/o.
TTC since 10/08
BFP 100mgs clomid-M/C at 6 weeks To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Never be bullied into silence. Never allow yourself to be made a victim. Accept no one's definition of your life; define yourself. Harvey Fierstein
well - where has this thread been.. lOl.
Here i go :
Its been in the works for years now but my rhumitoligst, internist, endo, RE, and gyn are all trying to figure out what the heck my issue is. They lean to SLE ( lupus ) . I have been ttc 5 + years now and when i got my BFP, i was on low dose prednisone for a flair up!!! This led us to beleive that all this time my immunes were killing things off. Well i lost the babies as soon as i stopped prednisone, and then tested for all the issues..
I come up with this
Rh + , ANA ++, ATA + , APA + .
Im awaiting new results currently and am seeing my new dr soon. I will do another IVF, but this time it will be followed with heperin, asprin and high dose prednisone through pg.
I also will be having a IVIg.. ( intravenious immunglobulin ( sp ) ) .
we shall see how things turn out!
I have had all these problems a long time.. and just want to get somewhere.
I have found several articles that suggest pco is deffinatly immune related!!
keep searching girls!!
April
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April
Momma to Madaya Rae & Wife to Michael
Born 10/4/06 @ 33w Married 4/15/00
Blessed naturally after 7 years of IF, 5 failed IVF's, 23 IUI's and countless other cycles
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__________________ New Year's fitness Celebration: In 2006 I cycled approximately 1800miles, hiked up 4 mountains, took a walking tour of San Francisco, hiked in 4 california national parks, swam in a pool with palm trees on my birthday, hiked and biked along the Oregon Coast, climbed to numerous breathtaking waterfalls, explored a gold mine, a silver mine and a cinnabar mine, and walked a fantastic loop along frozen streams and icecicle waterfalls at Opal Creek in winter.
I don't (at least, not that I know of) but I do have a friend who has PCOS, lupus, endometriosis, and something else, but I forgot what. It makes sense if there's a connection. What's thought to be a small problem oftentimes is much bigger, affecting far more than one would anticipate.
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To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. ( 27 ) wife of Brian ( 28 ) since 5/19/2001
PCOS dx by PCP May 2004
PCOS dx confirmed by endo August 2004
Mommy to Arabella {m/c'd 7/19/2004 @ 9w4d ~ b/c of PCOS?)
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Born 6/16/2005 5:00AM ~ 9 lbs 2 oz / 20.5 inches
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I too have fibromyalgia & PCOS (Dx'd fibro in 1997 & PCOS in 1999). I always wondered if there was a connection as it seems a lot of other cysters have fibromyalgia as well.
There are also a BUNCH of cysters that have other autoimmune disorders as well so there has to be a connection somewhere!
I've been tested for most and everything has come back normal so far but we didn't get really deep in to immune testing.
Traci
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Married 6 years (1/16/03) to my wonderful husband! To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
1 DD (B: 9/06; A: 8/07) To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
2 fur kitties- 9 angels (Single Loss 05/03; Quad Loss 09/03-D&C; Twin Loss 02/04; Twin Loss 2004. All RPL testing "normal" No cause found ('05 & '09)
New Gonal-F cycle started 9/5/09- Cancelled 9/14/09 due to too many follies all growing the same (all under 10mm still) Started Soy 120mg CD12-16!
RE said IVF next To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. ....starting IVF Feb/March 2010
