I also believe there must be a connection somehow. I have (hold on to your hats):
Endometriosis
Fibromyalgia
Asthma/Allergies
Hidradenitis Suppurativa
Eczema
Seborrheic Dermatitis
Some as yet unknown nerve problems... signs of MS, but no plaques on the MRI; frequent problems with something charmingly called "Saturday Night Palsy" if I sleep on one arm for as little as 40 minutes (I lose total function of the hand for about a month!); carpal tunnel in both wrists; ulnar numbness in both hands. Just weirdness! I can go numb just about anywhere with the tiniest amount of pressure.
All autoimmune except the one undiagnosable issue (and I have my suspicions), or suspected autoimmune in the case of the H.S., and ALL but the endo worsen when the PCOS symptoms do. Hmmmmm...
We won't even talk about my family tree. Just about everyone has something autoimmune.
Auntie to 3 furbabies: Cleo (Rescued dog), Asher (Papillon) & Pippin (Rescued kitten, now a big lazy cat!)
I am a pescatarian and on a low-calorie, healthy diet trying to incorporate as many low-GI and low-carb ideas as possible. I am also excercising - mainly by doing workout DVDs and walking our 3 dogs.
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My question is how many of you have ever had lyme disease? I had a long undiagnosed case of lyme disease that took years of treatment. Lyme disease mimics so many other diseases, including autoimmunological disorders. It also affects hormones, metabolism, and many other body functions. I strongly believe that Lyme disease is grossly underdiagnosed. It causes systemic inflammation, disrupts the reproductive symptoms, causes neurological symptoms similar to MS and lupus. I stronly urge anyone who has these mysterious symptoms with no explanation to get tested. The trick is finding a doctor who is knowledgable about Lyme Disease. I truly believe that having it for so long without treatment is the root of many of my health problems.
no aoutoimmune deseases for me but:
granma:asthma and atopic rhinitis
auntie vivi: hashimoto + PCOS
auntie tere: sjogren ad her doughter Francesca:celiac morb
auntie ticchi: hashimoto+ IR
-->definively a connection for me!!!
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Bellydancing, swimming,acting cyster!
Dx 2000,
Meds: Nuvaring (i love it!) To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
--> Forever "Converted" to menstrual cup! <--
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Has anyone else out there been diagnosed this way? and if so, what are you doing to treat it? The immune suppresive drugs seem worse than the disease at this point, but I'm researching any other means of controling these disorders.
I have an arthritic condition that I am waiting on a diagnosis for. I suspect I too have sjorgrens and I have an awful lot of skin allergies flaring at the same time as joint problems and recently swollen lymph glands.
I have found the past two years my PCOS syptoms have suddenly got very bad despite me taking extremely good care of myself. During this time my arthritic/immune system problems started.
I think there is a link.
This is soooo odd that I found this post today, just last Thursday I went to the Dr with a burning sensation in my back and legs and my legs have been numb for almost a month, so what does he suspect it is MS which is an autoimmune disease as well. I go in on the 28th for an MRI. seems to odd that so many of us have pcos and an autoimmune disease very interesting.
I wonder if everyone on this board had an ANA panel done how many of us would have a positive.
It is possible to have a positive ANA (anti-nuclear antibodies which are antibodies to yourself) and not have autoimmune problems so it's just one piece of the puzzle. One look at my signature tells you that I am a veteran of autoimmune disorders and like many of you, have no doubt that there is a autoimmune component to PCOS.
There is evidence that there is a genetic component to autoimmune diseases and estrogen/female hormones is probably a key since the ratio of women vs. men having the diseases is so great. My maternal great grandmother had rheumatoid arthritis, my maternal grandmother had vitiligo, my mom has lupus and I have RA as well. My rheumatologist also suspects lupus but my ANA isn't high enough for a diagnosis.
__________________ dx: endometriosis 1987
dx: migraines 1989
dx: asthma 2002
dx: recurring kidney stones due to renal calcium leak 2003
dx: rheumatoid arthritis 2004
dx: Sjogren's Syndrome 2004
dx: high blood pressure 2004
dx: suspected lupus 2006 (like I need anything else????)
dx: PCOS 2006
dx: IR 2006
dx: diabetes 2007
dx: positive ANA 2008
Married 1997
Miscarriage 1997, 1999 (twice), 2001
DS born 2000-the joy of my life To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Interesting thread. I don't have an answer, but I have PCOS (and suspect my maternal grandmother did as well, it's a little hard to say since she's very vague about medical details), and my mother has fibromyalgia, severe allergies, and rhemetoid arthritis.
__________________ -diagnosed 1/2004
-treating with diet and exercise
-mom to 5 furkids, Patrick the greyhound, Gretta and Samantha the rabbits, Sophie and Rosie the guinea pigs, and 4 guinea pigs waiting at the Bridge.
-working on a PhD in American History
I think you are right!!!! There is probably a connection. My mom has fybromialgia (sp) she just had a hysterectomy (sp). I have psoriasis.
__________________ Beginnings are scary and endings are usually sad, but it’s the middle that counts the most. -Hope Floats To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
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I have psoriasis, pcos, type 2...I have high sed rates and the docs don't know why. My ANA is negative...They don't know what is going on. My back and joints hurt so bad sometimes i can't sit, stand or lay down. I am miserable and nothing helps the pain.
__________________ DX 1994-told to lose weight by GYN,Suffered 12 years before seeking treatments: REDX 2006 by a family doc sent to endo July 31, 2006 and glad I went; Byetta, 2000mg Metformin, 28 units of levemir, fish oil, 1000mg calcium. Type 2 diabetic and high cholesterol dx March 05, psoriasis dx 1992. Married 20 yrs 2 kids: girl 19 yrs old and boy 17 yrs old.
My paternal grandfather died of Wageners disease-an autoimmune disease.
My brother has severe psoriasis
My paternal aunt has Lupus
My Father has thyroid disease
My paternal cousin has hashimoto's and + ana
I have PCOS and hypothyroid.
There are others too.
I have always wondered, it seems that just about everyone on my Dad's side of the family has some autoimmune problem. There certainly seems to be a need for some research.
Hmmm. . . PCOS and type 2 diabetes run in my family, but none of the problems listed above are much in our family. I do have a cousin with I think with fibromialgia and all of her daughters have PCOS. She is the only one in the family with it I think. I think my grandmother was a carrier for PCOS, but never had any of the problems listed. All three of her sisters probalby had PCOS, but none had any of the problems listed. My niece has PCOS, but my sister doesn't have any of the dissorders/diseases mentioned in this thread.
This is my first post on this board. I was dx'd with PCOS when I was 17 and have struggled with it since. I found this so interesting because last summer I was diagnosed with a rare autoimmune neuromuscular disorder called Myasthenia Gravis. Of course, it would figure that some of the treatments for MG make it harder to manage the PCOS, but I am managing. It wouldn't surprise me if there is a connection of some kind. Hope to talk to more of you soon!
__________________ Jessi
Dx: PCOS 1994 Dx: Migraines 2000 Dx: Myasthenia Gravis 2006 TTC #1 since 2003 Happily married to Chad since 2003
