Links Between PCOS and Autoimmune Disorders? - Page 4

jessi092703 · 03-16-2007, 12:25 AM

Hi everyone!

This is my first post on this board. I was dx'd with PCOS when I was 17 and have struggled with it since. I found this so interesting because last summer I was diagnosed with a rare autoimmune neuromuscular disorder called Myasthenia Gravis. Of course, it would figure that some of the treatments for MG make it harder to manage the PCOS, but I am managing. It wouldn't surprise me if there is a connection of some kind. Hope to talk to more of you soon!

*~SugarPlums~* · 03-16-2007, 01:31 AM

No one in our family has pcos although I do suspect my sister does. She has regular af's but has had an u/s thoat shows the classic pearl formations on the ovaries and has the hirsutism.

Now I recently had a bunch of bloodwork done to try and determine the cause of all my losses and I got a hold of them. It appears that I have hughes syndrome (clotting disorder) , which is an autoimmine disorder. I also have type 2 and hydra supp./boils and arthritis. This is so interesting to see the link.

shana0923 · 03-16-2007, 02:08 AM

Wow, I am glad I came upon this thread. I too had 2 positive ana's and have all but 1 symptom but the rheumatologist I went to said I couldn't have Lupus because i was too young. I was 26 when I went. He was an a** and had no personality at all. My Mom had a high sed rate and has fibromyalgia. My father's Mom and all of his sisters have or had Lupus. Several have passed away that is why I put had. I have pcos, h/s, +ana, asthma, eczema and I feel chronic fatigue syndrome. I am positive I have Lupus but I need to find a new doc.

lachicarubia · 03-16-2007, 02:48 AM

Hi Jessi,

to SC.

I have 2 autoimmune disorders:
Oral Lichen Planus
Multiple Sclerosis.

I don't use and drugs, or steroids.
This is my Tx protocol:
Maximize nutritional balance,
minimize toxins and pathogens,
and do damage repair.

You can read the details in my blog: Click Here.

All my symptoms have GREATLY improved, and are really almost all gone.

I personally believe that the connection with autoimmune disorders, and PCOS is
1.) Long term exposure to low dose Mercury contamination (Most likely from amalgam dental fillings, but this is not the only source of mercury exposure.)
2.) Candida (yeast)

Mercury does a lot of damage in the body, in almost EVERY area of the body. It is stored in the body tissues. Where is lands, can determine what types of autoimmune disease symptoms start to show up. Mercury ALSO leads to candida overgrowth. Mercury in the body makes a perfect environment for candida to get out of control.

I was FINALLY able to get PG after years of 2+ years TTC AFTER I started taking things that KILL Candida. I believe that candida causes PCOS, especially high cholesterol, T2 diabetes, and hormone imbalances. I also believe that candida causes IBS, Crohns, leaky gut syndrome, and possibly others.

My Oral Lichen Planus appeared after a dental visit (mercury was in my dental fillings). The Oral Lichen Planus became VERY inflammed and painful right after a dental checkup and cleaning (the friction from cleaning releases mercury vapor). Freeze dried Noni fruit got rid of the pain and inflammation, overnight.

My MS symptoms started shortly after I had a filling placed. I requested the white composite filling, but little did I know that it was placed in the SAME tooth that already had a mercury filling. The heat from the drilling must have released massive amounts of mercury from that filling.

Hum, come to think of it, it was about that time that my PCOS came out of remission, and my cycles started getting longer. Starting the Yeast control program again got it back into remission with the next cycle.

When I got ALL my mercury fillings removed (July '06), my oral lichen planus flaired up again that very day, became painful and inflammed. Since mercury is released with amalgam filling removal, even with a safe amalgam removal protocol that the dentist follows, when my lichen planus became inflammed right after the proceedure, it made me realize that mercury was probably the cause of my lichen planus, as well as my MS.

So that is why I believe that Mercury and candida are the cause of most auto-immune diseases, and PCOS. I think that they are the link.

Anyway, that's my

, kind long, huh, maybe more like 10 cents.

sherart · 03-16-2007, 04:12 AM

LOL I just posted this on the thread about other diagnoses. My Mom's family has TONS of autoimmune disorders that have branched out to my sisters, aunts & cousins.

Hypoglycemia & Diabetes (type 1 & 2)
PCOS, endometreosis, infertility, ovarian tumors, extreme PMS
Rheumatoid Arthritis, Fibromyalgia, connective tissue disorders, lupus, Osteoarthritis
Hypothyroidism (Hashimoto's), Hyperthyroidism (Grave's), Thyroid Cancer
Sinusitis, Allergies to food, chemicals and environmental (dust, mold, mildew)
AADD, Epilepsy, Autism (these aren't autoimmune, but they are very previlent also)

CysterMeghan · 03-16-2007, 01:15 PM

I am so glad you have written this! When I was 17 I was diagnosed with Fibromyalgia, at 18 I was diagnosed with PCOS and now at 23 I have been diagnosed with borderline positive Lupus by the ANA test. I have the classic symptoms of lupus. My mother also has SLE as well as a cousin and my great grandmother who died with it. I also have another cousin that PCOS and is tested regularly for SLE but so far come back negative...I am the only one with PCOS and SLE in my immediate family. But back 24 years ago my mom was diagnosed with an endocrine problem that interfered with fertility in fact I am a clomid baby. Anyway I believe there is defintely a link between autoimmune disorders and PCOS. Now I don't feel so alone

Stinky_Kitty · 03-16-2007, 05:30 PM

Wow after reading all these posts, there has to be a connection. I have multiple autoimmune conditions in addition to the PCOS. I have Celiac Disease, Grave's Disease, and UCTD, plus I most likely have Sjogren's as well, but my labs always come back normal.

Jashobeam · 03-18-2007, 01:40 PM

Could you add a poll to this thread asking who has an autoimmune disorders?

chicagocubs · 03-21-2007, 06:53 PM

Very interesting thread. I have positive thyroid antibodies. My doc just tells my that it means that someday I will become hypothyroid...hmmm wonder when that will happen. I had the thyroid abs tested in 2004 and never really had it discussed again. Wonder if I should get an ANA test done???? Just one more thing to add to the list!

stac8454 · 03-22-2007, 02:21 AM

I agree. I think I have an autoimmune disorder too.. dysautonomia? Not sure though.. I came across it on the internet and I have all the symptoms.

AngelaCM · 03-30-2007, 05:01 PM

Very very interesting. My endocrinologist made me upset by claiming these autoimmune disorders were nothing more than "umbrella" diagnoses and I just refuse to believe that. My mother had NORMAL thyroid tests all the way up to and including the complete removal of her thyroid from Hashimotos. She also has MS and her mother had Lupus. I have PCOS (according to my ob/gyn but not the endo) and am still trying to find out what exact autoimmune problem I have. There has to be a reason for the constant muscle aches, severe joint pain, dizziness, headaches, stomach problems, and fatigue. But no doctor wants to tell me I am anything but "normal according to labs".

Mustangsally82 · 03-31-2007, 12:26 AM

Quote:

Originally Posted by AngelaCM

... There has to be a reason for the constant muscle aches, severe joint pain, dizziness, headaches, stomach problems, and fatigue. But no doctor wants to tell me I am anything but "normal according to labs".

I'm the same way. I went to a rheumatologist last year and all my labs were normal, but I'd had an extremely high CRP a month before and an elevated ESR.

My family doctor is great, and she says that fibromyalgia is a "trashcan" diagnosis, because it seems like that's what doctors will tell you when they can't figure out what (if anything) is causing your pain/fatigue. I kind of like that attitude because it's given me a more positive attitude about my health. It was kind of depressing wondering if I had fibromyalgia and if I was just going to deteriorate forever, but after she said that I felt better about myself. I think lab tests are good for some people, but not others. We all have unique body chemistries and just becasue something is normal for most people doesn't mean it's normal for everyone.

And I've read about dysautonomia and it sounds like me too. All this stuff is confusing and it makes me feel llike a hypochondriac some days.

AngelaCM · 03-31-2007, 12:41 AM

Thanks Sally, and I agree with you completely. I myself know it isn't normal to feel like this all the time, but I guess I just need to find a doctor who can at least get out of the textbook long enough to hear me out.

keebie · 04-02-2007, 05:37 AM

Quote:

Originally Posted by lachicarubia

Hi Jessi,

to SC.

I have 2 autoimmune disorders:
Oral Lichen Planus
Multiple Sclerosis.

I don't use and drugs, or steroids.
This is my Tx protocol:
Maximize nutritional balance,
minimize toxins and pathogens,
and do damage repair.

You can read the details in my blog: Click Here.

All my symptoms have GREATLY improved, and are really almost all gone.

I personally believe that the connection with autoimmune disorders, and PCOS is
1.) Long term exposure to low dose Mercury contamination (Most likely from amalgam dental fillings, but this is not the only source of mercury exposure.)
2.) Candida (yeast)

Mercury does a lot of damage in the body, in almost EVERY area of the body. It is stored in the body tissues. Where is lands, can determine what types of autoimmune disease symptoms start to show up. Mercury ALSO leads to candida overgrowth. Mercury in the body makes a perfect environment for candida to get out of control.

I was FINALLY able to get PG after years of 2+ years TTC AFTER I started taking things that KILL Candida. I believe that candida causes PCOS, especially high cholesterol, T2 diabetes, and hormone imbalances. I also believe that candida causes IBS, Crohns, leaky gut syndrome, and possibly others.

My Oral Lichen Planus appeared after a dental visit (mercury was in my dental fillings). The Oral Lichen Planus became VERY inflammed and painful right after a dental checkup and cleaning (the friction from cleaning releases mercury vapor). Freeze dried Noni fruit got rid of the pain and inflammation, overnight.

My MS symptoms started shortly after I had a filling placed. I requested the white composite filling, but little did I know that it was placed in the SAME tooth that already had a mercury filling. The heat from the drilling must have released massive amounts of mercury from that filling.

Hum, come to think of it, it was about that time that my PCOS came out of remission, and my cycles started getting longer. Starting the Yeast control program again got it back into remission with the next cycle.

When I got ALL my mercury fillings removed (July '06), my oral lichen planus flaired up again that very day, became painful and inflammed. Since mercury is released with amalgam filling removal, even with a safe amalgam removal protocol that the dentist follows, when my lichen planus became inflammed right after the proceedure, it made me realize that mercury was probably the cause of my lichen planus, as well as my MS.

So that is why I believe that Mercury and candida are the cause of most auto-immune diseases, and PCOS. I think that they are the link.

Anyway, that's my

, kind long, huh, maybe more like 10 cents.

You may be on to something as well. I read this article and it said this:

San Antonio
Aydin Ozan, Internal Medicine, 10350 Bandera Rd.#130, San Antonio, TX, (210) 543-0010.

"I've suffered for years with undiagnosed Hashimoto’s. I had seen most of the Drs. listed for San Antonio on your Top Docs list over a period of 5 years. Dr. Ozan is the ONLY one that ever physically examined my thyroid. He is the ONLY one that did the appropriate autoimmune testing and the ONLY one to order scan of my thyroid. I have Hashimoto’s and arthritis in addition to reoccurrence of breast cancer (in remission after radiation therapy). Dr. Ozan has me on Naturethroid, low dose. He encourages me to use antioxidant supplements. He accurately pointed out that my symptoms could also be related to Mercury (I have recently had all metal crowns and fillings replaced by a qualified Dentist in San Antonio, Dr. Tony McRedmond). I have seen a lot of docs and Dr. Ozan is the one that I have the most confidence in his abilities to take really great care of his patients. I have lost about 9 lbs since starting the Naturethroid and I'm now the weight I should be for my age." (added 1/04)

Another recommendation:
"He listens and is very compassionate. I don’t know where I’d be if I hadn’t found him!" (Added 10/05)
--------------------------------------------

em6 · 04-02-2007, 12:36 PM

FWIW, I have PCOS (and the resultant type II), CFS (M.E.), Epstein-Barr (glandular fever). Family history of asthma, diabetes type II, pituitary tumours and MS. Curiouser and curiouser...

I've often wondered if there isn't one trigger or one illness that simply so debilitates your system that you are unable to fight other stuff of (i.e. epstein-barr) and/ or your system turns on itself by overreacting to what's wrong, especially if it goes undiagnosed and untreated and so your system is under attack over a long period of time.

I also theorised the candida thing and find i am more energetic and generally healthier with less aches and pains if i cut bread out of my diet completely.

There are some people who think that CFS may be auto-immune but attacks muscles rather than tissues or organs, but it's still only a theory.