SuzanneStar

I think i have Fibromyalgia but is just getting my doctor to actually listen to me.

I suffer from pain in the shoulders, chest and also the elbows and collarbones. I have had on and off for about 4 years now. I have been going through pain the past few weeks with this and been to the doctors repeatedly and nothing has been done as of yet. Getting a bit sick as pain is killing me at night and in the mornings.

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kaighly~laurensmom

I also have a autoimmune disease called Vitiligo! I have not been tested for anything else,which I should be .I also have Pcos and IR!

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YoungChick

Whoah, I'm glad I found this thread. I've been tested the last month for elevated liver enzymes. I just got a call back from the nurse and the doctor wants to see me tomorrow to dicuss the results of an auto-immune test in relation to my liver. Possibly autoimmune hepatitis she said among other possibilites but that the doctor would probably run some more blood tests to keep digging. I wonder if there is a relation. I will bring up the PCOS tomorrow with him to make sure he considers it.

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Michelle
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noniepg

GOING BACK TO THE ENDO WED. SWOLLEN LYMPH NODES IN NECK AND UNDERARMS SINCE DEC. GAINED 10 POUNDS IN ONE YEAR (AFTER GOING OFF MET) TERRIBLE HIRITUISM ON CHIN. GOING TO TRY MET AGAIN ALTHOUGH IT MADE ME SOOOO TIRED AND NEVER GOT OVER "THE RUNS." THINK THERE COULD BE A LINK TO AUTOIMMUNE. NOT SUCH GREAT NEWS BUT AT LEAST WE ARE ALL IN THE SAME BOAT. AS ALWAYS, GOOD LUCK

Karyan

bumping this up.

theflyingturtle

I'm getting a blood test done for autoimmune disease on Monday.

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153 is my 10% at Weight Watchers. Goal from there.

I run so I can have cream in my coffee

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I run on Dunkin Donuts!

Tyler531

I have autoimmune-pancreatitis, along with inflammation of the ileum (Like Cohn’s) and other random inflammations. I take a regular dose of steroids and have started a new drug called 6MP (a chemotherapy drug that shuts down the immune system) hopefully this drug will work for me since I spend about half my life hooked up to tubes in the hospital.

Any one else on steroids or immune suppressors?

want2beAmum

hmmm....i just posted asking about muscle aches and i came across this post and seem to be in this group.....ive been suffering with occ. muscle pain for a few years but on july2 i started with all over pain+++, and sooooo tired could i have this ???

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After 3 doctors saying i may not conceive, i conceived and delievered my DD at 39 weeks 5 days, 7pounds 8oz. at 6:42pm May 3,2008 and healthy!

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Tyler531

Have you had your thyroid checked? Could be autoimmune related since constant pains and fatigue are major signs, could be chronic fatigue, but you should definitely talk to your doctor but be patient if it is autoimmune it can take months and even years to show itself in your blood work. Good luck to you!

theflyingturtle

I'm getting tested because I keep getting aweful stomach flus that involve swollen lymph nodes in my stomach. I've actually only been in the hospital for it once knock on wood, but I've had ongoing stomach pain for about 2.5 years with two bouts of swollen lymph nodes in the tummy. I asked my doc about food allergies/food intolerances (I'm lactose intolerant-- but that is a different feelign when I don't take lactaid)-- so anyway she spoke to an allergist and because I also get sinus infections somewhat regularly they want to check my blood for an autioimmune disease. I also have Endometriosis.

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153 is my 10% at Weight Watchers. Goal from there.

I run so I can have cream in my coffee

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I run on Dunkin Donuts!

NYER

I didn't read through this entire thread, so forgive me if this has been mentioned. I was reading over on Dr. Coulam's board (INCIID reprod. immun.) that insulin resistance has a genetic relationship with the PAI-1 mutation. I haven't even delved into that. I have a history of over 20 years of intermittent joint pain, but the past 2 years is when the insulin resistance cropped up and the joint pain worsened. I've also got the gene for HLA-B27 (ankylosing spondylosis & other immune disorders). They've yet to diagnose me with anything. Although after a recent m/c I just found out my blood is clotting too fast. I suspect my APA's are going to come back positive this time. It seems like everything worsened at one time after doing some steroids during IVF & then taking a supplement that is a type of immunoglobulin. I really think there is a autoimmune component & maybe that causes some kind of gene mutation. But really I'm baffled by it all. My sed rate & c-reactive protein were also high like a pp mentioned, for a year. Previously they were normal. And seems they've finally come back down again.

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Wendy
TTC our #1 for 12 yrs
Me - 18yo DS from previous marriage
DH - no children
4 IVF's
5 early losses
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Last m/c July 2007 5w6d
Dx non-trad PCO in 3/07(no cysts), arthritis
PH diet, lots of veg/fruit & magnesium, DHA (algae), Nattokinase, Saw Palmetto, Moducare
Dx 10/07 - prothrombin mutation (clotting disorder)

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NYER

I get that. But only since Met. I'm convinced it's some beginning stage of lactic acidosis. I stop the met for a day & it goes away. Sometimes I take Rhodiola Rosea (which can reduces lactic acid) and that helps too. The fatigue is horrible though when it happens.

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Wendy
TTC our #1 for 12 yrs
Me - 18yo DS from previous marriage
DH - no children
4 IVF's
5 early losses
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Last m/c July 2007 5w6d
Dx non-trad PCO in 3/07(no cysts), arthritis
PH diet, lots of veg/fruit & magnesium, DHA (algae), Nattokinase, Saw Palmetto, Moducare
Dx 10/07 - prothrombin mutation (clotting disorder)

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NYER

I found out on another board that PAI-1 is a new thrombophilia being studied. Maybe one of the reasons pcos'ers have a higher incidence of m/c.

__________________
Wendy
TTC our #1 for 12 yrs
Me - 18yo DS from previous marriage
DH - no children
4 IVF's
5 early losses
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Last m/c July 2007 5w6d
Dx non-trad PCO in 3/07(no cysts), arthritis
PH diet, lots of veg/fruit & magnesium, DHA (algae), Nattokinase, Saw Palmetto, Moducare
Dx 10/07 - prothrombin mutation (clotting disorder)

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Veri

Wow - wow - wow. Why hasn't this been studied more? This is amazing. I have vitiligo - it's a minor auto-immune disease as far auto-immune diseases go but again, wow. ~v

Jashobeam