Whoah, I'm glad I found this thread. I've been tested the last month for elevated liver enzymes. I just got a call back from the nurse and the doctor wants to see me tomorrow to dicuss the results of an auto-immune test in relation to my liver. Possibly autoimmune hepatitis she said among other possibilites but that the doctor would probably run some more blood tests to keep digging. I wonder if there is a relation. I will bring up the PCOS tomorrow with him to make sure he considers it.
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GOING BACK TO THE ENDO WED. SWOLLEN LYMPH NODES IN NECK AND UNDERARMS SINCE DEC. GAINED 10 POUNDS IN ONE YEAR (AFTER GOING OFF MET) TERRIBLE HIRITUISM ON CHIN. GOING TO TRY MET AGAIN ALTHOUGH IT MADE ME SOOOO TIRED AND NEVER GOT OVER "THE RUNS." THINK THERE COULD BE A LINK TO AUTOIMMUNE. NOT SUCH GREAT NEWS BUT AT LEAST WE ARE ALL IN THE SAME BOAT. AS ALWAYS, GOOD LUCK
I have autoimmune-pancreatitis, along with inflammation of the ileum (Like Cohn’s) and other random inflammations. I take a regular dose of steroids and have started a new drug called 6MP (a chemotherapy drug that shuts down the immune system) hopefully this drug will work for me since I spend about half my life hooked up to tubes in the hospital.
hmmm....i just posted asking about muscle aches and i came across this post and seem to be in this group.....ive been suffering with occ. muscle pain for a few years but on july2 i started with all over pain+++, and sooooo tired could i have this ???
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hmmm....i just posted asking about muscle aches and i came across this post and seem to be in this group.....ive been suffering with occ. muscle pain for a few years but on july2 i started with all over pain+++, and sooooo tired could i have this ???
Have you had your thyroid checked? Could be autoimmune related since constant pains and fatigue are major signs, could be chronic fatigue, but you should definitely talk to your doctor but be patient if it is autoimmune it can take months and even years to show itself in your blood work. Good luck to you!
I'm getting tested because I keep getting aweful stomach flus that involve swollen lymph nodes in my stomach. I've actually only been in the hospital for it once knock on wood, but I've had ongoing stomach pain for about 2.5 years with two bouts of swollen lymph nodes in the tummy. I asked my doc about food allergies/food intolerances (I'm lactose intolerant-- but that is a different feelign when I don't take lactaid)-- so anyway she spoke to an allergist and because I also get sinus infections somewhat regularly they want to check my blood for an autioimmune disease. I also have Endometriosis.
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153 is my 10% at Weight Watchers. Goal from there.
I run so I can have cream in my coffee
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I didn't read through this entire thread, so forgive me if this has been mentioned. I was reading over on Dr. Coulam's board (INCIID reprod. immun.) that insulin resistance has a genetic relationship with the PAI-1 mutation. I haven't even delved into that. I have a history of over 20 years of intermittent joint pain, but the past 2 years is when the insulin resistance cropped up and the joint pain worsened. I've also got the gene for HLA-B27 (ankylosing spondylosis & other immune disorders). They've yet to diagnose me with anything. Although after a recent m/c I just found out my blood is clotting too fast. I suspect my APA's are going to come back positive this time. It seems like everything worsened at one time after doing some steroids during IVF & then taking a supplement that is a type of immunoglobulin. I really think there is a autoimmune component & maybe that causes some kind of gene mutation. But really I'm baffled by it all. My sed rate & c-reactive protein were also high like a pp mentioned, for a year. Previously they were normal. And seems they've finally come back down again.
__________________ Wendy
TTC our #1 for 12 yrs
Me - 18yo DS from previous marriage
DH - no children
4 IVF's
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Last m/c July 2007 5w6d
Dx non-trad PCO in 3/07(no cysts), arthritis
PH diet, lots of veg/fruit & magnesium, DHA (algae), Nattokinase, Saw Palmetto, Moducare
Dx 10/07 - prothrombin mutation (clotting disorder)
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hmmm....i just posted asking about muscle aches and i came across this post and seem to be in this group.....ive been suffering with occ. muscle pain for a few years but on july2 i started with all over pain+++, and sooooo tired could i have this ???
I get that. But only since Met. I'm convinced it's some beginning stage of lactic acidosis. I stop the met for a day & it goes away. Sometimes I take Rhodiola Rosea (which can reduces lactic acid) and that helps too. The fatigue is horrible though when it happens.
__________________ Wendy
TTC our #1 for 12 yrs
Me - 18yo DS from previous marriage
DH - no children
4 IVF's
5 early losses To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Last m/c July 2007 5w6d
Dx non-trad PCO in 3/07(no cysts), arthritis
PH diet, lots of veg/fruit & magnesium, DHA (algae), Nattokinase, Saw Palmetto, Moducare
Dx 10/07 - prothrombin mutation (clotting disorder)
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I found out on another board that PAI-1 is a new thrombophilia being studied. Maybe one of the reasons pcos'ers have a higher incidence of m/c.
__________________ Wendy
TTC our #1 for 12 yrs
Me - 18yo DS from previous marriage
DH - no children
4 IVF's
5 early losses To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Last m/c July 2007 5w6d
Dx non-trad PCO in 3/07(no cysts), arthritis
PH diet, lots of veg/fruit & magnesium, DHA (algae), Nattokinase, Saw Palmetto, Moducare
Dx 10/07 - prothrombin mutation (clotting disorder)
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Wow - wow - wow. Why hasn't this been studied more? This is amazing. I have vitiligo - it's a minor auto-immune disease as far auto-immune diseases go but again, wow. ~v
Along with the PCOS I have Celiac disease and have to avoid anything and everything that contains gluten or even came in contact with it. Unfortunately gluten is in most everything, so I no longer eat out and make each of my meals.
I had heard it could be linked to PCOS. It is also genetic and I'm pretty sure my grandmother has it, but is in denial (She's a bread junkie). My sister has the symptoms and feels better when she avoids gluten, but she isn't being strict about it.
I was in the bathroom 30+ times a day a year ago, before I realized I should have listened to my doctor back in 2001 when I was warned I may be sensitive to gluten and should avoid it. Avoid bread? No way!
I wish I had listened.
When the small intestine absorbs the food, the gluten is basically attacked and the villi in the small intestine are destroyed in the process. So food can't be digested and absorbed properly. The only way to make things better is to avoid gluten at all costs.
I'm not sure if the hair loss I'm experiencing is due to the PCOS or Celiac disease, both cause hair loss. I was so overweight and malnourished because my food literally went straight through me. My body was in starvation mode because of this and the weight got so bad. My nails were brittle, but are getting better. My skin looks better and I wish my hair would grow back. My moods have improved. Before, my mood swings made bipolar disorder look normal.
It's amazing how something hardly anyone has heard of can cause so much trouble in the body and our lives. A lot of people have this and don't know they have it.
