Sarahsmom, truly you've shared a private struggle with us. Insha'Allah with our support and du'a you'll be able to take Sarah to China for this treatment and it be a successful event in her life.
I can empathize with you, my oldest was born with a few congenital (physical) issues, although most have been repaired alhamdulillah, or will be in the near future, insha'Allah. I can't imagine if I had to travel across the world to help him, but of course if it were my only option, I would.
While your struggle seems much more complex then mine, I know what the grief is like to face PCOS, infertility, pregnancy loss, high-risk pregnancy - for years - and then finally be able to bring a baby into this world, but learn s/he isn't "perfect." Alhamdulillah. Patience is the key, it really is. Allah SWT has entrusted us with the care of our children, and in that is a great reward, especially if there are special needs to address as well.
With all the medical advancements going forward, I am hopeful that in Sarah's lifetime, we will see great strides made in treating her condition, insha'Allah.
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"We can't solve problems by using the same kind of thinking we used when we created them."
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SarahsMom..thanks for sharing..inshallah allah swt will make Sarah ok soon and i will definitely make dua for her everyday. Also, please make dua for all us too that we get our bfp's soon..
just make dua and have faith in allah swt,..nothing is hard for him
InshAllah Allah will make this journey for you and family easy and may it be filled with barakah in this life and the hereafter. I am on blogspot as well and I have subscribed to your blog.
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DH 29
Married 8/07
Hoping for our blessing insh'Allah (God willing)
1st month TTC: Soy 200mg in 2WW
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I want to thank you all for your kind words and duaa'. Inshallah this treatment will help Sarah. Alhamdillah, Sarah is a beautiful child (of course, she's mine!) who always makes us laugh at home. The only times I see her limitations is when she's around her cousins who are the same age. Sometimes it breaks my heart that she's different, but I always say alhamdillah because some people do not have children and would love to have Sarah. Also because this is the way Allah gave her to me. Many times she was supposed to pass on, but she always beat the odds. To me, this means that Allah (SWT) has other plans for her. Again I want to thank you ladies for all your duaa'.
You must be one of Allah's favorite people to have gone through so many trials and still always be so helpful and kind on this forum. I pray for Sarah, she may seem beautiful to you because she's your child but I just saw her picture and MashAllah, she really is beautiful. I pray Allah keeps her in His protection and that her parents' efforts to find her the best treatment is rewarded in this duniya and the akhira. I'll keep you in my prayers, sister.
I studied cerebral palsy several years ago in my neuro classes but all I remember is that it is non-progressive, I don't remember anything about treatments but I am pretty sure you've read up all there is on it. Please continue to update us about Sarah.
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Sisters, while I'm beginning to like the US, I just hate flying. We had to come to D.C. for my husband's meeting with some people here and I was singled out and taken away for "additional clearence" at the airport. The security women were nice but the entire experience of standing like an "X" with a metallic rod rubbed all over me was very disturbing. DH was very worried about me but I just told him I feel fine and it wasn't such a big deal - it wasn't such a big deal but I didn't feel good at all. We're going back in a week inshAllah but to think I'll have to go through that screening again makes me feel unwell.
Secondly, I thought my English was just fine and I had known enough Americans in my life to put me to rest about how I'll communicate here. But the African-Americans, I don't understand a WORD they're saying and it's so embarrassing, I'm either guessing what they COULD be saying or I just have to repeat the word "pardon?" several hundred times for them to SPELL out for me what they had just said. Oh and also the Chinese-Viet-Phil people... really, I can't understand anything they say, and I guess all these people have no idea what I'm saying too. How long will it take me to get comfortable with everything here, any idea? Anyone who moved here a couple of years ago or remembers how long it takes to settle down?
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Me: 28; DH: 33
Married : 03/06; DX: 09/07; TTC#1: 11/07 Clomid{Never ovulated To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. }: 50mg - 200mg
Diane: Oct - Jan 2009
Femara: :02/2009 2.5mg
BFP:March 18, 2009 To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Severe Hyperemesis Gravidarum
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Thank you so much for your kind words. And for saying Sarah is cute!! It means a lot when it comes from someone other than my mom. I remember when I was pregnant with her, I worried that she might be one of those rare babies who "don't look quite good". For some reason, during my pregnancy, I would always see little babies who just looked awful (I think it was my hormones!).
I'm glad that you mentioned that you studied about CP. You're right, it doesn't increase, the damage that is done is done. However, since she was so little when it happened, no one knows what that damage is. I remember the physicians saying that if she made it past the surgery (they removed the blood clots when she was 1 day old) she was most likely going to be a vegetable. Well, she is FAR from that. Her social skills are her strongest at age 22 months (even though she's almost 30 months). She laughs and plays and even has an attitude problem at times. However, DH and I feel that if we can possibly increase her quality of life in any way, Allah would want us to do so. As parents and Muslims, we can't sit back and not do anything for her (especially if we have the means). Inshalla I will keep the website updated and I believe if you click on the "followers" link on the side, they'll email you each update. I thought it would be a good idea to document this journey, both for Sarah when she gets older, and the fact that we have family all over the world. This way they can get updated without me having to call each person!
Sister, do not worry about airport security. Since 9/11, I have flown over 30 times. EVERY SINGLE TIME I get picked for "random" screening. I don't mind, but I always tell them that they better not make me late for my plane. It can be quite annoying, as I've had people put their hands up my hijab as part of the screening. If it is that embarassing, ask them to take to the side. They are required by law to do so if you request it. Also, don't be embrassed. It's become so common, I don't think anyone around you was really paying attention. They are more worried about making it to the plane on time.
I laughed so hard when you said you couldn't understand African-Americans. I've lived in the US all my life, so I don't have a problem. But I remember when DH came to the US for the first time about 4 years ago. He always had to hae me around because he had no idea what they were saying and THEY had no idea what he was saying (even though he's been speaking English as a child and he lived in the UK before we were married). We lived in Iowa so their accent wasn't too bad, but since we moved to Florida the accent here is much much heavier and slower. He still has a hard time. Just ask them to speak slower. It'll take some time to get used to all the different accents. Even myself, when we moved to Florida, it turns out there are words they use here that we don't use back in Iowa and vise versa. You'll get the hang of it soon enough. And if you hear a word you're not sure of, just post it here. We'll help you!
My family is African American. It takes getting used to especially if you are in the South. Southern folks talk slower and at times use different words. It's called 'Southern Drawl'. And actually White folks down south have accents as well. You'll get used to it inshAllah
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Me 23
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DH 29
Married 8/07
Hoping for our blessing insh'Allah (God willing)
1st month TTC: Soy 200mg in 2WW
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assalamo alaykoum sisters!
my baby boy is here!!! he was born on the 11th at 4.50 am after only 1 and a half hour of labor masha alah!!
i'll post a pic of him soon incha alah! jazakum allaho khayran for your duaa's, ohh and i have prayed for all of you!
assalamo alaykoum sisters!
my baby boy is here!!! he was born on the 11th at 4.50 am after only 1 and a half hour of labor masha alah!!
i'll post a pic of him soon incha alah! jazakum allaho khayran for your duaa's, ohh and i have prayed for all of you!
Elhamdulillah! M'broke! Ma'chAllah!
Rabbi Khaleek for saying duaas for us!!
can't wait to see pics..
how are you feeling? how is your daughter with her new brother??
__________________ -Rania MARRIED SINCE 07/2001 TTC since 02/2004 - lost a baby 04/2004
Miria: Mabrook! I can see a little picture of the little baby with his sister... and MashAllah, 1.5 hours is not bad at all compared to the stories I've heart. JazakAllah khair for praying for us.
Gracedmind: You're right, people in the South also have an accent and I'm struggling a bit but inshAllah, I'm told I'll get used to it.
Sarahsmom: JazakAllah khair sister for telling me they're required by law to take me to a private place for screening if I ask for it. On our way back, I did ask... and they took me to a room and it was quick and just thinking all/most of you go through it too... I was much relaxed, alhamdulillah.
As for me, I'm in a sudden state of panic. I was looking through my husband's insurance plan, and apparently, they don't cover infertility, AT ALL. This is such a blow to what I was thinking all along. I thought I'll get to the US, the insurance will cover A-Z, doctor, med, tests everything... and it turns out, we have to pay everything out of our pocket, and really, with him being the only breadwinner here, those pockets aren't deep at all. I just read one vial of injectibles costs $800-900. Where on earth will be eat from if we spend $3,000 or so a month! DH is telling me not to panic and that he'll look into it, but it's so black and white...
Please pray for me sisters. My younger sister found out this morning that she's expecting Alhamdulillah... and I am happy for her. Alhamdulillah now I am oceans away from everybody and won't have to deal with much of what's going to happen back home (why the younger, who got married 2 years after me, is having a baby and I am not)... I have been so happy since I've been here, with my own home, my own kitchen, my space, everything... and suddenly, i'm back with my tears...
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Me: 28; DH: 33
Married : 03/06; DX: 09/07; TTC#1: 11/07 Clomid{Never ovulated To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. }: 50mg - 200mg
Diane: Oct - Jan 2009
Femara: :02/2009 2.5mg
BFP:March 18, 2009 To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Severe Hyperemesis Gravidarum
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Nomadic, I see you are only on 500 mg of Metformin. Everything I have read says you should be on at least 1500 mg for it be effective. Why are you on such a low dose? Do you think you could talk to your doctor about increasing it? I imagine it would make a big differenc for you, insha'Allah.
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