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Old 07-10-2006, 04:57 PM   #1 (permalink)
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Default My bcp saga

Hi! I'm still relatively new to this board, so I hope this is the right place to put this question.
A little background on me first, sorry it's going to be a little long. I started taking bcps when I was 19 b/c I was having ovarian cysts constantly. I was given ortho-tricyclin (I think everyone has been on that at some point!). That didn't help me, so my doctor put me on a different pill. I was still getting cysts. I was not diagnosed with PCOS at this time, so no metformin. The bcp changing went on until the doctor discovered I had endo in an exploratory lap. He put me on depo-provera, which caused a non-stop AF for 9 months (the amount of time he suggested I give it as a "trial run"). I refused to get anymore shots of that. So, he put me on Lupron. That really messed me up! I had such high blood pressure that I was nearly hospitalized. Thankfully, my PCP caught it in time and gave me meds. I was then married 3 months after getting off the Lupron. My doctor did another lap for me a month after I got married so that we could try to get pg. Long story short, that never happened, even after fertility treatments stopping short of IVF/ICSI.
For 3 years now I've been on Met. I've been on bcps for just over 2 years. We stopped ttc when we realized it was causing the endo to come back worse and worse. It was wreaking havoc on my body and I couldn't take it. I went to see an RE and he put me on bcps, supposedly really good ones. I think they were triphasal. Those caused breakthrough bleeding within 4 months. So I was switched to another kind, then another and another.
Basically, whenever I take a bcp, within 3-6 months, my body rejects it and starts AF whenever it wants. Very annoying. My RE said it's not really breakthrough bleeding b/c it happens after the standard 3-4 months.
I'm there again right now. I've been on Nordette for 4 months and started AF in the middle of a pack. I take Ethinyl Estradial on my AF week to prevent migraines. Well, a week ago, the headaches started and I couldn't figure out why. I called my RE's office. The nurse said that I was supposed to start my Ethinyl Estradial asap b/c AF was starting and stop my bcps. The doctor is also switching my bcp-again! I'm going to be starting Desogen (sp?) this coming Friday.
I am so tired of taking bcps. I really can't stand the jumping around. The longest I've been on a pill is 6 months. It's really depressing that I can't get "normal" even on a pill.
The worst part is that I'm having very bad pain on my left side. I think it's a cyst. I am sure I've had it for a couple months now b/c I've had no AF until this past week, the last one was in late April/early May. That could signal it's growing or rupturing, I'm not sure. I do not have a right ovary b/c it was removed last year. It was covered in endo and was stuck to other organs. I also had several cysts on it.
I go in to see my Re on Wednesday to talk about what to do next. I am putting my foot down and saying no more bcps. I just can't do it. I'm wanting a hysterectomy, but the RE wants to wait until I'm 30 for emotional reasons mainly. I'm emotionally drained right now. I'm ready for this to end. I know that a hysterectomy won't take care of it all, but it would at least help. My right side is a million times better since the ovary was removed. I long for that feeling elsewhere.
Thank you for listening and reading all this. I just don't know where else to turn. I know that you all are exerienced with cysts and bcps here. Can anyone give me advice? What would you do in my situation? Has anyone else been "immune" to most bcps and had the AF thing? I'm really frustrated. I need support and guidance.
Thanks!
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Old 07-10-2006, 09:00 PM   #2 (permalink)
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Have you had your thyroid levels checked? Menstrual problems and inability to get pregnant are also signs of a thyroid imbalance. For thyroid, make sure your doctor checks your free T3/T4 levels and not just your TSH. Sometimes with PCOS, there are a few underlying conditions...which makes it even more difficult to figure out.


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Old 07-11-2006, 03:59 AM   #3 (permalink)
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Triphasic pills are usually bad news for PCOSers...they have all those days of unopposed estrogen. Can't imagine that would help your endo either. I don't have any other advice, I'm sorry!
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