i am so thankful to have found this site. i am 31 years old and was diagnosed with psod when i was 20 years old and barely know anything about it. i just recently got online so that i could do more research. i live in a small town in pennsylvania and none of the doctors that i've seen seem to know much either. they treat me like a hypochondriac until the run tests and find the problems are real or i'm their guinea pig. i ask questions and i'm told that they're not God to know for sure but maybe probably. they just dont make sense. there are so many things that they say i have because of psod. i have to take provera to get a cycle which they only give me once a year. i take medication for high blood pressure, depression, and acid reflux. thats it. but i also have high cholesterol, heart problems, osteoporosis, migraines, insomnia, high sugar levels, i am 31 years old and after 3 surgeries for major broken bones they do a scan and find the bones of an 87 year old woman. if i think of falling i break a bone. ha. limited hair where i want it and lots where i dont. people look at me like i have the plague. a husband that was a jerk and left and a new boyfriend that just doesn't understand. my dad and stepmother dont understand either, i feel alone.
You are definitely NOT alone!! You just happen to live in a small town where doctors aren't as knowledgeable about PCOS! As for the hubby, GOOD RIDDANCE!!! Don't expect family members to "understand". Until they have walked in our shoes, no one knows the embarrassment and crappola we deal with!! Research is definitely your best friend. I live in a decent sized city, but even I had to hand a stack of papers to my doctor to read and diagnose me years ago. Hang in there!!!!
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Wife to Rocco (1/21/05) + Mommy to 3 cats +
Academic Advisor + Graduate student = 4 Full-time Jobs
I had a dr tell me a few years ago when i was still getting my period, only very irregularly that it was likely because of stress and sent me home. Unfrtunatly i think there are quite a few drs out there that just dont believe that their patients know their bodies and what is normal for them. after my period stopped waited 6 months before i went back to the dr because i didnt want to be told i was just a bit irregular because i KNEW something was wrong
One of the 1st docs I saw told me a i was probably just depressed and wanted to put me on prozac.... Can you imagine letting all of the hormone imbalances run amuck and just numbing my brain? What a waste of time and patience!
I say forget the husband, ditch the boyfriend and check the Dr. refferal page to find a good doc to get you taken care of.
Just remember that know one will ever can as much about getting you well as you do. You are your own best advocate!! (Although we here really do care too!)
Have a better day!
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Have you ever been tested for Cushings Syndrome? PCOS symptoms can be very similar to Cushings sometimes, and the high blood pressure sends up a red flag. Also, you should have your Vit. D levels checked. Alot of people assume calcium is the culprit with osteoporosis. But many are low in Vit. D. About a year ago I had mine tested, and my levels were that of a senior citizen (under acceptable range). I was taking a calcium/vit. D supplement with ample D, but my body was not absorbing that form. Because I also live in a northern climate, and avoided the sun, that contributed to it. Vitamin D3 is the best form. A vit D deficiency can also cause depression, hormonal problems & infertility, and they have connected it to even PCOS.
I agree with others - get rid of the bonehead dr.s & find a PCOS specialist! Even then, sometimes you still have to push them to do the proper testing. I've had to do that every step of the way. You have to listen to your instincts & do your own research.
Best of luck & feel better!!
__________________ Wendy
TTC our #1 for 12 yrs
Me - 18yo DS from previous marriage
DH - no children
4 IVF's
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Last m/c July 2007 5w6d
Dx non-trad PCO in 3/07(no cysts), arthritis
PH diet, lots of veg/fruit & magnesium, DHA (algae), Nattokinase, Saw Palmetto, Moducare
Dx 10/07 - prothrombin mutation (clotting disorder)
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__________________ Wendy
TTC our #1 for 12 yrs
Me - 18yo DS from previous marriage
DH - no children
4 IVF's
5 early losses To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Last m/c July 2007 5w6d
Dx non-trad PCO in 3/07(no cysts), arthritis
PH diet, lots of veg/fruit & magnesium, DHA (algae), Nattokinase, Saw Palmetto, Moducare
Dx 10/07 - prothrombin mutation (clotting disorder)
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I was told I was acting out for attention. No one but another Cyster will understand. Accept that. And then ditch the dumb males, find yourself and excellent doctor and take care of yourself. Then go about finding a loving, accepting wonderful man. (I hear they exist somewhere).
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"I've tripped again and things are starting to get interesting..."
Quote of the day: "When my eyes get all glazed and my head starts bobbing, don't try to listen for the music. There is no music. There is just me. I'm dreaming."
I would ditto the cushings possibility. Also cysters seem to be at a lack of vitamin D. There are a few threads on this. You need to have fat with your vitamins so your body will process them.
I think there is a PCOS center in PA. Google it for directions.
my docs dont know 
Don't expect family members to "understand". Until they have walked in our shoes, no one knows the embarrassment and crappola we deal with!! Research is definitely your best friend. I live in a decent sized city, but even I had to hand a stack of papers to my doctor to read and diagnose me years ago. Hang in there!!!!
