mkaz

Is there a website/national organization for PCOS that is really kept up to date on things (medicine/research/books/etc.)? Something that isn't just a forum? I look at Project PCOS once in a while, but can't figure out if they continually update things or not. I just kind of want to find more from the professionals (doctors/nutritionists) that deal with this. It's sometimes had to find any cohesiveness on this subject.
Just curious.

KatCarney

You won't find any cohesiveness on a website where the medical community regularly contributes. Mostly because there is still so much dispute on how to diagnose and treat the condition.

In the next two weeks, the main portion of SoulCysters will re-launch (soulcysters.com) with a fully updated doctor directory, and a re-vamped research articles section.

If you want to be kept in the loop on pcos research, sign up for the PCOS alerts at PubMed, sign up for the clinical trial alerts at Center watch, and also download the medifocus guide to PCOS. (all of this information is posted at www.SoulCysters.com currently. )

Last time I checked the Medifocus guide had an international directory of pcos physicians and researchers. Plus the study abstracts from PubMed will list the emails of the reasearchers - I've contacted several with questions.

You'll find as you go along that PCOS is a 'DIY' syndrome, in terms of gathering information.

The national pcos organization is at PCOSA

__________________