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Old 11-09-2007, 02:12 AM   #1 (permalink)
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Hi. My name is Michelle, it's 1:01 AM where I am (Nova Scotia!) and I just found this board. I should be in bed right now (class in the morning!) but I can't let myself go to sleep without leaving a message here. I am so glad to have found you all.

I was just diagnosed with PCOS yesterday, after two years of trying to convince various doctors that I wasn't crazy, that there really is something wrong, and that I'm not just making it all up. When the gynecologist came into the room yesterday, sat down across from me, and said, "You have a textbook case of PCOS," I could have cried with relief. Isn't that weird? But I was just so relieved to finally just have someone believe me!

My period woes, as I call them, have gotten worse and worse over the past few years. They were never a walk in the park; from my very first period I hated it, but I learned to live with it. As I grew into my late teens and early twenties, though (I'm 27 now), I began to notice my cycles were getting longer and longer. In the past year and a half, I've had four "periods" -- and three of those were only spotting.

I had bloodwork done this past April to check my hormone levels, and everything came back fine. Then I had a pelvic ultrasound in August, and no cysts were present. Which did nothing for the doctors' belief that I was nuts, I suppose. Meanwhile I had my last "period" (again, spotting) the first week of August, and haven't had one since.

I managed to get a referral to the gyno I saw yesterday, and he is amazed that no one saw this sooner.

Right now the only medication I am on is Min-Ovral 28. Dr. Hamm (my gyno, the one who diagnosed me yesterday) does not feel comfortable putting me on a COC, because my blood pressure was a little high. Plus, I have hydrocephalus and a ventriculoperitoneal shunt, which carries a small but constant risk of stroke on its own; he didn't want to possibly up that risk. Meanwhile, he wants to see me again in three months and at that point, we will discuss the next step (whatever that might be; my head is really spinning right now with all of the information that I've been reading since I was officially diagnosed.) I'm kind of confused as to which way is up at this point!

I'll admit that I'm a lot scared about all of this. Relieved, too, as I said -- but I know that this is something that cannot be "cured", and the enormity of it all hit me last night. It's just good to know that there are other women out there who are going through the same thing.

I'm looking forward to getting to know all of you...I hope to make a lot of good friends here. Thank you for being here!
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Old 11-09-2007, 11:56 AM   #2 (permalink)
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welcome to sc, you will soooo love it here. I know how scary getting diagnosed is, thats why this site is so amazing.
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PCOS, LOCAH, Endo, Lichen Planus, IBS, HS,alopecia - raised bp/ cholesteral. Wheat and dairy intollerance Meds: Spiro, Bendrofluazide, Amlodopine, Simvastatin, Met, Prednisolone, Colefac, multi vits,

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