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Old 03-05-2009, 04:30 PM   #1 (permalink)
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Arrow New and Frustrated: Mutliple Diagnosis and Needing Support

Hello Everyone

I am new to this board. I am not entirely sure I have PCOS, but it has been questioned on more than one occasion. I recently had a transvaginal ultrasound and got my results back, I go in on Monday to speak with the doctor.

From what I understand it may be indicative of PCOS and/or endometriosis.

I am almost 29 years old, and have a history of health issues. I struggled with an eating disorder (Anorexia & Bulimia) for 12 years, and after I began recovering I also began getting sick. I thought it was just "normal" but several years thereafter my health and my life seemingly fell apart and it became evident that it was not normal

Here I am 3 years later, and I am on the mend *finally* but with several diagnoses, which I am trying to manage. I was initially diagnosed with insulin resistance/pre-diabetes in May of 2006, and am on 500mg of Metformin (after a few med changes.) Now, two and half years later I have gained weight and am technically classified as having type II diabetes.

From there I was diagnosed with Hashimotos Thyroiditis, Fibromyalgia, Dysautonomia, and lastly my bloodwork came back for Celiac Disease. I have had ongoing pelvic/abdominal pain since as far as back as I can remember, but it was never a priority on my health list. Recently I got a nasty UTI/Bladder Infection (I have never had one) and it sent me to the walk in clinic after two weeks of on going-low grade fever (despite two different antibiotics.)

At first I contributed the ongoing pelvic pain to the celiac, because once I stopped eating Gluten I felt much better.

Unfortunately, the pelvic pain returned with the UTI, and has not gone away

I admit I am frustrated that my body is falling apart, but I am grateful that I am here and alive. I am just struggling to cope, overall. I am finally at a point where I am ready and able to live my life, yet I am struggling to do so

So I guess I just wanted to reach out for support and like experiences.
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Old 03-06-2009, 07:05 PM   #2 (permalink)
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I don't have any advice about your conditions...I've actually never heard of some of them, but I did want to reach out and say hello and "hang in there" from one newbie to another. I can relate to your frustration for sure. I know things must be really hard for you right now. I hope that you get some positive news or at least some enlightenment from your doctor's appointment.

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Old 03-07-2009, 07:54 AM   #3 (permalink)
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welcome to sc i dont eat wheat/gluten any more either - havent for about 2 half years.

I also have constant pelvic pain, and am going for a lap next month to check for endometriosis.
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Old 03-10-2009, 02:37 AM   #4 (permalink)
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Oh, mama, I'm so sorry about everything. I have multiple diagnosis also. I was diagnosed with PCOS last fall and endometriosis a couple of weeks ago via lap surgery. I also have food allergies, post gall bladder surgery bowel issues, chronic asthma, and chronic allergies. While we have different diagnosis, I know how hard it can be. I have to read labels constantly.

Hang in there.
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