Well I finely decided to join a forum to talk to some other women about PCOS, besides my husband because he doesn't understand at all.
Ok, I'm twenty years old, I'll tell you how I found out I had PCOS first.
So, I was always on BC because I got my period on my 8th birthday, and for about 4 years had difficult cramping, one month i would get it the next i wouldn't, then i would have it for 9 10 11 days. So when i was 12 they decided to put me on BC. I was NEVER a heavy person, I was all about cheer leading, and sports and that continued thought my life.
I have always noticed little things here and there that worried me, but i just thought that's how God made me. Hair on my chin, and stomach ect. Thyroid enlargement, and nothing wrong with it.
The summer of my senior year is when the crap hit the fan. I gained over 70+ lbs in 3 months!!!! No one could tell me what was going on. I didnt change about my life. Still cheerleading and it seemed it came from no where and was mostly around my stomach. WEIRD.
I got depressed Thank God my husband was with me, the hair got worse, and i got drepressed.
So fast forward. I delt with it, had no choice, couldnt not for the life of me lose any weight.
My husband was home on Bootleave and I got pregnant. AWESOME we were so happy. Well i had a misscarriage at 6 weeks. Thats when things got worse. Cramping, Pain, every thing got so much worse so i tought something went wrong with the misscarriage. NOPE. Did some tests, took a look at my oviaies. I have PCOS, and now that i was off BC all the sympotms were coming out. It was kinda controled by the BC.
So now I'm even more depressed. Im not on any treatment, "waiting for the insurance to go through with the Military" Im in constant pain, the hair is crazy, I dont want to do anything but sleep I feel like im discusted with myself. As of now i weigh around 230, i used to weight 130, idk what to do.
Sorry so long, but id liked to talk to some of you, so i can get some ideas of good treatments and ideas to help me with this.
I know just how you feel, and that is why I joined yesterday,
my story is about the same, as i have been reading through some other's stories ...
I did not know that there were so many of us, not that that makes it better, but I am just glad there are women who understand.
I too, have had the constant weight gain, the random HAIR, the discolored skin, the depression, all of it!!
I have always had the random periods so I went on BC early, then when I got engaged 2 years ago (to my bf of 14 yr) we decided to go off the pill.. I knew I would be irregular.. but after the 6th month and the new developments of stomach pain, the hair, the WEIGHT.. I went to a new DR. and asked to please see why I had no periods as my other Dr. said it was just from the lack of pills,
my new Dr. did an ultrasound and low and behold PCOS.
he wanted me to go back on BC but I am 30, and all I ever wanted to be was a mother, so I said no, I am on metformin e/r 500 2 at dinner, I switched from regular glucophage and the results are alot more bearable... less pain and trips to the restroom! now i have sine had 2 periods on my own,, not in a monthy cycle but they are there... and I am so hoping that means I may be able to get pregnant..however to add some icing, I also have Psyatica (pinched nerve) in my lower back, AND a tilted Thin lined Uterus from a previous precancerous surgery.. so if I get PG I am on permanent bedrest for the duration..
But I am willing to be sewn shut and strapped down, I am just hoping for a miracle here.....
Anyhow, I am new too and am willing to share and talk, it helps!!
WOw. i to am new to this site and some what new to PCOS. i really need some one to talk to a share with. because my husband cannot understand me.... and everything going on.. the poor guy i know that he tries...
-so my story, is like yours Cortney...
i was 9 years old when i got my frist cycle, my mom didnt think anything of it i was just an "early bloomer" my mom got her first cylce when she was 11 so that was the end of our wonderment it was just an "early bloomer", then about 1 year later after all a normal cylce. it just disaperaed. i no longer had a cylce. i was VERY active and i was in sports and all that good stuff. so again my poor mom heard that sports causes cylces to be off, so she didnt think anything serouis could be going on.... so i my cycle started up again when i was 11, and was HORRIBLE, i had SEVER craps i couldnt go to school, becasue i had "stomache problems" i was all hopped up on midol and peptobismol... and i endured this because again.. my mom said some girls are cursed with a worst 'pms' then others..... i went threw this for 2 years with no other symptoms just the horrible cycles.... then THE HAIR...... my little brother stated noticing that i was Hairy like a boy, and my father and my brother would tease me about it all the time.... and again, my mom just thought that i was having "the bad luck" of pueberty... so i met this boy who i feel inlove with at 13, he treated me like a qeen regardless of the hair and the horrible cramps... at 16 i got pregnant and had a miscarriage in 07.. yes i am only 17... any ways, when i got pregnant i was maybe 120 at 5'2 then right after i had my miscarriage i found out that i had PCOS, and my doctor put me on YAZ, i gained 60lbs in just 2 mths... so i quit the YAZ, because we thought the BCP were the reason for my problems.... My boyfriend then asked me to marry him, FAT HAIRY and all and i said yes, we got married in april, and here we are. i go to an appointment to talk about fertility on Nov 3rd...... (after quitting the BCP my cycle stoped compleatly)
I hated BC, I really just want this to go away, I feel bad that I may not be able to have children. There is nothing more important to me than sharing a live with my husband. I just hope the doctor can help us out before he deployes
Omg its so nice to have some people to talk to. Im getting really upset about this, and i have to get to the doctors. Im not treating it at all as of now. i just want to scream, cry, yell. Ugh i really just need someone to vent to.
Dezi, I think we have alot more in common than PCOS. my email is page2147@msn.com. Email me
I joined today because I really need the support of women like me. I was diagnosed in 2005, after a laundry list of issues since I was 17. I have gained about 85 lbs...depressing for a former runner and person who was always active. Not to mention the pain...there are days when I feel as if my ovary are being put through a meat grinder. I have found that a regiment of Black Cohosh and Dong Quai help with the pain by shrinking the the cysts. I take 2 of each twice per day for 3 days at the onset of that heavy feeling just before the blackout pain. I am a newlywed, I did get prgenant and miscarried at 6 weeks. The hair is out of control, BC only makes matters worse by spiking my BP which causes me to blackout. I am so tired of the yo-yo weight gain no matter what I eat & the pain. Does anyone have any natural sugestions for causing a period? I try to stay away from the heavy prescrits ..I have taken everything out all ready which I have found only compouds the weight issue.
I found out about my PCOS on Wednesday, and realised I've had it for years. I know how you feel a bit. I always thought something might be wrong, I still dont completely believe the diagnosis, as my symptoms dont all match and so far havent seen what i have in other blogs. Anyway I call Wednesday, Black Wednesday now and spent most of the day bawling my eyes out at home.
I have been on clomid and provera for 3 months, and had the weirest periods ever. I was really shocked when the doctor diagnosed me as she simply let it slip during the exam that I am the girl with the pcos,right? I didnt know what to say - now I get why she didint charge me for the last visit, she felt sorry or me.
Anyways, I prayed and today things look brighter, i know God has a plan with everything and its going to be a long road, but hopefully one day I will have my babies. There is no way I can live my life without having children. I am only 25, but been broody for about 5 years! My husband and I have only been trying for a year but its hard when i havent even ovulated once durign that time.
My story in short. I started my period late actually compared to most cysters :-) at 15 or so, I had 4 years of hellish periods that lasted for weeks, destroyed my athletics career and confidence. But it all changed during my matric exams - sorry im from South africa( and english is not my first language so sorry for the spelling just in case). Its our senior yr in shool (18), anyways i was supposed to keep this short. Since the age of 18 i cant count on my hand the amount of times i've actually had a period, sone years I had around 3, with 9 months passing inbetween.
I'm normal height - 1.68m dont know in feet, and was always underweight - I just thought this is why i didnt get my period. - untill recently, I can now appreciate the fact that I am PCOS but not overweight - although i have actually picked up about 4 kg's this year - about hte size of 4 blocks of butter! and its like to others all around my waist. SO far i only had one stint with hairloss - not fun.
I also have Insulin resistance - I havent read up about it yet but i think i have to, as it will most probably lead to diabetes - thank you Grandma, atleast i inherited something. Does any of you also have liver dysfunction or IBS, I am trying to work out if its all connected, i also suffer from bad rhinitus but apparently its because my body cant handle the toxins, due to hormone malfunction basically - i think my body needs a reboot.
I went out and bought a book called: The Fertility DIet, because it has a whole chapter on pcos and read up about whats good to eat and what not - I realised its the same stuff as for the liver dysfunction treatment- and now im thinking of trying acupuncture - as a friend of a friend with bad pcos got pregnant within 3 sessions. - but that was probably a miracle on its own.
in SOuth Africa gynae's are extremely expensive, and mediacl aids dont pay for anything related to fertility. My doctor referred my to a specialist as she thinks i will most probably only benefit really from intense coupels treatments - but we cant afford it,so i am left with other alternatives.
I still cant get over the "String of pearls" on the sonar scan - the doctor even gave me the photo. All I want is to have a baby that looks like my husband and calls me mamma, is that to much to ask for . I am halfway inbetween crying and laughing about it - a bit hysterical.
wow, i wrote way to much, oh yes i also suffer from verbal diarrea .
hang in there - i heard somewhere that between 70 and 80% of women with PCOS do get pregnant, and even with a few miscarriages manage to have beautifull babies. any idea if its true?
HI again I just read up a bit more and found the Thin cysters, i read up about it, and now my whole life makes sense health wise..the liver dysfunction, even my athleticism - or whats left of it. I always thought i could never make it professional due to my heavy periods during my teen years, turns out i could only run fast due to the pcos and androgen levels, thats an eye opener. ladies there will be a way out, we just got to find it, when the time is right it will happen, not necessarily when we want it - God never gives us more than we can handle right? so im going to see htis just as another chanllenge which I can beat - the other advantages of finally knowing is that i will now strive to improve my life, i am going to stop drinking all those cuppachinos ( i love those :-( start running again, mabey start having breakfast with my hubby - more family time - and eat more fruit - which should clear up my ibs - so yes I hate this PCOS but im going to try my best to see the positivechanges it forces me to make.
I have no idea how i will feel tomorrow on this pcos rollercoaster, but for now i feel like i can kick pcos butt and have a gazillion babies just to spite it.