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Old 05-20-2005, 08:00 PM   #1 (permalink)
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Hi! I just wanted to thank everyone for their information on PCOS. I was diagnosed at 25, over 10 yrs. ago. I have a great ob/gyn who is and was in tune to my symptoms. Until recently, my only symptoms have been the usual: irregular cycles, weight and excess hair growth. I have been on BCP's for over 10 years and recently went off to have some hormonal testing done in June. I have noticed in the past year that I have had additional problems such as hypoglycemia, sweating, fatigue and HBP. (My weight is also at its highest). I have always thought that PCOS would mainly cause hormonal imbalances that would make getting pregnant difficult for me. I did not realize that it can be a syndrome. My question is: During your struggles with PCOS, did anyone notice that their symptoms became worse over time?

Thank You Again for Your Information and Support

Lori
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Old 05-20-2005, 08:57 PM   #2 (permalink)
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Old 05-21-2005, 04:05 AM   #3 (permalink)
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Quote:
Originally Posted by LCahill
Hi! I just wanted to thank everyone for their information on PCOS. I was diagnosed at 25, over 10 yrs. ago. I have a great ob/gyn who is and was in tune to my symptoms. Until recently, my only symptoms have been the usual: irregular cycles, weight and excess hair growth. I have been on BCP's for over 10 years and recently went off to have some hormonal testing done in June. I have noticed in the past year that I have had additional problems such as hypoglycemia, sweating, fatigue and HBP. (My weight is also at its highest). I have always thought that PCOS would mainly cause hormonal imbalances that would make getting pregnant difficult for me. I did not realize that it can be a syndrome. My question is: During your struggles with PCOS, did anyone notice that their symptoms became worse over time?

Thank You Again for Your Information and Support

Lori
You have to love the masking effects that BCP's have on some people. Birth Control in essence tends to mask the symptoms of PCOS, so perhaps by going off them you are now noticing symptoms you probably were masking with the BCP's. It is absolutly wonderful that you have a understanding doc. It would be wise to speak to him/her to see what can be done to help you with these new symptoms. Perhaps consider seeing a endocronologist who is better apt to deal with these hormonal issues.

As for me, as time progressed with no meds, I got worse, which I think has to do with weight gain. However, with meds and proper treatment, I am on the up and up. I hope this helps, I wish you the best in your treatment which is so important with PCOS, proper treatment. GL..
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Old 05-21-2005, 04:58 AM   #4 (permalink)
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I think PCOS is definately progressive. I began having symptoms at the onset of my menstrual cycle at age 12. I was on Birth Control by age 13. This didn't regulate me for long. I began having long cycles. Lasting for months at a time, even one as long as 6 months. The doctors told me that I would probably need a hysterectomy, but I would never accept that. I had horrible acne. Worse than any of my friends. I had to fight really hard to maintain my weight and had lots of ups and downs. At age 15 (just a week after my b-day) I got pancreatitis. I spent about a month in the hospital and it was during this time that I was diagnosed with PCOS, but nobody bothered to explain to me what it was, so I didn't get any treatment. Those were my symptoms until I turned 18. Between 19 & 20 my periods disappeared altogether. I began to get darker hairs on my legs (my leg & arm hair has always been blonde) and stray hairs on my breasts, belly and face. My weight ballooned like crazy. In 2000, my coworker had been trying to have a baby and was seeing an RE. She told me that she had PCOS. I told her that I did, too, but I had never known what it was. She shared the info she knew about it and I scheduled an appointment with her RE. I began seeing him in Oct. 2000 and got married in Nov. 2000. We had hoped to get pregnant on our honeymoon. We had been together for 5 years and wanted to have a family right away. That didn't happen. The journey was a long one, experimenting with different treatments. My Insulin Resistance changed to Type II diabetes in 2001 or 2002, I can't remember when I was diagnosed for sure. I tried Metformin, which helped my PCOS symptoms out a lot, but I couldn't handle the side effects and ended up on Avandia. I tried Atkins and it helped control my Diabetes and helped with my PCOS symptoms as well. I was kind of on and off the diet, though. However, in 2003 I stuck to it and was able to get pregnant and carry my son. Over the years I have noticed my hair thinning, having quite a bit of chin hair (which I never had before I was 23), trouble with my sleep, and a whole slew of other symptoms. There are a lot of medications that can help with these things, but I really hate taking pills. I can never remember to take them when I'm supposed to or forget them for days at a time. Sticking to a low carb diet works best for me.

Well, I know that was long, but that's my story. The abridged version.
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Old 05-22-2005, 04:14 PM   #5 (permalink)
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Thank you for taking the time to respond and share your experiences. They are both helpful and healing.

Lori
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