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Old 03-11-2009, 04:37 PM   #1 (permalink)
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Dear PCOS friends,
My name is Katie and have been diagnosed with PCOS for a year and a half now. I am 23 and was diagnosed right before I turned 22. My husband and I have been TTC since I was 18 years old. I have been prego once, in Nov of 08, but miscarried the day after my first US. I have had several cysts that were over 5 cm removed from both ovaries, and they have recently found more. I have joined several PCOS groups online, and have yet to find the right one for me. I seem to have bad luck finding people who truely care. I have my first appointment with a fertility specialist next week and hope that they will be able to give me encouraging news. My second post op US which found even more strangeness was yesterday, and no one would tell me what was going on, even while they were bringing more people in to look at the screen. they wouldn't even let me see my own problems. I don't think it is fair that you pay them all these money to tell you what is wrong with you and then they can't even do that. I have the right to see my horrible insides don't I? Anyway, I digress into the negative, and I don't wish to be there. I was wondering if anyone else has had cysts removed, and if continuing to go through the pain of surgery is worth doing again? Thanks for all your thoughts. Katie
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Old 03-12-2009, 03:23 PM   #2 (permalink)
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Dear Katie

I think I share in your frustration, just like all of us.
The thing I struggle with most is the frustration, the way this damn PCOS can control my life.

I've only been diagnosed a few months ago, but been trying for that baby for much much longer - just like you. In Jan I had my first cyst - from the clomid - I'm skinny so it makes me hyper stimulate - it was so painful, i was scheduled for a laprascopy - but it burst a day before. i don't know if it was from all the praying - as i am dead scared of an op. For me I feel like i am still at the start of my PCOS journey, i havent had my first positive yet, and how many will I have to go through before i get there. - If I ever get a positive.

I think where ever we are in our journey against PCOS - whether its just diagnosed, cyst, losing weight, ttc, misscarriage,losing our hair, or our first beautiful baby - We will always be fighters! I hate this PCOS, but you know what - God meant for me to have it - I dont know why yet, but there must be a reason - Even if it makes me a fighter - So yes i do think going through all this hell is worth it - because at the end of the day you only get stronger - dont let this beat you! Women are incredibly strong beings, We can overcome all odds.this is going to make all of us better mothers!

The thing that keeps me going at the moment is that God must have a plan - I have stopped my meds - because i feel that if i mess with nature by taking all these supliments - nature kicks back in the form of cysts. - which is soooo painful. I'm not going to sit on my bum either - im out there running for the first time - focussing on improving other areas of my life - i have become fit, i am eating better, i changed career's all because i want to get my life in order to be able to fight better!

i hate this PCOS, but if it werent for it, i would not be out there fighting against it, becoming a stronger person - improving myself and my life. And who knows mabey someday when I've got it all together God will reward us with a baby - as we are then only prepared for him or her.

God has a plan - always believe that! and if you are not religious, believe in fate - Everyone has a path in life - we just dont know where its going to take us.

i have even considered seeing a fortune teller, because I want to know if I will have my babies - but you know what - life is a journey and everything happens for a reason. i might want my babies now, but their souls arent ready yet to come down to earth. ( Hey you babies, up there, get your butts out of heaven already! your Mommies and Daddies are waiting!!)

Patience is a virtue all PCOS cysters need in excess!!

Keep strong, Keep fighting, and most of all keep faith!!! Just believe and it will happen!

Lots of hugs to all of you!!!
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