Hi everyone
I am so glad I found this board and I hope to read as much as possible. I don't know anyone personally who has been diagnosed with PCOS and my family doesn't really understand it, so it is hard for them to support me.
I wanted to share my story and also hopefully get some feedback...
I'm 23 now, and I'm very overweight and do not have a cycle at all. By the time I had turned 17, I had never had one. I was taken to a OB-GYN and saw her assistant, who treated me so rudely I just burst into tears. She made me so ashamed of my weight and my health issues that I swore I'd never go back. Well, she prescribed me medroxyprogesterone but never mentioned a diagnosis of anything. She just said all my bloodwork was normal.
So I take the pills every four months and finally had my first cycles. I never have had one on my own. At age 19, I saw my OB-GYN and she was the one who suggested PCOS based on my symptoms. She didn't want to put me on birth control pills because of my weight and history of migraines. I continued to take medroxyprogesterone with no problems up until September 2006. When I took it that month, again in November, and then for the last time February 2007, I had the scariest symptoms. I had chest pain, racing heart rate, fatigue, and my legs felt like dead weight. After February, I refused to take them anymore because I thought I was either going to have a heart attack or a blood clot.
I didn't go to the doctor for a long time after February because I unexpectedly lost my insurance (and still have none). I finally got to see an endrocrinologist in September who prescribed me 500 mg Met, twice a day. I've yet to take it because I'm just so scared of it. He said my blood sugar may drop a little but it shouldn't drop to dangerous levels (I currently have normal blood sugar levels). At the same time, I know that Met could help me manage so many things like induce cycles, hair growth, acne, and weight loss. I guess I have really no other choice than to try it - I can't take BCP, can't take progesterone pills, so what other options do I have? I haven't had a cycle in 8 months and I know that is so unhealthy.
I don't have any other health problems (other than panic disorder); I've been checked for Cushings and Hypothoidism and everything is okay there. All my hormone levels come back normal, but I know that can be misleading.
The weird thing is that I do have a family history of cycle problems...my great-grandmother had to have a surgery in the early 1900s in order for her to be able to have children, my grandmother had irregular periods up until she had kids, and my mom also had irregular periods. She was told that she'd never have kids but she had 3 and her periods became normal once she had kids. However, the big difference between me and them is that they never had the other symptoms I have: uncontrollable weight gain aound the belly area, excess hair growth, and acne. They also had periods even if they were irregular - I don't have anything. I used to have the symptoms of a period ever month (cramps, mood swings, stomach issues), but now I don't have anything.
So I guess I will try the Met. It doesn't look like I have any other options.
Sorry this was so long...this is the first time I've been able to just vent about my story!