Links | Links 2 | Links 3 | Links 4 |

Go Back   PCOS Message Board > What's on Your Mind About PCOS? > Newbie Issues...

Reply
 
Thread Tools
Old 01-07-2007, 02:21 PM   #1 (permalink)
Blessed
 
Jashobeam's Avatar
 
Join Date: Oct 2004
Location: Piedmont Triad of NC, USA
Posts: 18,876
My Mood:
Jashobeam has a reputation beyond reputeJashobeam has a reputation beyond reputeJashobeam has a reputation beyond reputeJashobeam has a reputation beyond reputeJashobeam has a reputation beyond reputeJashobeam has a reputation beyond reputeJashobeam has a reputation beyond reputeJashobeam has a reputation beyond reputeJashobeam has a reputation beyond reputeJashobeam has a reputation beyond reputeJashobeam has a reputation beyond repute
Points: 341,727.82
Bank: 869,180,479.29
Total Points: 869,522,207.11
Default

The Newbie Road Map

Here are some questions with answers to get you started on your PCOS treatment journey. Kat (the owner of this site) has been researching PCOS for years, and these links are mostly ones she has posted. Since most newbies have the same questions, I thought a road map might help.

What do all these abbreviations and medical terms mean?

Updated!!! Abbreviations For Newbies:)
Glossary of medical words and terms seen here at SoulCysters

I don't have all the symptoms of PCOS; do I still have it?

5 Types of PCOS
http://www.soulcysters.net/women-eve...ight=diagnosis
Diagnosing PCOS in women who menstruate regularly
Ovulatory Polycystic Ovary Syndrome A New Disorder
Making Pcos Less Confusing

Who do I need to go to to get a diagnosis and what tests will my doctor do?

Physicians now have a specific test for PCOS
Understanding Tests and Hormone Levels for PCOS
http://www.soulcysters.net/pcos-mark...ight=diagnosis
http://www.soulcysters.net/handy-ser...o-gyns-113156/
PCOS: Get a Diagnosis
Other hormone disorders!
http://www.soulcysters.net/guide-und...ts-pcos-63885/ (http://www.inciid.org/faq.php?cat=co...arymed&id=2#81)
Preparing for Your PCOS Consultation: Questions to Ask Your Doctor
http://www.soulcysters.net/signs-pco...ight=diagnosis
Myth - There Is A Test For Poly-cystic Ovary Syndrome
How to diagnose Insulin Resistance: http://www.medreviews.com/cme_progra...q.asp?nav=6#02

I don't have cysts, can I still have PCOS?

Ultrasound alone does not diagnose PCOS - Patient Oriented Evidence that Matters
Diagnostic Criteria Refined And Risks Spelled Out For Polycystic Ovary Syndrome
Study suggests hirsutism is a more common sign of PCOS than menstrual dysfunction
http://www.soulcysters.net/article-i...tterns-239861/

I have fertility problems. Can I get pregnant? What do I need to know before I get pregnant?

http://www.soulcysters.net/chance-pregnancy-pcos-may-increase-age-273702/
http://www.soulcysters.net/5-weight-...n-hair-138507/
PCOS, Pregnancy & Miscarriage rates
Results of small study: metformin betters pregnancy outcomes in PCOS
http://www.soulcysters.net/breast-ca...-mentd-131043/
TTC FAQ and links. Lots of valuable stuff - check it out!
Weight Not a Factor Among Women Using Fertility Technologies to Become Pregnant
http://www.soulcysters.net/trying-conceive/
Info RE Metformin & Pregnancy: Given by my OB
Warning Signs for Incompetent Cervix and Pre Term Labor
Real-life, Plus-sized pregnancy storyies from women with PCOS
Weight and Fertility: FREQUENTLY ASKED QUESTIONS
Polycystic Ovary Syndrome and Breastfeeding
Do you have hypoplastic breasts (tubular breasts)?
Polycystic ovary syndrome: a connection to insufficient milk supply?
New & Improved NPC (Natural Progesterone Cream) Info!
***Progesterone Information***
Low Levels of Two Proteins Raise Miscarriage Risk (in women with PCOS)
Miscarriage Rate in PCOS Falls to 12% With Metformin
Women with polycystic ovary syndrome gain regular menstrual cycles when ageing
Metformin May Be Only Drug Needed for Ovulation in PCOS
Polycystic Ovarian Syndrome - What chance of pregnancy?
What should my hormone levels be? Excellent, easy-to-read chart
IR causes misscarriage? Article: Metformin could improve pregnancy outcomes in wider range of women with IR"
INOSITOL, PCOS AND FERTILITY: inexpensive B vitamin can help a woman get pregnant
http://humrep.oxfordjournals.org/cgi/content/full/19/6/1323
http://content.nejm.org/cgi/content/full/358/19/2003

What medical problems are women with PCOS at risk for? Do I still need to treat my PCOS symptoms even if I am not trying to get pregnant?

http://www.soulcysters.net/genetic-link-between-pcos-obesity-found-274561/
ATTENTION: If you read NOTHING else this year on PCOS, Diabetes, and genetic links..
PCOS: Current Understanding and Long-term Consequences
Study Show Increased Risk of Heart Disease in Women
Women with PCOS at Increased Risk for Liver Disease
Obesity and insulin resistance in PCOS
2 Out of 3 Women With PCOS Suffer from Liver Disease
Mothers Of Women With PCOS Have Increased Risk Of Cardiovascular Disease
The Importance of Diagnosing the Polycystic Ovary Syndrome
5% or fewer of endometrial cancers occur in women under 40, the majority have PCOS
Depression, PCOS linked in study
Psychiatric illness may go undetected in a proportion of PCOS patients
PCOS: Increased risk of cancer?
PCOS, autoimmune thyroiditis link studied: thyroiditis risk up threefold
Prevalence of benign breast disease in women with polycystic ovary syndrome
Polycystic ovary syndrome and gynecological cancers: is there a link?
PCOS patients studied as to markers for chronic inflammation
http://jcem.endojournals.org/cgi/content/full/86/3/1175
SURVEY: What else have u been diagnosed with?
SURVEY: What else have u been diagnosed with? Part 2
Young, nonobese PCOS patients have cardiac risk
Ovary Syndrome May Increase Risk of Vascular Disease
Hyperinsulinemia, Not Ovaries, at Core of PCOS
http://www.soulcysters.net/polycysti...rtility-63281/
Experts Still Debate the Long-Term Cardiovascular Effects of PCOS
Links Between PCOS and Autoimmune Disorders?
Suicide attempts 7 times more common in PCOS study

How did I get PCOS?

--Prenatal theories:
Polycystic Ovary Syndrome Linked to Gestational Development
Lasting legacy of low birthweight
Developmental origins of polycystic ovarian syndrome
PCOS is from a birth defect?!?!?!
Excess Weight During Pregnancy May Trigger PCOS in Daughters
Life in the womb may hold key to later infertility problems - PCOS discussed
Pregnancy and birth factors may determine likelihood of babies with PCOS

--Genetic theories:
http://www.soulcysters.net/relations...s-pcos-159408/
Genetics of polycystic ovary syndrome: searching for the way out of the labyrinth
Genetics of polycystic ovarian syndrome
A gene for PCOS?
Insulin resistance in the sisters of women with polycystic ovary syndrome
Brothers of women with polycystic ovary syndrome
Women With PCOS, Siblings Have Same Gene Defect
"Evidence for a genetic basis for hyperandrogenemia in polycystic ovary syndrome "
PCOS and Genetics (short easy read)
Screen PCOS patients' sisters, mothers for diabetes

--Medicines:
Moms who took DES: http://www.obgyn.net/displayarticle....icles/des_1013
Grandmoms who took DES: http://www.desaction.org.au/overview.htm
Discontinuing valproate may reverse PCOS in some women
http://www.cdc.gov/des/consumers/abo...offspring.html
PCOS & Epilepsy Medications
Valproate Use May Lead to Polycystic Ovarian Syndrome
Many Women Treated Off Label With Antiepilepsy Drugs - pcos mentioned

--Obesity:
PCOS Associated w/ Morbid Obesity May Resolve after Bariatric Surgery
Childhood obesity has led to an epidemic of young girls suffering from PCOS

--Other:
Pancreatic beta-cells, play an important role role in the existence of pcos
Genetic and non-genetic theories on the etiology of polycystic ovary syndrome
PCOS is a very OLD syndrome!

I'm worried about my child having PCOS. Is there anything that can be done for them now?

http://www.soulcysters.net/quick-lin...-guide-180907/
Your child and PCOS, info and support thread
Oral contraceptives increase insulin resistance in adolescent PCOS
IR in Puberty may signal PCOS in Daughters of Cysters
Early Signs of PCOS in Daughters of Women with PCOS


My doctor says I should get my tubes tied or get a hysterectomy or use birth control pills to cure PCOS. Is this true?

Alternative treatments for TYPE 1 and TYPE 2 PCOS
Toward a new approach: primary and preventive care of the woman with polycystic ovari
Are you considering a hysterectomy? Read this first!
Hysterectomy?????
http://www.soulcysters.net/any-cyste...ectomy-133969/
Hysterectomy???
Birth control pills and PCOS
Medications, surgery, and weight reduction are common strategies to manage this syndr
Hysterectomy
Hysterectomy?

Many days worth of reading (lists of links about PCOS):

Links to PCOS articles on: ALL topis from Adrenals, to Genetics, to EVERYTHING!
TONS of links to PCOS research...TONS, TONS, TONS!!!
A LOT of PCOS Links...
HUGE list of PCOS articles
1500 Free Articles on PCOS
PCOS articles from the past few years
Good Link to research articles
Link to other PCOS studies
Hirsutism @ eMedicine
ESSENTIAL Resource for Researching and Staying Up-to-Date on PCOS!
Get your printer ready! EXCELLENT PCOS Newsletter from University of Toronto

Board features:

USER REP: Everything you need to know about giving and receiving
How to add Pictures in Signature, Mood Ticker, and Signature Tickers
Reputation Points, Ribbons, & Gifts Instructions
Ever wonder why your post was moved?
Attention: Internet and SoulCysters Privacy Issues

Last edited by Jashobeam; 03-19-2009 at 07:26 PM.
Jashobeam is offline   Reply With Quote

Sponsored Links
Old 01-10-2007, 03:13 PM   #2 (permalink)
Uber-Busy Mom to 3 Boys!
BayGirl's Profile Fields
 
BayGirl's Avatar
 
Join Date: Feb 2003
Location: NE Raleigh, NC
Posts: 11,871
My Mood:
BayGirl has disabled reputation
Points: 32,838.46
Bank: 2,489,131,301.28
Total Points: 2,489,164,139.75
Default

wow - you put in some time for this! good job! I am sure the newbies will appreciate it!
__________________
Tara & Tom have been married since 10/28/2001.
They have 3 boys: Cole 5/18/2006, Hunter 5/22/2006 & Owen 02/11/2008.
They recently added 2 furball kitties to the mix - Zoe (4 years) & Sushi (currently 9 weeks)

To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
BayGirl is offline   Reply With Quote
Old 02-04-2007, 11:10 AM   #3 (permalink)
meow ma
 
Chick Pea's Avatar
 
Join Date: Jan 2007
Location: AZ
Posts: 144
My Mood:
Chick Pea is a splendid one to beholdChick Pea is a splendid one to beholdChick Pea is a splendid one to beholdChick Pea is a splendid one to beholdChick Pea is a splendid one to beholdChick Pea is a splendid one to behold
Points: 355.36
Bank: 4,134.78
Total Points: 4,490.14
Default

wow! Thanks so much for this thread!!! You rock!!!
__________________
LA (30)
To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Rich (33) +
To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
x 4 =
To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.

1500mg Metformin
120mg Soy Isoflavones
100mg Zoloft
TTC #1 since 5/01

To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Chick Pea is offline   Reply With Quote
Old 02-05-2007, 02:47 AM   #4 (permalink)
Loving our 2 boys!!
 
Sarhick's Avatar
 
Join Date: Jan 2007
Location: Texas
Posts: 330
My Mood:
Sarhick has a reputation beyond reputeSarhick has a reputation beyond reputeSarhick has a reputation beyond reputeSarhick has a reputation beyond reputeSarhick has a reputation beyond reputeSarhick has a reputation beyond reputeSarhick has a reputation beyond reputeSarhick has a reputation beyond reputeSarhick has a reputation beyond reputeSarhick has a reputation beyond reputeSarhick has a reputation beyond repute
Points: 5,392.56
Bank: 17,407.86
Total Points: 22,800.42
Default

Quote:
Originally Posted by Chick Pea View Post
wow! Thanks so much for this thread!!! You rock!!!
AMEN to that... thanks so much!!
__________________
Sarah (29) DH (30)
Married 4-28-06
Dx PCOS - 1996




To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.







To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.

Sarhick is offline   Reply With Quote
Old 02-06-2007, 06:11 PM   #5 (permalink)
Big Mother Hen :)
 
Danusmom's Avatar
 
Join Date: Jan 2007
Location: East of Japan
Posts: 930
My Mood:
Danusmom has a reputation beyond reputeDanusmom has a reputation beyond reputeDanusmom has a reputation beyond reputeDanusmom has a reputation beyond reputeDanusmom has a reputation beyond reputeDanusmom has a reputation beyond reputeDanusmom has a reputation beyond reputeDanusmom has a reputation beyond reputeDanusmom has a reputation beyond reputeDanusmom has a reputation beyond reputeDanusmom has a reputation beyond repute
Points: 21,671.57
Bank: 219,455.62
Total Points: 241,127.19
Default

Wow!!! Thanks for taking the time to compile this info. Hate to admit my age, but I was DX ~30 years ago with Stein-Leventhal Syndrome. I had no idea there was more than one type of PCOS. Not sure which category I fall into. With all the info I'm gleaning from this forum, I'll have some more educated questions for my Endo in a couple of weeks.
__________________
Peace be with you all
To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.

To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.

To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.


No more Pampered Chef
To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.

I'm helping a friend with her business:

To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.


Just a gardening-chef-domestic engineer-SAHM who helps out in DS's school just about everyday (I'm there for the big bucks -LOL! )
Danusmom is offline   Reply With Quote
Old 03-23-2007, 04:53 AM   #6 (permalink)
Registered User
 
MisisB's Avatar
 
Join Date: Mar 2007
Posts: 1
MisisB is on a distinguished road
Points: 236.65
Bank: 0.00
Total Points: 236.65
Default

thanks you for this thread!!! this is really helpful considering that i just got diagnosed with PCOS by my ob-gyn and i'm planning to go see an endocrinologyst soon.
MisisB is offline   Reply With Quote
Old 04-03-2007, 12:55 PM   #7 (permalink)
Feeling so blessed
 
crkemm's Avatar
 
Join Date: Apr 2007
Location: Wisconsin
Posts: 1,963
My Mood:
crkemm has a reputation beyond reputecrkemm has a reputation beyond reputecrkemm has a reputation beyond reputecrkemm has a reputation beyond reputecrkemm has a reputation beyond reputecrkemm has a reputation beyond reputecrkemm has a reputation beyond reputecrkemm has a reputation beyond reputecrkemm has a reputation beyond reputecrkemm has a reputation beyond reputecrkemm has a reputation beyond repute
Points: 15,990.24
Bank: 1,535,414.82
Total Points: 1,551,405.06
Default

Fantastic Thread!!!!!!! Thank You!!!!!
__________________
Erin (27)
Dx with PCOS 3/2007
Conceived DS on Clomid/Metformin. BFP 6/1/07!
Conceived baby #2 with no meds!! BFP 3/13/09
EDD 11/23 Its a GIRL!!!!



To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.




To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
crkemm is offline   Reply With Quote
Old 05-02-2007, 05:38 PM   #8 (permalink)
Registered User
 
Kimberly H's Avatar
 
Join Date: May 2007
Location: Nashville, TN.
Posts: 67
My Mood:
Kimberly H is on a distinguished road
Points: 7,317.24
Bank: 5,949.30
Total Points: 13,266.54
Default

Thank you for all of the info....
I am so glad I found this site and all the support that comes with it. I have met some wonderful people here.
__________________
Kimberly
To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.


DX 1997
Clomid 50mg 2/2008
Clomid 100mg 3/2008
w/Novarel on CD 14
BFP 4/18/2008!!!!!!!!!!!!!
EDD 12/25/2008
Prenatal Vitamins


To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Kimberly H is offline   Reply With Quote
Old 05-04-2007, 08:45 PM   #9 (permalink)
Registered User
 
LeslieLou's Avatar
 
Join Date: May 2007
Location: Michigan
Posts: 1
My Mood:
LeslieLou is on a distinguished road
Points: 217.59
Bank: 0.00
Total Points: 217.59
Thumbs up You rock...

Quote:
Originally Posted by Danusmom View Post
Wow!!! Thanks for taking the time to compile this info. Hate to admit my age, but I was DX ~30 years ago with Stein-Leventhal Syndrome. I had no idea there was more than one type of PCOS. Not sure which category I fall into. With all the info I'm gleaning from this forum, I'll have some more educated questions for my Endo in a couple of weeks.

"Thank you" is right. I am so glad I happened upon this site. I have had the symptoms of PCOS my entire life and was only just diagnosed this week. It is comforting to know I am not the only one who has apparently had a string of inept doctors. Although, it is disturbing to discover that these people we have trusted with our medical well-being could be so clueless. I am sure I am not the only one who feels a sense of betrayal, but at least now I know what I am up against, and that I am not alone.
I look forward to visiting this site often, and I thank you again for all the information.
__________________
LeslieLou -
LeslieLou is offline   Reply With Quote
Old 05-05-2007, 03:12 AM   #10 (permalink)
Registered User
 
muskaan's Avatar
 
Join Date: May 2007
Posts: 11
muskaan is on a distinguished road
Points: 1,940.00
Bank: 0.00
Total Points: 1,940.00
Default

hey..! excellent work .. Thannnnnks so much for putting it all together..its fantabulous.....!

God bless u!
muskaan is offline   Reply With Quote
Old 05-06-2007, 07:00 PM   #11 (permalink)
Registered User
JusNikkiD's Profile Fields
 
JusNikkiD's Avatar
 
Join Date: May 2007
Location: Louisiana
Posts: 2
JusNikkiD is on a distinguished road
Points: 235.46
Bank: 0.00
Total Points: 235.46
Thumbs up Not Alone

Quote:
Originally Posted by MisisB View Post
thanks you for this thread!!! this is really helpful considering that i just got diagnosed with PCOS by my ob-gyn and i'm planning to go see an endocrinologyst soon.

I'm new here to be exact this is my first day... I too was recently diagnosed with PCOS (March 2007) by my ob-gyn and it completly turn my life upside down. Just a month before I got engaged so now I'm planning a wedding and a family all at one time! At first I was upset, often asking the question, "WHY ME?" but now I am slowing finding peace by being a member of site. I am not alone anymore and that's feels good to know that "I AM NOT ALONE!" Thank you for this thread and god bless you for all your hard work with findind us answers.....


Nikki
JusNikkiD is offline   Reply With Quote
Old 05-06-2007, 07:05 PM   #12 (permalink)
Registered User
JusNikkiD's Profile Fields
 
JusNikkiD's Avatar
 
Join Date: May 2007
Location: Louisiana
Posts: 2
JusNikkiD is on a distinguished road
Points: 235.46
Bank: 0.00
Total Points: 235.46
Thumbs up Not Alone

Quote:
Originally Posted by MisisB View Post
thanks you for this thread!!! this is really helpful considering that i just got diagnosed with PCOS by my ob-gyn and i'm planning to go see an endocrinologyst soon.

Hello I'm new here!!! To be exact this is my first day... I too was recently diagnosed with PCOS (March 2007) by my ob-gyn and it completly turn my life upside down. Just a month before I got engaged so now I'm planning a wedding and a family all at one time! At first I was upset, often asking the question, "WHY ME?" but now I am slowing finding peace. Gosh, I am so glad I found this site! I am not alone anymore and that feels soooooooooooo good to know that "I AM NOT ALONE!" Thank you for this thread and god bless you for all your hard work.

Let Go & Let GOD......

Nikki
JusNikkiD is offline   Reply With Quote
Old 05-18-2007, 05:41 AM   #13 (permalink)
Registered User
 
stellarnix's Avatar
 
Join Date: May 2007
Posts: 675
My Mood:
stellarnix is a splendid one to beholdstellarnix is a splendid one to beholdstellarnix is a splendid one to beholdstellarnix is a splendid one to beholdstellarnix is a splendid one to beholdstellarnix is a splendid one to beholdstellarnix is a splendid one to behold
Points: 5,483.24
Bank: 1,041,001.45
Total Points: 1,046,484.69
Default

Thanks much everyone!!! I have learned more here in 2 days than I have in the 8 years I have had PCOS.
stellarnix is offline   Reply With Quote
Old 06-16-2007, 04:11 PM   #14 (permalink)
Registered User
 
drgnlvr's Avatar
 
Join Date: Jun 2007
Posts: 10
My Mood:
drgnlvr is on a distinguished road
Points: 373.87
Bank: 0.00
Total Points: 373.87
Default

thanks for all the wonderful info..
drgnlvr is offline   Reply With Quote
Old 06-16-2007, 09:24 PM   #15 (permalink)
SoulCyster #1
KatCarney's Profile Fields
 
KatCarney's Avatar
 
Join Date: Nov 2000
Location: USA
Posts: 21,785
Blog Entries: 1
My Mood:
KatCarney has a reputation beyond reputeKatCarney has a reputation beyond reputeKatCarney has a reputation beyond reputeKatCarney has a reputation beyond reputeKatCarney has a reputation beyond reputeKatCarney has a reputation beyond reputeKatCarney has a reputation beyond reputeKatCarney has a reputation beyond reputeKatCarney has a reputation beyond reputeKatCarney has a reputation beyond reputeKatCarney has a reputation beyond repute
Points: 2,399,410.25
Bank: 0.00
Total Points: 2,399,410.25
Default

Quote:
Originally Posted by Lutasha View Post
I'm so glad that I found this site! I was diagnosed with PCOS today although I was pretty sure already. I just took my first dose of metformin so hopefully it will help and I won't get too sick...
We're glad you've found us, too!
__________________
Hey, SoulCysters! Need to eat more veggies, but can't find recipes??


To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.

KatCarney is offline   Reply With Quote

Sponsored Links
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is On
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Points Per Thread View: 1.00
Points Per Thread: 15.00
Points Per Post: 5.00

» Watch PCOS Videos

PCOS Weight Loss Journey...
I began my new life on March 01 2007I have lost 102 pounds to date.I did NOT have surgery, go on a ...

{widget place holder} {widget place holder}
 
Powered by vBadvanced CMPS v3.0.1

All times are GMT -3. The time now is 08:58 PM.


Powered by vBulletin® Version 3.7.0
Copyright ©2000 - 2009, Jelsoft Enterprises Ltd.
Search Engine Friendly URLs by vBSEO 3.1.0
copyright 2002-2004