Vickie-
Nice to meet you. Like you, I am new to this site but was diagnosed years ago (I was 19) and told basically nothing other than, make sure to take BCP so you have a period and it'll be tough to get pregnant, if at all. (Uh, gee thanks!) Not really concerned with children at that time, I pretty much did what the dr said. I was pleasantly surprised with a pregnancy in 95 but miscarried 3 months later. I am now married to a wonderful man and we would both very much like to have a child.
It's great to have this resource here and others. Now so many things seem to make sense. And, it's nice to know there's the support of so many others out there.
Best of luck to you.
-Mellie