I had to go away and draft an intro post because there are so many things in my head at the moment. Someone I know from another forum suggested I come over here and look. So I did. I – and my mum, who is more right than I credit her for – has suspected I might be PCO since I was about 18/19 (1993) although I never knew what to ask and I just grew to think I must just be a bit strange. I also have vaginismus (although I am successfully treated for this – after 8 years of not knowing what it was) and so when I fell pregnant in early 2006, just four months after finishing treatment and on the second try I was totally amazed. I miscarried at 6 (ish) weeks and only began to ask questions when I consistently didn’t conceive again. In November 2006 I asked my doctor to please run my thyroid and blood hormone again…when I told her what it was for, she ran a whole panel on me. They found high prolactin, and also ran a “day 21” progesterone which couldn’t confirm I was ovulating. She referred me to the hospital and I have just come out of five months of various test and scans. I had an MRI to rule out prolactinoma (benign pituitary cyst, but a terrifying thought.) but my prolactin levels dropped consistently until they are now normal. I have also had an ovarian ultrasound (with a repeat next Monday) and when I saw one of the consultant’s team two weeks ago, he said that in his opinion, he considered me to be PCO. I have irregular cycles, hirsutism and fertility issues. I also have the mood swings from hell, achy joints and am consistently tired no matter what I do. I was considerably heavier, but I have no idea whether my weight gain was due to hormonal issues or a depressive episode I had. My first scan showed (I think) a slight “beaded” appearance to my ovary, and a 3cm cyst on my left. (We called him Cedric). My periods are fairly regular – although my cycle pattern isn’t regular, and I’m still not sure I’m actually ovulating half the time. The more I read, the more makes sense. For a bit, that was energising and empowering me… things now are just depressing me. The more I read, the more things make sense, which is good….but the more I read, the more I think this is what I have, what I have had for a long time, and what explains ………………everything. I am waiting for a prescription for metformin from the hospital. I am sore, and confused and hurting. I can’t believe – after 8 years waiting for diagnosis on the first thing – that there is more that is wrong with me. At the moment I feel like a defective, faulty human being and I think I need to go and book another boxing lesson…………
I'm sorry it took so long for you to get a dx. I went through a period of excitment that I finally knew "why," but I remember reading about PCOS and I froze on the word "infertility." I've always wanted kids and to see THAT word...it made me so sad. I'm not married, and so not trying to get pregnant, but the question remains...can I or can't I?
At least you're getting help now, and with the met you will feel a little better. I don't know if any of us really come to terms/accepts this, but this is what we have, and all we can do is deal with it. Not very encouraging, is it?
Just wanted to say hello and welcome. Like you, it took me many years to finally get a diagnosis, and as much as a relief it was to know what i had, knowing all the problems that come with it can be overwhelming and depressing. Glad you found this site, i'm sure you'll find lots of info and support here, let us know how you're making out!
welcome to sc i know - it can take YEARS to get diagnosed with pcos. That's what i found anyway. It's so lovely to meet you . My ovaries are called Olive and Olga by the way
eva