Not diagnosed..yet

kaat87 · 07-15-2009, 08:52 AM

Hi. New here but I've been reading this amazing site for some time now.
I am not diagnosed but I am waiting for my blood work results. It's been more than a month now.. As you can imagine it's really frustrating.
I am 22 years old and I've been trying to find out whats wrong with me for about three years. Doctors weren't really helpful. The first symptom I got were severe acne cyst when I was 19. It effected me emotionally, socially and basically I became very insecure and shy around people. After two years I was put on BC and an antibiotic and that cleared up but the scars remain. I tried losing weight for two years with no luck. I became an exercise freak and healthy food expert but I kept losing the same two pounds over and over again. Then I got migraines. Very severe ones. I ended up in the ER once and I was completely exhausted by them, I was unable too function for days at a time. So I went off the BC and it actually helped the migraines but that's when it all started. I have no period without BC. My acne is back. My weight is out of control (I am gaining everything around my belly which is unusual for me since I always had a skinny upper body and curvy legs, I eat normal portions of healthy food btw). I have extremely greasy hair and my hair started falling out. I also noticed my once perfect vision is impaired somehow but I can't quite explain what's wrong (I'm seeing an eye doctor tomorrow). This last week my stomach hurts really bad but I have to work all the time and I didn't have time to see my doctor. It started as a dull ache in my ovaries but yesterday my whole stomach was bloated and hard. I have no fever,constipation or diarrhea. It's not very bad pain but it is constant and I am worried.
I had some blood test done in the past. My TSH is 4.15 (a bit too high but the doctors don't bother) and my T3 and T4 are on the low normal side, thyroid antibodies are fine. Fasting glucose is also normal. I was always a healthy kid and now I feel like sh*t too be quite honest.
I am sick and tired of listening this is all normal. I paid 80€ to this endo who didn't even take me seriously. At least she ordered the blood work so that's something. So now I am waiting for my results, running to the mailbox every morning and nothing.. They said it could take up to a month and a half. It's been a month and a week now. I hope I will be diagnosed with something because at least I'll know what it is and I can start treating it!
So this is more venting on my part but I would just like to say that I am glad to see I am not alone and it is possible to heal my body and feel healthy again. Have a great day everyone!

Kaat

Eva37 · 07-15-2009, 05:52 PM

im sorry you are having such a rough time right now. welcome to s c

there is a link to the newbie roadmap in my siggie for you
eva

r3smommy · 08-19-2009, 10:28 AM

Hi, I was just wondering if you were ever diagnosed. Our stories are very similar. I hope you're at least getting some relief and feeling normal again!

kaat87 · 08-21-2009, 10:06 AM

Hi r3smommy..
Well I got diagnosed and I wish it was PCOS really.. I got my hormone results back and my prolactin wasn't normal so they told me to get an MRI of my head to check my pituitary gland for adenomas (tumors) and they found I have a tumor the size of a golf ball on my pituitary gland (which is the size of a pea). The pressure of this macroadenoma caused my ''migraines'' and vision problems, the raised prolactin messed up my hormones. It's a non-secreting tumor so that means my only option is surgery. I'm seeing the best neurosurgeon for this type of surgery in two weeks and will probably have the operation in September.. I'm really scared. I'm only 22 years old. This shouldn't be happening

I hope you don't think you have a tumor too now that I've told you my situation.
All I can tell you about this whole thing is that I knew something was wrong with my health this whole time. I was persistent enough to get to the bottom of this. Sure, I started doubting myself, thinking this was all just my imagination, that I became a hypohondriac.. But I got my answer and I hope this operation will help me.
I hope you will get diagnosed and feel better.
Kaat

Kristiana · 08-23-2009, 04:17 PM

That sounds horrible, Kaat! I'm sorry you are having to go thru so much, but good for you for being persistant about your health!! I hope everything goes well with your surgery and maybe then you can start feeling better. GL girl! Hang in there!

r3smommy · 08-24-2009, 12:07 PM

Kaat-
Im sorry that you ended up having a tumor, but im glad that you finally got an answer! I really am praying that your surgery goes well and things start to get better for you. I am going in for my blood work wednesday morning so I'll get an answer in about a week. I'll post again when I get the results.
Try to stay positive during this and remember we're all here for you!!!