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Old 06-18-2009, 04:44 PM   #1 (permalink)
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Default PCOS, Endo, AND Thyroid problem!!!

hey guys. i have been a member here for awhile. Been through a lot here lately and figured i would give a very long update as to what im going through. I was diagnosed with PCOS almost 2 years ago. We had tried by ourselves for a year then turned to clomid for 4 cycles. Turns out I had taken 3 cycles for nothing. The doctor did not do what she was supposed to...i did not have ultrasounds or bloodwork. So i basically went crazy for 3 months (if youve taken clomid you know why i say that). I was having a lot of symptoms of endometriosis. looked it up online and found that 99% of the symptoms was the same as what i was experiencing. I started my period the first part of april and by may i was still on it. so i went back to my gyno and she sent me to a fertility specialist. within one visit i found out i had thyroid problems and she did a biopsy and found i had a polyp on my uterus as well. She scheduled me to have the polyp removed and a lap to see if i had endo (sort of like a 2 in 1 surgery). I did have endometriosis and it had caused some scarring on my ovaries. that was 2 weeks ago when i had the surgery so i am on cycle day 3 of my period today and supposed to start taking femara (or however u spell it) today. My doc seems very optimistic and she has a great reputation for helping women get pregnant. I guess i just feel like the world is telling me im never going to be a mom. to have pcos, endo, a polyp and a thyroid problem it was like wow, no wonder i have never gotten pregnant. basically everything that causes infertility is happening to me. the doc said i would probably have to have the surgery again at some point because if im already producing polyps i will likely produce more in the future and of course endo can come back as well. I just need some optimism i suppose and would like to hear some uplifting stories because right now i feel like my body is my enemy. please pray for me and my husband as we're going through this journey of trying to become parents and PLEASE if you have any good stories i would love to hear them.
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Old 06-26-2009, 10:44 AM   #2 (permalink)
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I have a successful story for you! Warning: this got a bit long winded.

I have PCOS, Endo (though only stage 1) which messed up my tubes and hypothyroidism. I got diagnosed with the thyroid issues in May of 07. As soon as I started getting treated for that I started getting pregnant. I had a chemical in June of 07. I think I got diagnosed with PCOS in August of 07 or so. My RE was hesitant to diagnose me with it because I'm not overweight, but when they tested my testosterone and it was a little high and did a glucose tolerence test she agreed to give me metformin (but only 500mg). I had a m/c at about 7 weeks in October of 07. I didn't think it was just a coincidence like my RE did, so I asked for pregnancy loss testing. I didn't get it cause my thyroid was still out of whack during the chemical and it was my first m/c. I had another chemical in June of 08. She then decided to do an HSG in July of 08 and my right tube was completely blocked and my left tube was mostly blocked. We did a lap in August of 08 and that's when she discovered the endo and removed as much as she could. She repaired my tubes. I then asked again about recurrent pregnancy loss testing and she finally agreed to do it. They found that I have 2 clotting disorders and antiphosphilipid antibodies. when I got pregnant again in Sept right after the surgery I was put on lovenox, but it turned out to be another chemical. The next cycle was the successful one though. Even though my RE didn't believe that lovenox would help with implantation (what she believed was my causing my chemical pregnancies) I went ahead and started the lovenox injections I had left over from the previous chemical a few days after ovulation. Oh, and she also put me on progesterone even though my progeserone was never low I had some spotting after o most cycles. I got a BFP 10DPO and am going to be delivering our son on Wednesday.

Advice I would like to give you or anyone else that is TTC is to not be afraid to ask for what you want. I think when it came down to it the fear of never having children outweighed my fear of getting told "no" by a doc when I asked for testing or anything else. The fear of never having kids really brought out the fighter in me and motivated me. If you think you might have certain conditions it can't hurt to test for them. I had to ask for the glucose tolerence test, estrogen and testosterone tests and several times for the recurrent pregnancy loss testing. If I hadn't asked for those test who knows how long it would have taken to get them. My doc was usually willing to accomodate those eventually. I never gave up searching for answers. I did also have some small polyps that they took care of during the lap surgery. Good luck!
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Me - Renee (31) DH - Joel (35) 3 Feline kids (7)
Dx - Hashimoto's, PCOS, Sjorgen's, MTHFR, Antiphosphilipid, Factor V Leiden
Meds - Armour, Baby aspirin
3 Chemicals (06/07, 06 & 10/08) & 1 m/c (10/07)
DS - born 7/1/09, 7lbs 8oz


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Old 06-30-2009, 05:25 PM   #3 (permalink)
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Thanks for replying. I just got back from my doc appointment today. This is my 14th cycle day and we did an ultrasound and i have a "nice sized egg" (which was her exact words lol). She gave me the trigger shot which has to be administered tonight, so please everybody wish me luck. I just hope and pray that it works and if not this cycle then soon. It helps so much to read other peoples stories. Even though I dont wish this on anyone, it does help to know that there are others going through similiar things. Congrats on the pregnancy and youre an inspiration.
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Old 06-30-2009, 06:23 PM   #4 (permalink)
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Good luck and have fun BDing! I hope the 2ww goes by fast for you.
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Me - Renee (31) DH - Joel (35) 3 Feline kids (7)
Dx - Hashimoto's, PCOS, Sjorgen's, MTHFR, Antiphosphilipid, Factor V Leiden
Meds - Armour, Baby aspirin
3 Chemicals (06/07, 06 & 10/08) & 1 m/c (10/07)
DS - born 7/1/09, 7lbs 8oz


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Old 06-30-2009, 09:36 PM   #5 (permalink)
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Good luck! I hope this is the right cycle for you, and I can't wait to be where you are!!!
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DX PCOS and endo 5/2009
Lap Surgery 6/22/09 to remove endo and 6cm cyst on left ovary.

BFP - 10/2/09!


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Old 07-21-2009, 03:24 PM   #6 (permalink)
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prayn4miracle, please do update on your progress. I can't really offer any advice as I've only just been dx'd PCOS, but I just wanted you (and Renee3600) to know I've got two if not all three of the same conditions; dx'd hypothyroid 8 years ago, dx'd PCOS today, and have been refered for a lap for suspected endometriosis although they're not sure what stage... So I guess I'm in the same boat and both you and Renee have my sympathies. I have no intention yet of TTC, but wish you the best of luck with yours.
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Old 07-26-2009, 11:29 PM   #7 (permalink)
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Good Luck!
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Old 07-30-2009, 01:52 PM   #8 (permalink)
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I have another succes story for you. I was dx with endometriosis when I was 20 - six months after I got married. About a year before that I was dx with an uterine deformity also. I had two laps in about 2 years (during which they also removed at least one uterine fibroid the size of a golfball) and the dr told me that I might want to have children if that was something I was thinking about rather than waiting. So we decided to try and I got pg within 2 months after going off bcp's with my oldest daughter. Then timing just wasn't right for us to have another child until our oldest was 4 yo. We tried by ourselves for awhile and then I spent two years going to dr's nearly all the time - at least if felt like it. I had another lap and they discovered my ovaries were covered in cysts. I did six months of lupron and then I wasn't having a regular AF so they sent me to an RE. The dx me with PCOS and started me on Metformin. I was also taking Chaste berry root (Vitex). I had a regular cycle and got pg with our 2nd dd six weeks later. She is now almost 7. So it can happen. I know sometimes it seems like someone is telling you that this isn't supposed to be but I can tell you that I truely appreciate the two children I have because I had to go through a lot to have them.

As a side note, kind of - I think I got pg with my first dd so quickly because I was eating very healthy and I was working out 1.5 to 2 hours nearly everyday. Good luck!
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