PCOS + Endometriosis?

svaldez · 11-14-2006, 05:00 PM

Does anyone here have both PCOS and endometriosis??

I have had chronic pelvic pain for about ten years. Lately it has been worsening. Friday I was vomiting and had a massive headache along with horrible pelvic pain so my doc told me to go to the ER where they did all sorts of *fun* tests. The 2 docs were wonderful and told me that all of the pain (which I was previously told was ovaries and kidneys) is probably from endometriosis and that a lot of women with PCOS also have endometriosis (both also run in my family). Now I will have to follow up with my OB GYN and possibly have laporoscopic (sp?) surgery to know for sure.

I wonder why, after all of these years and very little help from the zillions of docs I have seen, no one has ever mentioned endometriosis? My cycles have been much better since starting Met yet, I am still unable to get pregnant and was told to just give in and head back to the fertility clinic. Maybe this (endometriosis) is why?

Anyone have any experiences to share with me?

Thanks Everyone!
Sharon

SnowFlower · 11-14-2006, 07:44 PM

Sounds like me. I have been complaining of pelvic pain for years and have been in the ER for it plenty all they do is do an internal u/s give me some pain pills and send me on my way. Finally someone said you prob have endo. My new RE wants to do 2 or 3 cycles before doing the Lap to see if I can get pregnant and if not then we will explore more. Good luck

hayric2 · 11-14-2006, 08:15 PM

I suffer from the same thing. I had lots of pelvic pain and went to the hospital and they told me to go see my Gyn, so I did and he did ultrasounds and put me on birth control well they pain eased up for a little while then came back with a vengance. I was diagosed with endometriosis about 6 years ago when they did my laperscopy. They could not detect it with any test they had to do a laperscopy surgery and my doctor found that I was full of it, along with cysts and adhesions. About 6 months after my lap i got pregnant and had a beauitful baby girl (my 2nd child). My son was 7 1/2 when my daughter was born and my DH and I never used protection for all them years. Endometriosis can cause infertlity.Well I am in the same boat again right now, I have SEVERE PAIN in my right side with multiple cysts and ovary quite enlarged. On my left side I have a cyst bout the size of a baseball with no pain on my left. Pretty crazy if u ask me but what do I know.lol. Anyways I am going in this Friday for another laperscopy surgery and currently waiting for test results to confirm if i have PCOS. My doctors seems to think so i have all the signs of PCOS besides being overweight. I am now researching everything I can about endometriosis and PCOS with this bout of pain. I am so done with this pain. When it happened to me the 1st time i just thought oh it will go away. I was wrong. Hope you and your doctor can figure out whats going on. If you need anything, or just someone to talk to just let me know.
I feel your pain cyster!!!

Looking4Hope · 11-15-2006, 06:28 AM

When I was DX I went in thinking I had endometriosis. Because my mom had it before and she said the pain I was having might be the same thing. They did all the "fun" tests and told me PCOS after 13 years of no one seeming to know what it was or what to do. My OB said the 2 go hand in hand alot of times.

svaldez · 11-15-2006, 01:44 PM

Thank you all for your replies.

Hayric, the cysts didn't show up on the ultrasounds only on the laproscopic surgery? Weird.

Well, I made an appointment with my ObGyn for Tuesday, so we will see what she has to say about it all.

I feel so bummed out. Like there is always something wrong with me. I feel foolish, like I am the "sick one" in the family.

Sharon

hayric2 · 11-15-2006, 03:33 PM

My cysts did show up in the ultrasound but the endometriosis did not.

LeeDawson · 11-16-2006, 11:04 PM

there is a endometriosis and pcos support group thread you are most welcome to come and join!
http://www.soulcysters.net/endometri...elcome-177470/

snappleheaven · 11-17-2006, 05:24 PM

Hi

I was dx'd with PCOS and after numerous failed treatments we did a lap where the endo was discovered. I too had pelvic paic, very heavy periods (and I mean very) the whole bit.

Have since had another lap where more endo was cleared up along with scar tissue. Unfortuately for me, it has not helped me get pg. however, it has helped immensly with the pain and periods.

Hang in there...

Snapple

waiting.for.baby · 11-17-2006, 05:49 PM

I have PCOS and Endometriosis. I suffer from chronic pelvic pain (I mean, every day, 24/7) for 3 years. When me and my hubby decided to TTC, we had no luck for 8 months and finally my doc agreed to perform a laparascopy (I pushed for it soooo much because I was in so much pain everyday, I couldn't take it anymore!!) Well, of course, he found Stage 3 Endo....However, no hinderance to pregnancy can be found as my tubes are wide open, ovaries clean, uterus clean, etc. The endo is only on the pelvic lining/wall and not really on any organs....The spots of endo are very deeply rooted he said, so that's why the pain is so intense. The spots are hitting nerves deep in the pelvic wall. At the time of the lap, he could not remove anything because he needs certain tools and was not prepared to find such deeply implanted endo. If I need another surgery, it will be more invasive. (I say "if" because we are going to continue TTC until about April, and if nothing, he will do it.) He said I am lucky because the endo by-passed my tubes and ovaries and never spread there (yet) - It is a miracle, basically, that they are clean. I did have one adhesion on my right side NEAR the ovary that he removed (the adhesion, not the ovary! lol).

Good Luck!! I hope I helped you out some.

DivineMadness · 11-19-2006, 12:28 AM

Quote:

Originally Posted by svaldez

Does anyone here have both PCOS and endometriosis??

I have had chronic pelvic pain for about ten years. Lately it has been worsening. Friday I was vomiting and had a massive headache along with horrible pelvic pain so my doc told me to go to the ER where they did all sorts of *fun* tests. The 2 docs were wonderful and told me that all of the pain (which I was previously told was ovaries and kidneys) is probably from endometriosis and that a lot of women with PCOS also have endometriosis (both also run in my family). Now I will have to follow up with my OB GYN and possibly have laporoscopic (sp?) surgery to know for sure.

I wonder why, after all of these years and very little help from the zillions of docs I have seen, no one has ever mentioned endometriosis? My cycles have been much better since starting Met yet, I am still unable to get pregnant and was told to just give in and head back to the fertility clinic. Maybe this (endometriosis) is why?

Anyone have any experiences to share with me?

Thanks Everyone!
Sharon

i have both...ive been to the er for it many times..actually collapsed at work from the pain andb lacked out.......the ran me to the er and did all kinds of tests. the docs cant even put there instruments inthere or there fingers for the exam without me crying in pain. its awful!!!!!!!!!!!!! i have a lap surgery schledule for nov. 30th...