PCOS: Get a Diagnosis - Page 2

Rebekah13 · 02-20-2006, 02:48 AM

I've not been diagnosed yet, just started gaining weight, losing hair, and AF is a little off, so I'm so lucky I found this board, as I'm making a appointment with my ob/gyn, and not taking no for a answer, going in with guns blazing to ensure I get a diagnosis and referral if he's not experienced enough to run the proper test. I've got a printout to take to him, and will get whatever is wrong diagnosed, am already exercising and have changed diet, but will help to have his support!

Lydia

kimdev · 04-14-2006, 02:32 AM

After suspecting for the past 5 years that I've had PCOS and just now getting a dx, trust yourself and be persistant with your doctor. You know your body and what you feel. After all this time only 1 doctor looked for my insulin levels instead of looking at the male hormones which were normal and the fact I've always had regular periods.

disobedientwench · 04-23-2006, 08:25 AM

I saw specialists for 6 years before one finally did a sonogram...I see specialists now and none of them think I have PCOS. I have all the symptoms, and had a tumor removed with one ovary 5 years ago and have/had cysts ...for some reason my tests always come back normal...apparently they are not the right tests...

peggy

hookemgal1776 · 05-09-2006, 08:49 PM

what is the ir diet?

shortypants1976 · 05-16-2006, 03:34 AM

i would like to know what exactly the treatments are for pcos im trying to get in to a gyn but having problems with insurance. other then that its taking a long time to see a gyn my pcp did the tests and diagnosed me with pcos one dr says birth control but i cant take birth control so what other options do i have

SARAHLOU · 06-03-2006, 03:59 AM

VERY NEW TO THIS ALL, SO SORRY NOT MUCH HELP.... JUST FOUND OUT THAT I HAVE PCOS & INSULIN RESISTANCE. SYMTOMS HAVE BEEN... OILY ACNE PRONE SKIN, CENTRAL WIEGHT GAIN, LOWER LEFT QUADRATE PAIN, HAIR LOSS AND MISSED MENSTRAL CYCLES. I HAVE BEEN OFF BIRTH CONTROL PILL FOR OVER A YEAR DUE TO THE FACT THAT MY HUSBAND AND I WOULD LIKE TO START A FAMILY BUT PERIODS HAVE BEEN FEW AND FAR BETWEEN MY FAMILY DOC SENT US TO A FERTILTY CLINIC AND HE HAS RAN SEV TESTS. ONE OF THOSE TESTS WAS A ULTRASOUND WHICH DID NOT SHOW ANY CYSTS ON MY OVARIES SO MY QUESTION IS HOW CAN I HAVE PCOS W/ NO CYSTS??????

27 YR FEM MARRIED DEC 11 2004

IM ON MY FIRST WEEK OF METFORMIN AT 500 MG.. AND HAVE HAD TO STAY VERY CLOSE TO THE BATHROOM.

ANYONE THAT CAN FILL ME IN ON WHAT TO EXPECT AND WILL METFORMIN HELP?

????

bethlynne · 06-12-2006, 01:53 AM

I was just told at work about this wonderful site! I've been diagnosed about 1 month although I've had the feeling I had PSOS for several months. We are activly trying to get pregant and have been for 2 years with no luck. I am on 500mg of met which has at least made me have a period for the first time in 7 months. I have done clomid as well this month. What I'm looking for is someone who also has Factor V Leidon as well. I was diagnosed several years ago as it is in my family. I need some support and hope these days. Everyone keeps telling me I "have time" and that it was good that I "started early". But none of that really helps. I need someone going through the same situation. This site is very helpful and I hope to find some additional answers. Thanks

dikava · 06-12-2006, 10:18 AM

I am pretty sure I have PCOS, but I am terrified to go to the DR for fear of the unknown I suppose. I don't know anyone with this disorder and I am also afraid of the DR just brushing me off. I don't want this to go untreated any longer as it has been some time since I've known this was probably the cause of many of the problems I have. :-(

ashleyr2006 · 06-29-2006, 04:45 AM

Hi my name is ashley and i was wondering if any one knew were i can find a doctor that knows about pcos i have been too like 8 doctors know and none of them know what thay are talking about lol so if any one knows were i can find one please tell me
thanks
ashley

sara_beara_1976 · 09-30-2006, 08:18 PM

I cannot tell you all how happy I am to find this site. I thought I was the only one with all of these problems. I am 30 years old and am undiagnosed as of yet, but it seems like PCOS is the only answer to my problems. I have never had infertility issues (thank god), but I have had *female* problems for years. My periods would last for 10 days and I thought I wanted to die, from the time I was 15 or so. I wasn't too bad in my early twenties, and had 3 successfull pregnancies. However, when I was in the o.r. having my c- section with my 2nd child, the dr. found what he thought was a tumor in my ovary (+5.5 cm). It turned out to be a cyst. I became pregnant 3 months later and had my last child. However since that time, I have had only about 12 periods in 5 years. When I do have my period it lasts forever ( 10 days or more) and is so painfull I have to take prescription pain medication. I have migraines once a month, around where my old period used to arrive. I have gained 100+ lbs. in the past 5 years as well. I have the trademark "ring around the collar" and underarms. I remember scrubbing in the shower for an hour at a time trying to get "clean" in high school. It was so embarrasing, but now I realize that its not dirty, its just a skin discoloration.
When I first went to my dr. she told me to be thankfull for 3 periods a year, and dismissed the acne and extra hair as "things that happen as you get older" What a load of bs. I am making an appointment with a new dr. asap and have some bloodwork done. Thank God that I found (hopefully) an answer to all my baffling medical problems. Keep strong, and thanks for the hope.

scmj26 · 12-29-2006, 01:50 PM

Hi. I am not new to pcos/insulin resistance as i have Hashimoto's disease (hypothyroidism), had for just about 3 years into. It is directly linked to pcos & i have had just about every symptom. My fasting glucoses were always WAY above 100 (110-120, several times i've gotten 130-140. I dont use sugar and generally follow the south beach diet) , also gained ovr 20 lbs this year & couldnt take it off no matter what. I told this to my ob/gyn np (nurse practitioner) & she just ignored it, said i probably had pcos all my life

except i dont recall ever having these symptoms & having 3-4 periods a year when i was younger (i'm 44 & have had only 4 this year)

I explained this to my pcp (i've had for 9 years) & he agreed to try me on Metformin on 11/19. I started at 425 mg & increased to 850 within 4 weeks, he wants me to increase to 1000 mg a day (split in 500 twice a day) So far so good. My fasting sugars are now 101, 96, 98 , 100 or less. Also lost over 10 lbs

and still slowly losing (still sticking to South Beach) I dont know if it's metformin or the Armour Thyroid i'm taking (since 11/1, i was on Synthroid for a year, it made me sick & overweight in the end, it increases your metabolism so you eat more) or a combination of both. Still no period but menstrual cramps constantly (severe at times) Does it really take up to 6 months before that part is straightened out, or is it perimenopause? Seeing that there is no reason for me to have a hysterectomy & i still have a uterus (had a tubal ligation in 1995) it must still continue to work, no? I'm increasing the Metformin in a couple of weeks. I would feel SOOOO much better if i would bleed! BTW what does AF & BFP stand for? Just wondering. OK anyone else on the same boat as me? I would love to hear from you!

Jashobeam · 12-29-2006, 03:08 PM

Quote:

Originally Posted by scmj26

BTW what does AF & BFP stand for? Just wondering. OK anyone else on the same boat as me? I would love to hear from you!

AF is Aunt Flow, your period
BFP is big fat positive, a positive pregnancy test result.

More info here: Updated!!! Abbreviations For Newbies:)

Jem_Faerie · 03-21-2007, 09:40 AM

Hello...I am new to the boards and I am currently waiting to get into the doctor for my first appointment. My GYN told me a few years ago that he thought I had PCOS, I had one round of blood tests, but unfortunately I switched jobs and lost insurance befor I could go further. I now live in another state, have a new job, and new insurance. I can't get into the doc's til May 24th because I am coming in as a new patient. I am really hoping to get things under control before I get married in October because I know we want to TTC not long after we're married. I have a bunch of the classic symptoms....too much hair where I don't want it to be, it's very hard to lose weight, most of my weight is around my middle, I'm tired ALOT, my skin has dramatically changed over the past few years (it's soooo dry now and never used to be), and I also have virutally no periods at all. I would say I haven't had a period in 3 years, maybe more. I've recently started dieting in hopes that diet modification will help. My half sister who also has PCOS recently announced that she's pregnant and she really hasn't done anything as far as drugs go...just eating healthier. Any advice on what I can do now until I have my appointment in May? And what should I ask the doctor when I finally see her? Thanks Ladies!

Grneydprincs · 06-18-2007, 09:50 AM

Hi everyone!

I am not too recently diagnosed, but newer here. I've dabbled a little on these boards before, but now I'm finding I'm showing up every day. We are ttc right now, so I'm looking for all the support and education I can get. I'm looking forward to getting to know everyone, you all seem like wonderful people! I'm just trying to stay positive, keep my head up and learn everything I can from women who seem to know much more than me!

Orsolya · 06-18-2007, 04:52 PM

Hi!
I'm a hungarian PCOS girl, too. I started menses at age 9, and never regular cycles. I went so many doctor and they didn't help me. I had knonw that i have a PCO by ultrasound and I will heavy the pregnant.

Now I'm 28 years old got to a new doctor, he is a internits. He assings a cupping. My result: LH: 4,3 U/l, FSH: 5 U/l, Prolaktion: 589 mU/l, Ostradion: 143,4 pmol/l, Progesteron: 2,1 nmol/l, Testosteron: 3,4 nmol/l, Sugar: 3,96 - 5,76 nmol/l, IR:9,94 - 185,5 mU/l. They are very wrong rate.

My doctor noted down Metformint (500 g a day, then 1500 g a day) and i have lose my weigt: I have to deit!

6 months waitng for a new baby project. Until I have a rest!

04-14-2006, 02:32 AM	#17 (permalink)
kimdev Registered User Join Date: Apr 2006 Location: Burlington WA Posts: 11 Points: 308.00 Bank: 0.00 Total Points: 308.00 Donate	Trust your body After suspecting for the past 5 years that I've had PCOS and just now getting a dx, trust yourself and be persistant with your doctor. You know your body and what you feel. After all this time only 1 doctor looked for my insulin levels instead of looking at the male hormones which were normal and the fact I've always had regular periods.

04-23-2006, 08:25 AM	#18 (permalink)
disobedientwench Registered User Join Date: Apr 2006 Posts: 20 Points: 726.00 Bank: 0.00 Total Points: 726.00 Donate	Seeing specialists I saw specialists for 6 years before one finally did a sonogram...I see specialists now and none of them think I have PCOS. I have all the symptoms, and had a tumor removed with one ovary 5 years ago and have/had cysts ...for some reason my tests always come back normal...apparently they are not the right tests... peggy

05-09-2006, 08:49 PM	#19 (permalink)
hookemgal1776 Registered User Join Date: May 2006 Posts: 2 Points: 128.00 Bank: 0.00 Total Points: 128.00 Donate	what is the ir diet? __________________ hookemgal1776 To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

06-03-2006, 03:59 AM	#21 (permalink)
SARAHLOU Registered User Join Date: Jun 2006 Posts: 1 Points: 135.26 Bank: 0.00 Total Points: 135.26 Donate	Clueless..... VERY NEW TO THIS ALL, SO SORRY NOT MUCH HELP.... JUST FOUND OUT THAT I HAVE PCOS & INSULIN RESISTANCE. SYMTOMS HAVE BEEN... OILY ACNE PRONE SKIN, CENTRAL WIEGHT GAIN, LOWER LEFT QUADRATE PAIN, HAIR LOSS AND MISSED MENSTRAL CYCLES. I HAVE BEEN OFF BIRTH CONTROL PILL FOR OVER A YEAR DUE TO THE FACT THAT MY HUSBAND AND I WOULD LIKE TO START A FAMILY BUT PERIODS HAVE BEEN FEW AND FAR BETWEEN MY FAMILY DOC SENT US TO A FERTILTY CLINIC AND HE HAS RAN SEV TESTS. ONE OF THOSE TESTS WAS A ULTRASOUND WHICH DID NOT SHOW ANY CYSTS ON MY OVARIES SO MY QUESTION IS HOW CAN I HAVE PCOS W/ NO CYSTS?????? 27 YR FEM MARRIED DEC 11 2004 IM ON MY FIRST WEEK OF METFORMIN AT 500 MG.. AND HAVE HAD TO STAY VERY CLOSE TO THE BATHROOM. ANYONE THAT CAN FILL ME IN ON WHAT TO EXPECT AND WILL METFORMIN HELP?????

12-29-2006, 01:50 PM	#26 (permalink)
scmj26 Registered User Join Date: Nov 2006 Location: Northeast , USA Posts: 39 My Mood: Points: 1,129.54 Bank: 0.00 Total Points: 1,129.54 Donate	PCOS: Get a Dignosis Hi. I am not new to pcos/insulin resistance as i have Hashimoto's disease (hypothyroidism), had for just about 3 years into. It is directly linked to pcos & i have had just about every symptom. My fasting glucoses were always WAY above 100 (110-120, several times i've gotten 130-140. I dont use sugar and generally follow the south beach diet) , also gained ovr 20 lbs this year & couldnt take it off no matter what. I told this to my ob/gyn np (nurse practitioner) & she just ignored it, said i probably had pcos all my life except i dont recall ever having these symptoms & having 3-4 periods a year when i was younger (i'm 44 & have had only 4 this year) I explained this to my pcp (i've had for 9 years) & he agreed to try me on Metformin on 11/19. I started at 425 mg & increased to 850 within 4 weeks, he wants me to increase to 1000 mg a day (split in 500 twice a day) So far so good. My fasting sugars are now 101, 96, 98 , 100 or less. Also lost over 10 lbs and still slowly losing (still sticking to South Beach) I dont know if it's metformin or the Armour Thyroid i'm taking (since 11/1, i was on Synthroid for a year, it made me sick & overweight in the end, it increases your metabolism so you eat more) or a combination of both. Still no period but menstrual cramps constantly (severe at times) Does it really take up to 6 months before that part is straightened out, or is it perimenopause? Seeing that there is no reason for me to have a hysterectomy & i still have a uterus (had a tubal ligation in 1995) it must still continue to work, no? I'm increasing the Metformin in a couple of weeks. I would feel SOOOO much better if i would bleed! BTW what does AF & BFP stand for? Just wondering. OK anyone else on the same boat as me? I would love to hear from you!

02-20-2006, 02:48 AM	#16 (permalink)
Rebekah13 Registered User Join Date: Feb 2006 Posts: 1 Points: 18.00 Bank: 0.00 Total Points: 18.00 Donate	I've not been diagnosed yet, just started gaining weight, losing hair, and AF is a little off, so I'm so lucky I found this board, as I'm making a appointment with my ob/gyn, and not taking no for a answer, going in with guns blazing to ensure I get a diagnosis and referral if he's not experienced enough to run the proper test. I've got a printout to take to him, and will get whatever is wrong diagnosed, am already exercising and have changed diet, but will help to have his support! Lydia

05-16-2006, 03:34 AM	#20 (permalink)
shortypants1976 Registered User Join Date: May 2006 Location: new york Posts: 15 My Mood: Points: 929.33 Bank: 0.00 Total Points: 929.33 Donate	i would like to know what exactly the treatments are for pcos im trying to get in to a gyn but having problems with insurance. other then that its taking a long time to see a gyn my pcp did the tests and diagnosed me with pcos one dr says birth control but i cant take birth control so what other options do i have

06-12-2006, 01:53 AM	#22 (permalink)
bethlynne Registered User Join Date: Jun 2006 Posts: 1 Points: 133.73 Bank: 0.00 Total Points: 133.73 Donate	I was just told at work about this wonderful site! I've been diagnosed about 1 month although I've had the feeling I had PSOS for several months. We are activly trying to get pregant and have been for 2 years with no luck. I am on 500mg of met which has at least made me have a period for the first time in 7 months. I have done clomid as well this month. What I'm looking for is someone who also has Factor V Leidon as well. I was diagnosed several years ago as it is in my family. I need some support and hope these days. Everyone keeps telling me I "have time" and that it was good that I "started early". But none of that really helps. I need someone going through the same situation. This site is very helpful and I hope to find some additional answers. Thanks

06-12-2006, 10:18 AM	#23 (permalink)
dikava Registered User Join Date: Jun 2006 Location: CA Posts: 5 Points: 274.54 Bank: 0.00 Total Points: 274.54 Donate	I am pretty sure I have PCOS, but I am terrified to go to the DR for fear of the unknown I suppose. I don't know anyone with this disorder and I am also afraid of the DR just brushing me off. I don't want this to go untreated any longer as it has been some time since I've known this was probably the cause of many of the problems I have. :-(

06-29-2006, 04:45 AM	#24 (permalink)
ashleyr2006 Registered User Join Date: Jun 2006 Location: carmi Posts: 1 My Mood: Points: 259.66 Bank: 0.00 Total Points: 259.66 Donate	Hi my name is ashley and i was wondering if any one knew were i can find a doctor that knows about pcos i have been too like 8 doctors know and none of them know what thay are talking about lol so if any one knows were i can find one please tell me thanks ashley

09-30-2006, 08:18 PM	#25 (permalink)
sara_beara_1976 Registered User Join Date: Sep 2006 Posts: 2 Points: 147.63 Bank: 0.00 Total Points: 147.63 Donate	I cannot tell you all how happy I am to find this site. I thought I was the only one with all of these problems. I am 30 years old and am undiagnosed as of yet, but it seems like PCOS is the only answer to my problems. I have never had infertility issues (thank god), but I have had female problems for years. My periods would last for 10 days and I thought I wanted to die, from the time I was 15 or so. I wasn't too bad in my early twenties, and had 3 successfull pregnancies. However, when I was in the o.r. having my c- section with my 2nd child, the dr. found what he thought was a tumor in my ovary (+5.5 cm). It turned out to be a cyst. I became pregnant 3 months later and had my last child. However since that time, I have had only about 12 periods in 5 years. When I do have my period it lasts forever ( 10 days or more) and is so painfull I have to take prescription pain medication. I have migraines once a month, around where my old period used to arrive. I have gained 100+ lbs. in the past 5 years as well. I have the trademark "ring around the collar" and underarms. I remember scrubbing in the shower for an hour at a time trying to get "clean" in high school. It was so embarrasing, but now I realize that its not dirty, its just a skin discoloration. When I first went to my dr. she told me to be thankfull for 3 periods a year, and dismissed the acne and extra hair as "things that happen as you get older" What a load of bs. I am making an appointment with a new dr. asap and have some bloodwork done. Thank God that I found (hopefully) an answer to all my baffling medical problems. Keep strong, and thanks for the hope.

03-21-2007, 09:40 AM	#28 (permalink)
Jem_Faerie Registered User Join Date: Mar 2007 Location: Delaware Posts: 3 Points: 204.60 Bank: 0.00 Total Points: 204.60 Donate	Waiting for doctor's appt Hello...I am new to the boards and I am currently waiting to get into the doctor for my first appointment. My GYN told me a few years ago that he thought I had PCOS, I had one round of blood tests, but unfortunately I switched jobs and lost insurance befor I could go further. I now live in another state, have a new job, and new insurance. I can't get into the doc's til May 24th because I am coming in as a new patient. I am really hoping to get things under control before I get married in October because I know we want to TTC not long after we're married. I have a bunch of the classic symptoms....too much hair where I don't want it to be, it's very hard to lose weight, most of my weight is around my middle, I'm tired ALOT, my skin has dramatically changed over the past few years (it's soooo dry now and never used to be), and I also have virutally no periods at all. I would say I haven't had a period in 3 years, maybe more. I've recently started dieting in hopes that diet modification will help. My half sister who also has PCOS recently announced that she's pregnant and she really hasn't done anything as far as drugs go...just eating healthier. Any advice on what I can do now until I have my appointment in May? And what should I ask the doctor when I finally see her? Thanks Ladies!

06-18-2007, 09:50 AM	#29 (permalink)
Grneydprincs Registered User Join Date: Feb 2006 Location: Wisconsin Posts: 14 My Mood: Points: 466.49 Bank: 0.00 Total Points: 466.49 Donate	Hi everyone! I am not too recently diagnosed, but newer here. I've dabbled a little on these boards before, but now I'm finding I'm showing up every day. We are ttc right now, so I'm looking for all the support and education I can get. I'm looking forward to getting to know everyone, you all seem like wonderful people! I'm just trying to stay positive, keep my head up and learn everything I can from women who seem to know much more than me! __________________ Me: 26 Husband: 27 Married May 18th, 2007 TTC #1 2 years Diagnosed 2005 2 m/c both at 5 wks, 2005, 2002. BFP 7/22/07 on first round of clomid!! Due 3/28/08 To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

06-18-2007, 04:52 PM	#30 (permalink)
Orsolya Registered User Join Date: Jun 2007 Location: Hungary, Budapest Posts: 9 My Mood: Points: 183.40 Bank: 0.00 Total Points: 183.40 Donate	Hi! I'm a hungarian PCOS girl, too. I started menses at age 9, and never regular cycles. I went so many doctor and they didn't help me. I had knonw that i have a PCO by ultrasound and I will heavy the pregnant. Now I'm 28 years old got to a new doctor, he is a internits. He assings a cupping. My result: LH: 4,3 U/l, FSH: 5 U/l, Prolaktion: 589 mU/l, Ostradion: 143,4 pmol/l, Progesteron: 2,1 nmol/l, Testosteron: 3,4 nmol/l, Sugar: 3,96 - 5,76 nmol/l, IR:9,94 - 185,5 mU/l. They are very wrong rate. My doctor noted down Metformint (500 g a day, then 1500 g a day) and i have lose my weigt: I have to deit! 6 months waitng for a new baby project. Until I have a rest!

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