PCOS and Lupus Connection?

CysterMeghan · 03-07-2007, 12:04 PM

Hey Ladies...
Yesterday I went to the Dr. and I found out some more news. I am running on the positive side of Lupus..I am taking that as I have it. Especially since my mother has it and my great-grandmother had it. I have the classic signs/symptoms of it...the "butterfly" rash, joint pain and inflammation, fever, extreme fatigue etc. Now I am just wondering have any of ya'll been diagnosed with this also? It seems like my body is falling apart on me. I also was wondering if anyone else had been diagnosed with high cholesterol, IBS, I also have TMJ which I don't think has any correlation to all this. Anyway, I am just looking for some help with this one. I am 23 years old and am beginning to feel like my body is out to get me. LOL.
Meghan

Medications:
Glucophage *2000 mg
Ov-Con35
Zocor
Cymbalta *60 mg
Lunesta
Singulair
Topamax
Multi-Vitamin

NurseJackie · 03-09-2007, 02:10 AM

I have no family history of lupus, but i was just officially diagnosed with pcos today, and one of the labs the dr ordered was for lupus. It's one of about 30 labs he ordered, and i did'nt read them all earlier, so did'nt ask what the connection might be, but since he ordered it, i assume it is somehow related to pcos.

serenity1981 · 03-09-2007, 02:18 AM

sorry to hear your news.
i have no family history of lupus myself but have been tested four times because i keep showing all the symptoms but the results keep coming back borderline.

lil annie · 03-09-2007, 10:07 PM

I was diagnosed in 2003 with ANA negative lupus by my primary doctor-a diagnosis that doesn't really mean anything until a rheumatologist confirms it. The first one I saw said it was Rheumatoid Arthritis instead. I changed doctors and he won't confirm the RA diagnosis because he thinks this might be lupus or rhupus (lol) which is a combination of both diseases. I don't know that it has any relation to PCOS but I am going to ask my endocrinologist when I see him next week.

girl2 · 06-25-2008, 04:10 PM

I am only 21 and since I was young I have had purple sploychy skin when It wants too and when I get cold.I have bruises that I have no idea where they come from,IBS,IBD(ulcerative proctitis),PCOS,strange red vein looking rash on my leg,possibly TMJ,very tired even when I sleep for like 12 hours,and just the other week when I had the weird rash on my leg I went to the emergency room and they ran blood test results and said that it came back as low positive systemic lupus??? I have since found out that my cousin has lupus as well but nobody else in my family does.They are getting me in to see a rheumatologist and it is a possibility that I don't have lupus is what my doctor says.I am completely lost as to what is going on I am only 21 and since the day I turned 17 or 18 I have has all these problems.

lil annie · 06-25-2008, 09:28 PM

Until a rheumatologist says you have lupus, it's not really an official diagnosis. You obviously have something rheumatic going on in your body, though. A rheum will run more tests and hopefully get to the bottom of things. My ANA came back positive in December and my new rheumatologist always looks for lupus signs when I go for RA visits. The most important thing you can do for yourself right now is to listen to your body. If it says to rest, then rest. Pushing yourself will do nothing but take you longer to regain your energy. Also, try to avoid the sun. If you do indeed have lupus, you will need to be very careful as the UV rays can trigger a flare of the disease.

girl2 · 06-26-2008, 10:19 AM

Yeah that is what the doctor said and everything that I have been reading says that there has to be more tests ran to find out if you have lupus or not.I just wish I could figure out what is wrong with me because I feel as though I have been sick forever.For the past 2 or 3 years the doctor kept telling me that I have IBS and nothing seemed to help with constipation or bloating.I stayed bloated for about 2 years and normally I weigh between 100 to 110 I was so bloated that I weighed in at 132! Then just a couple weeks ago I had started bleeding with and without bowel movements,cramping and alot of mucus about 5 to 6 times a day. so my doctor ordered a colonoscopy and diagnosed me with IBD/ulcerative proctitis and I have been using suppositories which have relieved the bloating and constipation and the fact that I switched to Fiber silk vanilla soy milk again! Every time I go to a doctor all I ever get is YOU ARE TOO YOUNG YOU HAVE NOTHING TO WORRY ABOUT,why has this been said so much I don't think age matters anymore because they said oh you can't get colon cancer until you get older but yet I know of a 15 year old boy who has it.Then the OBGYN says you are too young to get cervical cancer you are fine and then find out that a 22 year old has it.Sometimes I swear it seems that doctors don't even care or listen to you.

ZA08 · 06-26-2008, 09:28 PM

I had a positive ANA last year so my doc ordered the next test if (+) ANA....I don't remember what it was called but it came back "negative" or "low"...I don't remember which. My docs are going to keep an eye on it.....i.e. if I were to develop more symtoms they would redo the testing. My grandmother had lupus. No problems currently!

februarystar · 07-04-2008, 03:25 AM

Quote:

Originally Posted by lil annie

Until a rheumatologist says you have lupus, it's not really an official diagnosis.

What does a rheumatologist test for that a GP doesn't? My mum has lupus, but she's never been to a rheumatologist.