mammaswan

I was just wondering if there is a connection to PCO & Ovarian Cancer? I haven't posted in a long while because in Jan. I had a hysterectomy and in March Cancer surgery. I have a rare ovca-Granulosa Cell Tumor.

I was dx'd with PCO in my early 20's (I'm now 55). I was taking medroxyprogesterone for the last 4 yrs so I could get a period (hormones showed I wasn't near menopause) and we were watching a cyst on ovary 3.5 cm. Last summer my bleeding was erratic - constant- when I had u/s in early Dec. cyst grew to 9.9 cm. Had hyst and they found Granulosa Cell.

I spoke to a specialist @ Mass. General and I asked how long could I have had this (I was dx'd Stage 2) and he told me that when my hormone levels showed at my age that I was not menopausal that was the first sign, but my gyno would have no way of knowing that.....there aren't many clinical trials for Granulos Cell because only 1-2% of women get it. My Gyn in her 20+ yr career has only seen this twice (I was 2nd).

When I asked my oncologist he didn't know if there was a connection. My endo said possibly. Granulosa Cell is hormone based and thankfully a very slow growing cancer.

I guess what I'm trying to say to women over 50 is that if you are not menopausal yet. seek a specialist in Granulosa Cell. I think there is a connection.

I'd be interested in hearing from anyone who should be menopausal but hormones come back saying "no".

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mary

notcrazy

Don't know. My sister also has PCOS (undiagnosed, but she has it) and will go next week to find out if she has cancer.

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Intermediate

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mammaswan

Just an update. I had blood work done and spoke to Endo yesterday. He said my Male Testosterone was 19...good; Insulin Level 17...good;TSH a little high-I always was hypothyroid, now a little hypertyhroid; blood sugar was always good now 102. I asked if hysterectomy could have reversed PCO and he said possibly. No ovaries, no symptoms? Does it make sense?
Now we'll see what happens after chemo. I start 6/27

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mary

ahydock

God bless you and keep your spirits up. We are all here if you need us

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