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Old 12-08-2007, 06:11 PM   #1 (permalink)
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Default PCOS is so much more that just a fertility problem.

Disclaimer: Yes, there is a high likelihood that we will want a baby one day - maybe soon. Yes, I am lucky enough to be blessed with two boys that I had (far too young) before I was dx'ed. BUT...

Does it frustrate anyone that PCOS seems to only be about fertility?

Personally speaking, as soon as people find out that I have PCOS (or realise what it is) they assume that I must be desperate for a baby. As I said, I've recently remarried, and DH would love a baby of his own, but we aren't ready for it yet. It just strikes me as odd that people make that assumption, based on my diagnosis.

Also... There is such a push (in my country at least) to have infertility treatments covered by government health policies - which I certainly don't disagree with - BUT... It, for most cases, is a relatively short-term treatment. What about the other treatments for PCOS? Metformin is reduced in price, but that is because it is a diabetic treatment. The pill that is best suited for a PCOS sufferer (like Yasmin or Diane 35 - Estelle here) is hugely expensive in comparison with other 'normal' pills. Acne treatment is considered cosmetic, and expensive. Hair removal is the same. All up, I spend a couple of hundred dollars a month on medications. Then there's the hair removal...

I have also noticed how many of us here need to include pets and (sadly) miscarriages in our sig's. I honestly don't mean to offend here, it is just a thing I noticed, and I wondered why? I know that pets are a huge part of a person's life and in every respect, a family member. That's cool. I also understand that this is a forum for us to share our difficulties with PCOS. It's a place to vent about the symptoms, and grieve. It's a place to share your pain - especially the pain of having lost the tiny person that you loved completely before you had a chance to meet them. I do understand, I have been there too. But my point is... Why do we need to feel that we have to justify ourselves? It almost seems as though we are defending our capability of being mothers. We shouldn't feel as though we need to quantify our capacity for giving the love and affection other 'normal' mothers give. We are all good mothers, whether it's to a child, a pet, or the spirit of baby that never made it into our arms.
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Old 12-08-2007, 06:27 PM   #2 (permalink)
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An associated rant: I wish this board had less of the overwhelming baby rabies than it does. I understand that a lot of people with PCOS want a baby (or more) and can't or are having trouble conceiving. But thumping yourself in the head with it every time you come here can't be healthy. PCOS *is* more than just about having babies, so why can't we have more of the non-baby related stuff? I think the hair forum is the only place there is no baby related discussion, and even then you have to wade through thirty lines of sig with baby tickers, birthday tickers, how many miscarriages, how many rounds of what medications- aren't there messageboards for people with fertility problems? That's only one part of PCOS, why let it dominate?
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Old 12-08-2007, 07:00 PM   #3 (permalink)
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i can understand where you are coming from. from what all i have read about pcos it isnt just about fertility problem. it can effect alot of things.
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Old 12-08-2007, 08:39 PM   #4 (permalink)
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I understand and feel the same as you. PCOS has caused so many different illnesses with me it's depressing. Let's see...I suffer from chronic migraines, hair loss from the root, acne, high cholesterol, unexplained weight gain and not to mention depression. Looking at old pictures and I hardly remember that person. Pulling my hair up in the and seeing a bald spot or being afriad to wash my hair. Exercising trying to lose as much weight as I can but only to step on the scale and see not much has changed. I am thankful that our condition isn't as bad as it could be but we all have to look at the bright side. I say to myself "I am not hooked up to a chemo drip, I don't have an illness that doesn't have a name or meds for it. Don't get me wrong I have my moments but when I think about other people would love to my illness, I quickly get myself together. Keep you head up and know you aren't alone.
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Old 12-08-2007, 08:45 PM   #5 (permalink)
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Originally Posted by Mireille View Post
An associated rant: I wish this board had less of the overwhelming baby rabies than it does.
why dont we start a thread somewhere for us happy to be child free folks? i think its just because most people who get diagnosed get that diagnosis because they are TTC and are having problems, but yeah the baby stuff is a little overwhelming at times. of course, i'm happy the baby stuff is here so i know what to expect when i am ready to have kids.
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Old 12-08-2007, 09:27 PM   #6 (permalink)
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why dont we start a thread somewhere for us happy to be child free folks?
There are several such threads on the GTKY board.
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Old 12-08-2007, 10:39 PM   #7 (permalink)
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There are several such threads on the GTKY board.
awsome, thanks.
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