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Old 01-13-2009, 07:43 PM   #1 (permalink)
I'm a PC and I have PCOS
 
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So, I guess, here goes my story...

It all started when I was 11 years old. It was a regular day, but the appointment was because I had started my period and I was having bad crampc (I actually started my irregular cycle when I was 9). A few days later they needed me to come back in for blood tests. My doc at the time said I had an unusual amount of free floating testosterone in my blood stream and they wanted to do a few more blood tests. Like 7 vials later, they had scheduled an ultrasound for me at a different Group Health. They said my ovaries were fine and sent me back. Doc looked at the test results and put me on BCP's to "help things along."

Fast forward several years of starting and stopping BCP's, horrible cramps, 7-8 day long bleeding, pyschotic PMS symptoms, gaining a rediculous amount of weight with no answer in sight, irregular/non exsistant periods and diets that went horribly wrong. I started getting a few chin hairs here and there in high school but I figured it was because of the testosterone and thought nothing of it and just plucked the few hairs I did have.

About a year and a half ago, or maybe two years now, I lost 60lbs in a matter of 5 months with no help with nothing. My mom took me to the doc's once again becuse she thought I was on Speed or something to loose the weight. The doc's didn't find anything wrong there. After I had found out I was preggo and after the miscarriage, I started gaining the weight back. I was enrolled at Curves where I saw tiny mericles(sp?) but I was still gaining.

I went through 3 doctors asking WTF is going with me. One just kept on saying that I wasn't trying hard enough; another said that I need to "accept" the way I look and he prescribed me antidepressants. The final doctor (and my current doctor) asked me to tell her what my puberty was like and such. She said that I had PCOS and put on Metformin that day and said that since my hubby and I are TTC, the Metformin should help.

Well, 3 months later with countless BFN HPT, still no period. But, I'm not giving up hope!!!
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Stephanie (23), Phil (DH, 29) Married 6/14/08
Dx: 11/3/08
Rx: Metformin 500mg 2x/day
BFP: 8/07. m/c @ 6 weeks
TTC #1 (again): 7/08
BFP!!!!!!!: 2/3/09 EDD: 9/28/09
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Old 01-13-2009, 10:23 PM   #2 (permalink)
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Hi-

I am new here as well. I have not been diagnosed as actually having PCOS, but I think that I have it. I have 3 children, twin girls age 7 a boy age 5. DD's conceived via clomid, they are identical, so just made me pop out 1 egg!! DH and I tried for 9 months for them until my doc tested me and found me to be anovulatory. DS was a surprise as I was on bc, although not really great about taking it. Didn't think I really needed to!! Anyway, I have always had painful periods, somewhat irregular, but never more that 3 months in between. Have always had to wax/pluck, not huge deal I thought.

Fast forward to now. I am 31. I have gained about 70 pounds in the last 2 years. I try to eat right, and I do exercise, but I just can't seem to make the scale budge, well, in the right direction anyways. I started missing periods alot, and there is no chance I can be pg since I have had a tubal. I had a complete metabolic panel, every organ in my body tested, all normal results. Then after missing af for 4 months, I started what I refer to as my period from hell. Bleeding nonstop, sometimes rather heavily for 6 weeks straight. More blood test, all normal. Pelvic us, revealed polycystic ovaries. My doc tells me I have polycystic ovaries, and not PCOS. Since I did not want to go on hormones, and I am done childbearing, we decided on uterine ablation. It has worked, and I have only had 3 actual bleeding periods sincd 8-07. So, that has been nice, but I am going crazy about being hairy. I hide shaving my chin and neck from my entire family. I resorted to shaving, since I too had terrible ingrown hairs constantly. The shaving does help with that, but is harder to maintain. My weight is driving me crazy (5'5"-- 225lbs) and I am worried about developing diabetes. My glucose is fine now, but for how long.

I am just frustrated. Has anyone else not been officially diagnosed but just know that they have this. How can I have polycystic ovaries, facial hair, some period problems, and a stubborn weight problem and not have PCOS. I am just looking for answers, and I can certainly relate with much of what you fabulous women are writing here. We are not alone, and it does help to hear from others.

Do not give up hope.
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Old 01-14-2009, 04:14 PM   #3 (permalink)
I'm a PC and I have PCOS
 
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I was you, I would go to a different doctor. My mom and I had the same doc for a while and when I finaly told my mom what I have, she was all like 'you have every symptom in the book and Dr. L didn't DX you???' I find it irritating that if you don't want kids, docs don't take a second look at you. I took me 3 to finally find one who listened to what I had to say...
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Dx: 11/3/08
Rx: Metformin 500mg 2x/day
BFP: 8/07. m/c @ 6 weeks
TTC #1 (again): 7/08
BFP!!!!!!!: 2/3/09 EDD: 9/28/09
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Old 01-20-2009, 04:52 PM   #4 (permalink)
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good luck hunny we all seem to be on such a hard road.. and not trying hard enough?!?! i would have smacked the dr.. but thats just me , but i have also found out thats dr's always dont have the answers.....hugs to you!
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Old 01-20-2009, 08:28 PM   #5 (permalink)
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Hey im new ive been diagnosed with pcos since july 07, and started takin metformin 500mg x 3 a day 05 jan 09, ive noticed already my appitite as gone down, and ive only had af one day. But im hoping to be better next month.
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Old 02-03-2009, 11:36 PM   #6 (permalink)
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I find out if I have PCOS sometime this week. I have always suspected that I do have it. I had some of the same puberty symptoms as you did. I will keep you in my prayers.

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