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08-17-2006, 03:11 AM
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#1 (permalink)
| | Registered User
Join Date: Aug 2006 Location: florida
Posts: 472
My Mood:  Points: 2,760.24 Bank: 49.42 Total Points: 2,809.66 |  Please tell me I am not alone!
Hi my name is Kate and I am new here. I was diagnosed with pcos when I was 26 at the time I was married for 6 months. This was after a laporoscopy to rule out endometriosis. I had bloodwork done and was told over the phone that I had this condition and told me that they had already called in clomid for me. I had bloodwork done to see if I had ovulated.....ONCE!!! I was on clomid for a total of eight months and I had not seen a doctor the whole time that I was on it. My doctor did not monitor me at all. I then discontinued the clomid and changed gynos - my new doctor was astonished that I had never even had an hsg, which he ordered, only to find out that one of my tubes is completely blocked. And it was only 1 year ago that I had my first ultrasound!!! No cysts were found.
I just feel like no doctor knew or cared what to do with me! Almost everything I know about this condition I found out on the web and it is a very hard and sad condition to deal with when you are ttc.
I REALLY want to find a doctor that knows what they are talking about! But it is hard to trust one after all this. A baby is all that I think about and I am having a difficult time realizing that this may never happen.
Sorry if I went on and on....... I am just very frustrated and sad and I had to let it all out!
Thanks for listening! Luck and happiness to all of you! | 
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08-17-2006, 03:20 AM
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#2 (permalink)
| | Triplets on the way!!!
Join Date: Jun 2006 Location: Northeast Ohio
Posts: 811
My Mood:  Points: 10,956.02 Bank: 257,858.51 Total Points: 268,814.53 |
HI- welcome to sc....You are def. not alone. There are so many women with pcos who were mislead and ignored by a cpl of dr's in the beginning. Unfortuantly there are some dr's that just dont care about their patients and then there are some dr's that just dont know enough about pcos to be able to handle it. I had seen the same gyn. for a number of years and he never said a word about pcos, well after I moved I waited awhile and found a new gyn...I simply explained my symptoms and after some tests I had been diagnosed with pcos. My dr took the time to explain things and treated me with bcp's and told me I should look into losing at least a little weight.
Im sorry you had to go through what you did and hopefully you will find a caring dr who knows how to treat pcos. Try asking around on here, there may be women close to where you live who can recommend a good dr. Good Luck and Best wishes to you 
__________________ Mandi (29)
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Clyde (24) Married since 7-3-05 Proud SAHM to Kierra & Alexzander Babies #3 #4 and #5 are on the way! 12dpo = 101 16dpo = 655 7/18 - 3 Babies 7/25 - 3 Heartbeats 9/29 U/S shows Triplet Boys Are on the Way! | |
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08-17-2006, 03:22 AM
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#3 (permalink)
| | Is this really happening?
Join Date: May 2006 Location: Indiana
Posts: 4,084
My Mood:  Points: 41,835.74 Bank: 276,297,943.09 Total Points: 276,339,778.83 |
You are not alone. Many of us here were misdiagnosed for years. I had the symptoms of pcos since I was 15. The hair, the cysts, no cycles. They just blew it off. I wasn't diagnosed till about 4-5 year ago. For 10 years we ttc. We had many losses but I did finally have our babies. I get mad thinking that if I had been diagnosed earlier maybe I wouldn't have gotten diabetes. Or at least it would have came up later in life. I went to fertility specialist, they didn't even diagnose me. It was a regular obgyn, who initially I really didn't want to see but because of my ins, I needed to see one to get a referral for a fert specialist. He diagnosed me. He delivered my babies. I trust him so much. I hope you can find a Dr you feel comfortable and safe with. I would try reccomendations from freinds or even cysters here in the same area. Try someone younger who will have knowledge of this. Good Luck!!
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08-17-2006, 03:33 AM
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#4 (permalink)
| | Registered User
Join Date: Jan 2006 Location: California
Posts: 938
My Mood: Points: 10,534.18 Bank: 1,485.95 Total Points: 12,020.13 |
Hi Kate! You are definitely not alone. You'll defintely want to find a doctor who knows more about PCOS. However, in the meantime explore this site and you'll find a lot information here! Good luck!
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Kate (27)
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DH-Neil (31)
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Married: December 28, 2002
1 furbaby - Q (He's a Yorkie
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)
Dx w/ PCOS - 2003
Meds: Metformin 1700mg a day
HSG 08/16/06 - All CLEAR!
#1 - Soy/Clomid 50 mg: 10/07/06 Bust, didn't O!
#2 - Soy/Clomid 100mg: 11/28/06 Bust, didn't O!
#3 - Clomid 150 mg: 04/18/07 bfN!
#4 - Clomid 150 mg: 05/19/07 bfN!
#5 - Clomid 150 mg: 06/26/07 bfN!
Taking a break again...
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08-17-2006, 05:16 AM
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#5 (permalink)
| | Registered User
Join Date: Jul 2006 Location: Winnipeg
Posts: 163
Points: 3,070.38 Bank: 0.00 Total Points: 3,070.38 |
Welcome Kate! You are not alone! I'm sorry to hear that your previous doctors were not very understanding. I really hope that you find a knowlegable and caring Dr. soon...I know how it feels, I went to at least 5 plus Dr.'s before I found one who is great. So keep searching and educating yourself as you have been, you will have a lot of support at SC.
We're here for each other  Best of luck Kate! | |
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08-17-2006, 06:48 AM
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#6 (permalink)
| | Anyone seen my hormones?
Join Date: Aug 2005 Location: ontario
Posts: 2,986
My Mood:  Points: 20,717.37 Bank: 1.81 Total Points: 20,719.18 |
You're not alone! There are 30,000 of us on here to attest to that! (HUG)
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IVF/ICSI #1
Oct 6: BFP!!!!!! (1st one after 6.5 years of trying)
Oct 8: beta - 20 @ 14dp3dt
Oct 9: m/c, most likely due to severe male factor
Have started blogging again:
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08-17-2006, 08:26 AM
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#7 (permalink)
| | Proud Mama to Ani Rose
Join Date: Jul 2006 Location: Connecticut
Posts: 960
My Mood:  Points: 12,547.31 Bank: 39,209.20 Total Points: 51,756.51 |
Welcome to SC! Your definetly not alone and best of luck TTC!
__________________ Dustin, Kristina & Ani Rose
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Our angel baby will always be in our hearts and thoughts... we love and miss you little one who was not yet meant to be.
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"I do it for the joy it brings Because I'm a joyful girl Because the world owes me nothing And we owe each other the world I do it because it's the least I can do I do it because I learned it from you" 12/1/08 Starting 200 mg of Prometrium & 50 mg of Clomid CD 3-7! | |
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08-17-2006, 09:20 AM
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#8 (permalink)
| | UK Mod
Join Date: Mar 2004 Location: South Wales
Posts: 13,682
My Mood:  Points: 43,738.32 Bank: 4,332,229.47 Total Points: 4,375,967.79 |
welcome to sc
eva
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PCOS, LOCAH, Lichen Planus, IBS, HS,alopecia - raised bp/ cholesteral. Wheat and dairy intollerance Meds: Spiro, Bendrofluazide, Amlodopine, Simvastatin, Met, Prednisolone, Colefac, multi vits,
Me - 41, hubby 36 son 11. Married 14 years
She is buffeted by the wind, but she does not sink.
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08-17-2006, 10:27 AM
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#9 (permalink)
| | Registered User
Join Date: Jul 2006 Location: Surrey, England
Posts: 41
My Mood:  Points: 988.92 Bank: 0.00 Total Points: 988.92 |
Welcome to SC! You are not alone and you have come to the right place for support and guidance.
xx
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My favourite Quote
"Fear can hold you prisoner, hope can set you free"
Diagnosed with PCOS - April 2006
Laproscopy - 2nd October, 06 - no endometriosis found
Current Meds
- Metformin 1500mg
- Co Dydramol 1000mg
- Citalopram 20mg | |
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