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Old 05-30-2002, 03:00 PM   #1 (permalink)
KatCarney
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Thumbs up Preparing for Your PCOS Consultation: Questions to Ask Your Doctor

Preparing for Your PCOS Consultation: Questions to Ask Your Doctor

Source: http://www.medem.com/MedLB/article_d...NC&sub_cat=502

Each time a woman visits her doctor for a PCOS consultation, regardless of whether it is her first visit or her tenth, she will have questions. What should I ask the doctor? Better yet, what should I tell the doctor? Which symptoms are pertinent and will help my doctor make an accurate diagnosis? The time spent with a physician usually is limited and therefore valuable. It is important to make the most of your visit. This article was developed to serve as a general guide, whether you are making your first trip to your doctor for a PCOS diagnosis or are a seasoned veteran. Take the suggestions that follow and tailor them to your specific needs.


Finding a Doctor


Choosing a physician can be a difficult process. Often, women are limited by health insurance plans or proximity to specialists. Before making a selection you may need to consult your insurance plan's guidebook.


Question: How Do I Choose a Doctor?
Your local PCOSupport Chapter is a good place to start. There, you talk with other women in your area who have real experience selecting a good doctor for PCOS. You can also consult the PCOS Association's Professional Membership Directory to see if there is a local member physician in your area. Other possible sources include your primary care provider and/or hospital network's referral services as well as the directories of such professional organizations such as the American Society of Reproductive Medicine and The Endocrine Society.


Disclaimer: The information provided herein is simply intended to be a guide. It is not a comprehensive listing of specific treatment questions nor is it a recommendation of any particular course of medical treatment, medications or procedures.



Starting to Find Answers ...


Question: What Kind of Doctor Do I Choose?
PCOS can be treated at many levels but generally is most effectively treated by a doctor who specializes in hormone disorders. Depending on the level of knowledge and expertise of your family practitioner or gynecologist, you may need a referral to a specialist such as an Endocrinologist or a Reproductive Endocrinologist (also referred to as a Fertility Specialist). Whether you choose an Endocrinologist or a Reproductive Endocrinologist (RE) depends on your circumstances and the resources in your area. If your goal is to treat your PCOS and get pregnant, then an RE is your best bet. If you have no interest in conceiving then your choice may depend on who is available in your area and whether or not your local RE treats women who are not trying to conceive. Some limit their practice strictly to fertility.


Consider some of these questions when looking for a new doctor:



How long is the wait for an initial appointment?
Is there a specific physician in the practice who specializes in PCOS?
How long has the doctor been in practice?
Is there any type of up-front initial consultation fee or can my insurance be billed?
Some patients may wish to ask even more detailed questions. However, you may find that many doctor's offices are unable to answer such questions over the phone and you may wish to save some of these questions for your initial consultation.



What is typically done to confirm a PCOS diagnosis?
Do you test for insulin problems such as excess insulin, insulin resistance or diabetes? If so, what tests are commonly used?
In your practice, do you prescribe insulin sensitizing agents when indicated?
Do you integrate or recommend natural or dietary therapies in treatment?
Preparing For The Appointment

Question: What Do I Tell My Doctor?
PCOS is comprised of a broad constellation of symptoms. Because of that, it is sometimes hard to know if your particular symptoms are pertinent or not. If you have any of the following symptoms, mention them to your doctor. They may be helpful in making your diagnosis.


__ Irregular cycles: no periods, few periods or excessive bleeding
__ Excess facial or body hair, specifically, hair on the face, neck, breasts, chest and abdomen that has become darker or thicker over time
__ Acne
__ Sudden unexplained weight gain, especially which coincides with stopping hormone therapy such as birth control pills or other contraceptive medications such as depo provera and norplant
__ Difficulty keeping weight down
__ Feeling dizzy or light-headed and losing concentration or emotional control two or more hours after a meal
__ Darkened patches of skin on the neck, groin, under arms or in skin folds
__ Skin tags
__ Elevated cholesterol, especially LDL, and/or triglycerides
__ Family history of diabetes or heart disease
__ Depression or anxiety


Although some of these items may seem unrelated, they are important to disclose to your doctor. The more we learn about PCOS, the more that we realize the scope of the effect it has on overall health.


At the Appointment


Question: What Do I Bring With Me?
Make sure to bring along a list of all the symptoms that concern you. If you have any additional symptoms not mentioned above but which worry you, don't hesitate to bring them up. It is best to give your doctor as much information as possible and then let him or her decide which items merit consideration and/or treatment.


When you go to your appointment, you may have a long list of questions for your doctor. Try not to immediately overwhelm him or her with your questions. Give your doctor a chance to get to know you by taking a complete medical history and performing a physical exam. You may find that many of your questions are answered throughout the course of the consultation.


After the Appointment


Once you have visited with your doctor, you may want to assess your experience. If so, ask the following questions. These questions are also a great way to assess your relationship with your current physician.



How well are you treated when you see the physician? If you bring information to your appointment, is your doctor receptive?
Do you feel comfortable with this person? If not, consider choosing a doctor who is younger, older or a different sex.
If asked, would you be able to recommend your doctor wholeheartedly? If you hesitate, why?
Trying to Conceive?

Question: What If I Have PCOS And Want to Get Pregnant?
Women with PCOS who are trying to conceive have special questions all their own. Here are some questions you may wish to consider asking your physician before or during your consultation. Again, try not to overwhelm the doctor with questions right away. Many of your questions will be answered through the natural course of the consultation.



What do you usually recommend for women with PCOS who are trying to conceive?
Do overweight women with PCOS need to lose weight before you will treat infertility?
How many cycles of clomid do you typically prescribe, and at what dosage?
If I need to have specialized fertility treatments, such as intrauterine insemination (IUI) or in vitro fertilization (IVF), can your office do that?
What monitoring is done before and after pregnancy occurs?
Would you add or stop any medications once pregnancy occurs?
When is your office open for monitoring? Can I be treated, if necessary, on weekends and holidays?
Do you treat PCOS in the postpartum period and after? If so, what do you usually recommend?
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Old 11-26-2002, 04:13 PM   #2 (permalink)
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Kat,

this is very helpful info for new women testing for pcos. I went to my gynecologist first and he didn't know much about pcos. I left there in tears not knowing any more than when i went there. I then went to my family practitioner to see if he could offer a referal to someone and he was very educated on pcos. I felt so releived to get some answers. I have now been on treatment meds since last feb. I wish i would have had this list when i was first going to see a Dr. This is very helpful info.

Angie
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Old 01-22-2003, 02:18 PM   #3 (permalink)
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This is very informative. When I was going to the doc to discuss the possibility of me having pcos, I printed off the quiz from www.pcosupport.org and took it with me. She read over my answers and was very open and helpful. I was glad I had the test with me.
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Old 01-30-2003, 12:12 AM   #4 (permalink)
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Smile Wow thanks!

That was very informative! Thanks so much! Leslie
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Old 03-11-2003, 07:29 AM   #5 (permalink)
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I was confused but now I'm informed. Thanks.
Em
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35 yrs old, getting married in March, Undiagnosed PCOS (referral on 13 March 03). Scared!
Have changed to Lo Carb, oily fish, PMT vitamins and feel a lot better.
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Old 05-04-2003, 07:25 PM   #6 (permalink)
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What is IR? And DH and DX? and all the other abbreviations you guys are using? I'm a little confused.

Last edited by mandirae23 : 05-14-2003 at 02:12 PM.
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Old 06-17-2003, 09:21 AM   #7 (permalink)
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Smile Questions

Thank you Kat!
Having just been dianosed with PCOS I was very confused and was worried about what i should ask my consultant on friday, having read through these questiuons I feel much more at ease. This is an excellent site and I no longer feel that I am alone.

Julie
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Old 06-17-2003, 12:06 PM   #8 (permalink)
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Default but what if they don't answer the questions?

I just found this board this morning.

I've been going around with doctors for nearly a year, and I'm almost no better than when I started. It took this long just to get a diagnosis of hypothyroidism. At least two doctors have said 'you probably have pcos' but they have refused to treat it -- one doctor said he would not treat it unless I was planning to get pregnant.

I feel worse, and worse, and I look worse, and I don't know what to do. How do you MAKE them treat you?? I already wrote back and said I was now planning to get pregnant, but I don't think he believed me. Also, how do I make them give me an MRI? I have been having a lot of pelvic pain lately and no one knows why, or seems to care, particularly.
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Old 07-08-2003, 10:19 PM   #9 (permalink)
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Default Thanks - not so afraid

Thanks Kat for the information!

Just found out (late June 2003) I had PCOS and was scared!! Attempting to read up before I visit my referral, so that i'm not a basket case during the visit. Glad to see that pregency can occur, sinc my dr gave me the idea that "it's very difficult to have children". I want to have children (hopefully atleast 2).
Glad to know folks have gone through and are going though what I'm experiencing.

This web site is a great source of info for PCOS!

Thanks again
Jan
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Old 09-18-2003, 03:06 PM   #10 (permalink)
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i just found this site also. i am newly diagnosed and wish to become pregnant soon. the dr that is treating me now wishes to put me on glucophage and bcp. of course i dont want to use bcp but i dotn exactly know what my options are as far as gettign my cycles started again. any input woul dbe appreciated.....
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Old 09-25-2003, 03:50 PM   #11 (permalink)
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Hi

My gyn diagnosed me with PCOS based on the pelvic ultrasound and all my other symptoms but I didn't have blood tests or anything else done. Granted, that was when I went back home for holidays (different country) and it was the very last week of the holidays that I went to see her.

She didn't seem to see the need for me to go by a doctor here and put me on metformin (one a day for 3 months) and Diane-35.

I was just wondering, would you go see a doctor here? I'm at school and there's university health services and then I think my student health insurance covers visits to an obgyn w/o referral but am not sure..but then too i don't know if i should be seeing a RE or something. And either way I've got no transportation to take me to see most doctors off campus. So is it necessary for me to see someone here?

help..
Lily
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Old 05-22-2004, 04:34 AM   #12 (permalink)
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Default Thank you Kat!

Kat,

A big thank you from me and my family. Thanks to your cite, I am more educated about this than from my daughter's Dr.! But, having this wealth of info at hand, prepares us to handle all that going to come our way in dealing with this.
The teen cite is a big PLUS in my opinion. This is something they should be able to talk about with others their own age.


Thanks again and again!

edapitas from Tokyo
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Old 10-03-2004, 12:52 AM   #13 (permalink)
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Kat,

The link in your post is no longer available.
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Old 10-08-2004, 10:35 PM   #14 (permalink)
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Kat,

Thanks for your help. But i was wondering, do you have to get a physical exam....I am 16 and just do not feel comfortable????
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Old 11-21-2004, 11:06 PM   #15 (permalink)
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I live north of seattle. I have been diagnosed with anxiety disorder for 7 years. Two times I have been diagnosed with PCOS. I am 260 pounds and growing. My new OBGYN just diagnosed me with PCOS and I am starting the process all over. I feel so depressed, no self esteem, very few friends, and just really discouraged. If it wasn't for my faith in God and that He can get us through anything and use it for his glory, I would have ended it all a long time ago. I hate how I feel. Sorry to complain...just so lonely for someone to understand. I just found this website. Does anyone know an expert doctor in the seattle or north seattle area? I need to get this resolved now. I need to lose weight so I can start to feel better...I cry all the time and feel like I am going to burst. Please help me.
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