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Old 06-17-2006, 04:05 PM   #1 (permalink)
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Default PROLACTIN/PCOS: Always get a second opinion!!!!

Hi ladies,
I was diagnosed with PCOS/hypothryoidism since early last year. Since then I have gained 20 lbs (even though i work out 4 times a week) and my breasts have increased from a D to a DDD in over a year. It's been a nightmare. I found a great doctor in Houston and he has been helping me with the PCOS symptoms by putting me on the Omega Zone diet. It lowered my cholesterol and I noticed that I started to build muscle b/c thhe increase in protein in my diet. However, my boobs were STILL growing and my weight has been slow to come off. I am currently taking Armour thyroid, but it hasn't helped much with my metabolism.

Two weeks ago I started looking into getting a breast reduction. My gyno/RE nurse practioner suggested that I get my prolactin levels tested. they came back at a 15.2 ng/ml out of 17. When the lab nurse read me my result she said "oh that's normal". but something told me no that's not. I spoke with my manager about my breast reduction and she said her sister had the surgery as well, after h er breasts grew to an H. My manager has PCOS as well and her boobs went from an A to a C in 6 months. So she told me "go see my doctor". He's knowledgable about PCOS and he could have a different view on prolactin.

(In my doctor's defense. I didn't make an appointment with him after I got the results, b/c I wanted to try out my manager's doc. He might have been able to help, but I chose to go a different route since I've been seeing him for a year)

anyways, I go in to the new doctor and while we're waiting on my faxed reports I told him my prolactin levels are at 15 and my breasts keep growing. He said "BINGO" that's your problem. For a woman my age, my prolactin should be at 5/6 if not, I won't be able to get pregnant. (now this is 5/6 according to the scale my labs results came in at). He told me that's why I'm moody and experiencing serious breast growth.

It was like a huge weight off of my shoulder. I've been tested for pituitary tumors before and they came back negative and no doctor ever noticed my prolactin levels being high. I'm just thanking God right now that someone figured it out. I am still going to go through with the surgery, but at least I have to confidence to know that they won't grow back until I gt pregnant (like normal women).

He called my regular doctor since he respects him and he said "he's damn good" and they are working on a treatment plan for me which will include Dostinex and maybe a switch in Thyroid medications. I think this nightmare of a journey is ifnally over.

I've been taking supplements to help with my cycle regularity and the insulin resistance. I started insulite last Wednesday, I'll let you all know how it's going.

I hope this story helps someone. please feel free to email me at cddebra72@yahoo.com if you have any more questions.
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Old 06-17-2006, 10:59 PM   #2 (permalink)
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I have a question:
I've always had problems with bigger boobs, for the last 10 years when I really packed on some weight, but my Prolactin levels are 'normal' so I'm told.
What I don't get, is that I've lost a little weight, but my boobs are still a little big, I wonder if the weight just comes off in some 'order' - I don't know.
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Old 06-19-2006, 01:47 AM   #3 (permalink)
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glad you found a competent Dr. to help figure things out


my boobs seem smaller to me....seems like i am losing there first
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Old 06-19-2006, 06:59 AM   #4 (permalink)
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I wonder...
I have extremely high prolactin levels. So much so that they sent me for 2 brain MRI's to rule out a prolactinoma (tumor in the brain that releases prolactin). these MRI's were negative - and I have an idiot for a doctor so they kinda dropped the ball on treatment after the MRI was negtive. Anyways... My breats are TINY for a girl my size, i barley fill a B cup. So I wonder why?
GOOD LUCK with treatment anways!
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Old 06-19-2006, 09:04 PM   #5 (permalink)
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interesting. one of my pcos symptoms was high prolactin. prolactin is a hormone you're supposed to be high in once you are pregnant. if you're not, it is low. if you have high prolactin, it can actually make your breasts start lactating, and having milk would make your breasts larger. i never got to the point of lactating, but i did have breast pain, which i associated with them being so large. since i've lost weight (and lost in that area too) they don't hurt so much, but i still need a good supportive sports bra for working out.

so, it is possible to have high prolactin and not be lactating, and maybe not even get enlarged breasts. but that certainly does seem to be a symptom of high prolactin.

as for treatment, my endocrinologist told me to lose weight or he would try putting me on medication to deal with the high prolactin, and i think my testosterone was high too. probably borderline high. anyway, it wasn't easy, it has taken a couple years and Weight Watchers program was a big help to me -- but i did lose some weight and now my prolactin and testosterone are back in normal range.
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