OK..... I was told in about 2004 that I had multiple cycts on both ovaries and had PSCO. I then fought to be put on Metformin and has to go to the RI in Edinburgh to see a specialist before my doctor would prescribe them. I was told I could not have Birth Control Pills because of my weight (which is part of the problem!!). In November 08 I saw a new female doctor at my surgery who noticed that the hospital should have seen me 6 months after my first visit and hadn't. She thought it a good idea that I go and see them again as she thought my symptoms were all still to do with the PCOS and I had come off the metformin but she thought I should go back on it.
Anyway, I went to the hospital a few weeks ago where the male doctor didn't give me any eye contact and when I tried to go through my symptoms the one he latched on to was that my periods are very heavy. They did an internal ultra sound and apparently my multiple cysts have disappeared and I only have about 6 on one ovary which is not enough to be diagnosed with PCOS!!
When I asked him what was causing all my other symptoms he brushed me off with "perhaps you are just sensative to hormone changes" and told me I needed to lose weight and would I like to see their dietician!! I told him that I knew exactly what I should be eating and that of course I knew I needed to lose weight but that this was part of my problem. He just ignored me and told me another 3 times that I need to lose weight!
I came out of there in tears and just don't know what to do now. Is it all in my mind? Do I hve a hormone problem that they haven't checked? He says that I am not pre or peri hormonal but that was from tests taken over 4 years ago.
I am still really angry and upset and feel like just giving up trying to find out what is wrong with me.
aw hun please dont give up! ~ he sounds like the first guy i saw at hosp after my first set of scans he said loose weight, x 7 or so....i took it into my own hands and read, then my dad died xmas 05 and things kinda went odd, only recently did i start to read books again, investing the little money i earn in books....have you had another full hormone screening? plus glucose and thyroid?
sorry im not much help, im here if you need a natter...remember you are beautiful and you deserve self love and total dedication to be in control of your eating...i know ya know what to eat...its incredibly hard to loose weight when your hormones are fluctuating so much...you sound very sensitive to your fluctuations to me , i know i am.
hun stick in there and keep at it, keep pestering, pestering, pestering (what ahorrible word pester is eh! ~ you should never have to pester anyone to help! ~~ but ya need to and you need to find from somewhere great strength to carry on hun) go back docs, and ask for more bloods to be done, (full screening for everything!) and read as much as ya can, i dunno what else to say, expect big hugs and im here if ya need me, i may not make so much sense but sometimes its just good to talk
You know what this sounds very simular to me too! My gynae never ever listens to me, never explains anything to me - gives me a few tablets here and there. Its always his way or no way. I have asked several times to get my gynae changed, and never has happend - I was referred just over 10 years now! I have learned more about whats wrong with me and the meds I take mainly through here.
I was reading your story and I actually sit here feeling tearful too - as its like a loosing game with them all the time! You try and try it never gets you anywhere and does make you give up hope in trying more, because it feels like you are being kicked to the curb yet another time!
I have been asking my gynae for Clomid for some time now, and all I get is loose weight, they ask me to take diet drugs...which I have done, had an ectopic pregnancy...its after they tell me that I should not take them drugs whilst I am ttc. I have been seeing a dieticain for nearly a year now, lost a little weight, but I know thats not going to be good enough when I go back to the gynae! The thing that upsets me most is that I know of two other people, one a family friend and my auntie...both overweight, both with children, also ttc for under one year (we have been ttc for about 9 years now) and have actually been given Clomid (the family friend a couple of years back and my auntie only last month) It really frustrates me as they tell me that I am too overweight to take these drugs - yet give them to other people who are also overweight too! Surely it should be the same procedures for everyone.
If you ever need a rant, or just to talk, feel free to contact me anytime hun!
(((((((Hugs)))))))))
Kim xxxxx
__________________ Kim - age 28 dx sept 02 DH Jay 39. Married 4th May 02. ttc for 9 years.
m/c November 02. m/c June 2005. m/c November 2006. Ectopic pregnancy October 2007
Meds - Glucophage, provera, reductil.
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Big hugs tigger, its awful that gyny's just dont want to listen and that they blame everything on bloody weight. When i went to see mine in sept last yr, he weighed me and overall id lost 2.5 stone which i was proud of myself for(i have little motivation) since the year before, and he said that i had to get down to 13 stone before he wanted to see me back and the gyny dept, im not 19 stone, my highest ive been 21.5 stone, and i have a back condition sciatica and he tried balimg that on my weight, so i stood up for my self and told him that my weight has nothing to do with it.So i got up told him he want very helpful and stormed out. Ended up crying all the way home like. Have you tried going to your gp and asking for a second opioin from a different gyny specialist.
__________________
Leeanne(24) Michael (26)
Metformin 500mg(SR)
Pregnacare Vitamins
Clomid 50mg 5th Round.BFP = 17/10/2009
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You are entitled to a second opinion so demand one!! Go back to your GP and tell them you want to see a different consultant. Complain to the hospital Board of Directors as well. Stamp, shout and make yourself heard!! It is the only way you get anywhere in these situations!
Good luck and don't let the B*****ds grind you down!
__________________ Jane
Divorced (twice!), Miracle son, Stewart born May 1999
42 years old
1000mg Metformin
Chronium, Vit B Complex, Vit C & Zinc
26/01/09 on Prostap to induce menopause
Probable hysterectomy during 2009
"The Happiest Women, like the happiest nations, have no history" (George Elliott, Mill on the Floss)
kim see your in kent? where abouts i am too and my dr was awful. who were u seeing/ which hospital x x
__________________
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No More NHS Treatment 2nd of Jan 2009.
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Jane - I actually asked my GP last Monday, to refer me to another Gynae....he told me I had to speak to the Gynae, which I have several times, also have done the GP...no luck yet again. Have tried the making myself heard thing too - never works tho, think they must have me down as a "pain patient"
Belle - will pm you with location, Gynae, hosp....don't know if I can name and shame the Gynae on here....would love to tho!
xxx
__________________ Kim - age 28 dx sept 02 DH Jay 39. Married 4th May 02. ttc for 9 years.
m/c November 02. m/c June 2005. m/c November 2006. Ectopic pregnancy October 2007
Meds - Glucophage, provera, reductil.
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Write to your local National Health Trust Board and make a formal complaint. If you go to the Trust's website you will see the "Patients' Charter" which will tell you exactly what your rights are and how to make a complaint. Hope you manage to get a bit further with this.
Take care.
__________________ Jane
Divorced (twice!), Miracle son, Stewart born May 1999
42 years old
1000mg Metformin
Chronium, Vit B Complex, Vit C & Zinc
26/01/09 on Prostap to induce menopause
Probable hysterectomy during 2009
"The Happiest Women, like the happiest nations, have no history" (George Elliott, Mill on the Floss)
__________________ Kim - age 28 dx sept 02 DH Jay 39. Married 4th May 02. ttc for 9 years.
m/c November 02. m/c June 2005. m/c November 2006. Ectopic pregnancy October 2007
Meds - Glucophage, provera, reductil.
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I am sorry that you had such an awful experience. It is terrible, you wait so long for the appt in the first place and then all they do is insult you and waste your time when you get there.
I was dx with PCOS 2 years ago after TTC x 1 year. When my gp referred me to the gynae there was a 6 month wait, so I decided to pay for a private consult. I arrived with all my blood results and US results, so had my dx spelled out for him .... and after he insisted on doing and internal exam (for what I don't know), he told me that we should just wait and see what happens. I told him that this was not good enough, and that I wasn't leaving until we had a plan of action. He fobbed me off by saying that he would call me the next day and he wanted me to see one of his colleagues .... now all I wanted was a prescription for metformin .... so I was not happy. Anyway to cut a long story short, I went out, sat in the car and cried. Then I went home and told DH what had happened ... he was as angry as I was, and then I never heard from the consultant regarding seeing his colleague.
So I wrote a letter summarising the entire consultation and hand delivered it to his secretary and sent another copy to the hospital. Two weeks later I received a phone call at 8pm while out walking with friends from the 'evil' consultant, he thought that I was very unreasonable expecting him to get back to me sooner. He made no excuses for his conduct, and I told him that I had made alternative arrangements and hoped that I never crossed paths with him again ... I also refused to pay him, which did not seem to worry him at all. I have also made a point of telling lots of people about how badly I was treated by him, so hopefully that has done some damage to his private obstetrics business!
It turns out it was the best thing I ever did. I then went about getting referred to see an endocrinologist rather than a gynae. I found a guy with a special interest in weight management, including PCOS. He was brilliant, and so reasonable about it all .... and I now have an 11 month old son.
So don't put up with anyone trying to fob you off because they are not up to date on developments in PCOS ..... get out your computer and write a letter, and let people know that you are not happy ..... and then see what other options are out there. The websites for some of the hospitals show clinics and areas of interest for some of the docs ..... or else sometimes you can see the research that they are doing and that will show you what they are interested in.
Write to your local National Health Trust Board and make a formal complaint. If you go to the Trust's website you will see the "Patients' Charter" which will tell you exactly what your rights are and how to make a complaint. Hope you manage to get a bit further with this.
Take care.
Absolutely right. You have been treated appallingly and I can totally empathise as many of us on here can. I was treated the same for years. 6 cysts on one ovary is plenty. You haven't been given any help. Be strong, make a complaint, go to your doc and demand that you are referred to ANOTHER gynae. Stand your ground. Your body, your health!
Really not happy with ERI!!! 
