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Old 12-15-2004, 01:28 AM   #1 (permalink)
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Unhappy Scared...

Alright... here's the deal.
I know that I have PCOS. I know it's a problem. I've been looking up tons of information, asking questions in all sorts of places, and feel informed enough to head to the doctors office and that if the doctor doesn't know about PCOS, I know some stuff to tell him.
BUT lately I've been getting some pains in the lower tummy, peeing alot, been really tired, started breaking out, and well, I'm scared to goto the doctor. Mainly, because I dont want to hear the words "you can't get pregnant" second, because I dont want to be told that I need another surgery (I had major back surgery last october) and third, I'm chicken. I've been putting off making an appointment for the longest time, anyone ever been just scared to go?
I've been to plenty of doctors, and before I had knowledge hubby was in the military and they just basically blew off my problems, I told them I'd been diagnosed just before we got married and that doctor didn't have enough time to get me treated, and they said it wasn't that big of deal... and I figured they dont think it's a big deal, okay. Then things started getting worse, I hurt my back so then PCOS got put back on the back burner again, and now I know things, and I know I need to go, but I dont want to hear it... does that make sense?

Tammy
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Old 12-15-2004, 03:13 AM   #2 (permalink)
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Tammy, don't ever let a doctor tell you PCOS is not a big deal. It is. This is YOUR health on the line here. I know how hard it is to fight ignorant military doctors, been there, done that, actually won the fight. But I had to be persistent. I ended up knowing more than my doctors abou this, and not all of them took it well, but I figured, this is my life, my health, and if they don't treat me, I'll go see someone else.

Hang in there!
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Old 12-15-2004, 10:36 AM   #3 (permalink)
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I can understand being scared! I was too. But you definitely should go to the doctor. I think it is less scary when you can say "we're working on fixing this" even if the means to do that is kinda scary. it gives you some control over the situation.
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Old 12-15-2004, 04:25 PM   #4 (permalink)
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Thank you!
I know I have to get up the guts to make the appointment.
I've also got to find out how to get our medical insurance to pay for something... they wont pay for anything having to do with fertility, and it's like, do they understand that if my hormones got under control, I could lose weight easier, I could probably sleep better, my hairyness would go away, I'm pretty sure I'm insulin resistant because I've got the tell tale signs on the back of my neck and under my arms... just many many things...
Not to mention every time I goto a doctor and get told lose weight, I want to scream at them "I'm trying!" I gained so much when I hurt my back, and can't seem to shake it, and my exercize options are limited because everything hurts.
Then I went to see a GYN the beginning of this year that I dont think new a thing about PCOS, and well, he gave me these big promises of how quick I would get pregnant taking these pills, and it didn't happen and it broke my heart... and as supportive and as much as hubby denies it I know it hurt him too.
Anyways, hubby has an appointment on 1/10 with a family doctor, think I'll make one for the same day... I have to call the insurance company and find out if I have to get a referall or not...

Tammy
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Old 12-16-2004, 12:23 PM   #5 (permalink)
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I would bet you have a UTI(urinary track infection)

Very common after any surgery.

I never had the "classic" signs of it.
I only had mild to moderate pressure.
Erge to pee more often(When I thought to mention it to my dr during a reg check up)I was needing(had the erge) to go every 15-30 mins!!

I had no pain when I would pee.
No burning.
No fever.

Just low pelvic discomfort, low back pain and a general sence of not feeling well.

Just call and ask for a UTI test for a bladder or urinary track infect.

If left untreated it can spread to you kidneys and after time shut your kidneys down.(which could cause death)

My first one, we figured with the symptoms I had, was raging for about 3 months!! Yep dr didn't think to test for it because I didn't have any of the tell tale signs. I was also dx(after blood work the same day) with the Eptien Barr virus.(virus that causes Cronic Fatigue sydrome and Mono) Look that up, very interesting reading.

So go do a pee test and settle down the nerves.

BTW...If they do RX antibiotics, ask for the "pink pill" Diflucan.
It will ward off a yeast infection that most PCOS'ers get with antibiotics.


Then for your back, I suggest you ask them for a muscle relaxant to help with that. I was on pain pills for over a year. It would only help during the hours of use.(to get me through work hours) Then the rest of the time I was in pain. Now I have been using 1 Flexeril at bed time. Not only can I sleep, but it redused my pain by 50%. I can live with that. So now I use Tylanol/Ibprofen during the day.

Let me know if you need more info.

Good Luck,
Patty
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Andnomyosis (Infertility/Miscarry Cause)
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Old 12-20-2004, 03:15 PM   #6 (permalink)
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Default Thank you!

Thanks for the info. I did go and take a pregnancy test, and as I figured it was a no. Still hurt, but well, you know, kinda used to it now.
I've got an appointment with a doctor here on the tenth of January, we just moved here so I had to wait for one that was taking new patients and all that other stuff... but we'll see about the back thing. I also had gotten a recommendation from someone for a OBGYN here, to help me get pregnant, well I guess this doc is no longer doing any OB work, and since I want to get pregnant, if I picked her I would have to turn around find another doctor to help me get preg, so going to take in the list of providers my insurance will cover to this doctor and ask if he has one he recommends. What sucks is our insurance will cover nothing having to deal with fertility...
But, I'm still peeing alot, still cramping, and I feel awful because hubby keeps getting turned down (I know TMI) because I know it's going to hurt. I had kinda been hoping that maybe I was cramping because of PMS and a period was coming, well after 11 days I gave up on that idea... SIGH.
anyways, Thanks for all the info, and I'll ask my dr. to check for a UTI.
Tammy
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Old 12-20-2004, 06:29 PM   #7 (permalink)
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Default Fertility treatment...

Tell your doc that s/he won't get paid if it's coded as fertility treatment. There is a special code for PCOS. My RE coded it wrong the first time, and it was a huge mess after that (the insurance company was convinced it was infertility when it wasn't), but it was finally straightened out.
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Old 12-20-2004, 10:52 PM   #8 (permalink)
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There have been times when I have been scared to go to the doctor. Mostly...I get tired of being "put off'...I finally went today after a few years...yes a few years. The military doctors were not doing it for me..so I finally found a PCOS specialist. My advise..DO NOT WAIT. Because I waited so long...she told me I have hyerplasia(without the bleeding of course), it's a major infection of the uterus. Anyway, I go tomorrow for a TON of blood work and pelvic ultrasound. She wants to make sure there is no evidence of endometriosis or any kinds of cancers going on. SO...my answer to you is..DONT PUT IT OFF! Hope all goes well!
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- Overweight, hyperplasia,high triglycerides, elevated testosterone, no periods
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