OMG---I can't believe after seeing doctors for my symptomology for 20+ years I had to diagnose PCOS myself!!!
When I was younger and had few periods and then no periods the doctors said "we'll worry about that when you are older and trying to start a family". When I finally married and couldn't conceive the doctors were amazed at how high my testosterone levels were but didn't offer any help. I began having terrible ovarian pain and was diagnosed with PCOD. NOT PCOS because it was a "disease" back then. The doctors did a wedge resection then put me on Chlomid all to no avail. Finally, after so much pain and suffering they did a complete hysterectomy at the age of 25. At that time, we all thought it was a gynecological disease and I was "cured" when they removed everything. Boy was everyone WRONG.
Now at the age of 46 and constantly "bothering" my doctors with all these seemingly non-related symptoms.....I find that I actually have an endocrine disorder!!! NO DOCTOR I have seen over the past 20+ years knew enough to put the puzzle pieces together (including an endocrinologist).
I have an appointment with a new doctor on Monday and am armed to the teeth with PCOS information. I finally have hope for the future and now know that my problems aren't "all in my head".
I am grateful for this site and the wonderful people I have met in the chat rooms. I am able to share my experiences and seek support when I need it. Thanks!!
__________________ "A strong positive mental attitude will create more miracles than any wonder drug." Patricia Neal To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
First, welcome here! Wow, you've been through so much. It's amazing to me that you sound so upbeat, despite your doctors' lack of knowledge. (Which is not uncommon, by the way.) See you around the boards!
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To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. Severe male factor and borderline PCOS.
IVF/ICSI/AH #2
Baby is cooking...
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I wasn't diagnosed until the age of 35. I was always told all my symptoms were related to my being overweight.
I was somewhat relieved when I finally had a name for all of my symptoms. Like you I went to my Endocrinologist with as much knowledge as I could find. We really have to advocate for ourselves. I hope that all goes well with your appointment. .
__________________ Allison
I have to exercise in the morning, before my brain figures out what the hell I am actually doing To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. . Traditional PCOS - Anovulatory, increased androgens, no insulin resistance
Medications and Supps listed on my profile.
I feel your frustration. I looked at PCOS and read abuot it for 4 years before I got the courage to ask my doctor to test me. It was funny cause as soon as I said it, he was like "you know I never thought of that - let's test!"
It definitely makes a difference if you can talk to your doctor and KNOW what you are talking about instead of trying to keep up with their guessing.
Self-Diagnosed (Grrrrrrrr) 
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and a warm welcome to SC! 
