04-01-2005, 07:00 PM #1
Elevated Prolactin + Testosterone...hunh? + vision problems
Hello, I am new to PCOS!
I have just been diagnosed with PCOS! I have an elevated level of Prolactin, and Testosterone (with weight, acne, hair growth on my face problem, my mom just died of breast cancer, and her sister did as well, and her other sister has PCOS-just for the history for you guys)... but I have been reading that Prolactin is supposed to suppress Testosterone.... wondering if anyone else has both high levels of prolactin and testosterone?
I am wondering though if the elevated Prolactin is another endocrine problem, as I sporadically get terrible headaches, and my vision goes blurry... everything up close, and far away. (The eye doctor said I needed reading glasses, but it is a weak prescription, and I don't think that I would get that kind of pain behind my eyes if I don't have a pair of glasses to fix my sight... it is a little odd, because I can read without squinting, and I can wake up with this pain). I have been for a CATSCAN to see if there was a tumor in my pituitary (because of elevated prolactin), but nothing was abnormal on the scan. I am going for insulin-resistance testing next week, and apparently this can affect your vision, I don't think this explains the prolactin level though?? Just wondering if anyone has any thoughts about this the prolactin and vision issues.
04-01-2005, 07:32 PM #2
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I have an elevated prolactin level too. My gyn diagnosed me w/blood work which included, testosterone FH and LH (and some other stuff I can't remember)
She didn't know much about PCOS so I found an endocrinologist who was wondering why my prolactin was so high. He's looking into in and ordered my bloodwork to be redrawn just in case.
When I find out I'll let you know...bummer, I should have asked him what an elevated Prolactin level meant.
04-01-2005, 07:36 PM #3
What I think it is....
Hi, I work at Massachusetts Eye and Ear Infirmary as a Certified Ophthalmic Technician and have been in the field for over 16 years. I have some insight on what this may be......
With elevated prolactin readings, doctors are concerned of a pitatary tumor which can push on the optic nerve and cause visual disturbances on a Visual Field test. But because you said your MRI showed no abnormalities, I highly doubt that your blurriness is due to that.
What I do think is that you are experiancing what is called an ocular migraine. This phenomina starts with blurry vision, sometimes accompanied by colored lights in the vision or looking through "shattered glass"...followed by the onset of a headache. Now, the thing about ocualr migraines is that you can get the migraine with blurry vision without seeing the colored lights or shattered glass effect. And you can get the blurry vision with no migraine or colored lights! Some people also feel nausea as well. Your hormone levels have nothing to do with ocular migraines. No one knows why they happen, and they happen in men, women of all ages. They also have no effects on your eyes...they just happen. The next time you see an eye doctor, I would bring up your symptoms and explain the MRI was negative. I would hunch this would be his diagnosis. Hope this helps!
04-01-2005, 07:51 PM #4
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I have a high prolactin level and high testosterone level, Extremely high insuline as I'm type II diabetic, and I'm hypothyroid.
Now...I get the headaches and my eyes are as yours. One thing I've found out from my Endo is that theres a correlation between hypothyroidism and a high level of prolactin. When my thyroid level is normal so is the prolactin. Do they know what to do about it? Well, frustratingly I haven't found the dr. to know much more than that sadly.~Rebekah~
38 y/o DH Doug: 38 y/o
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*ttc again for a 2nd full term healthy baby in March 2013.
*Waiting to adopt too!Hidden Content
04-02-2005, 01:39 AM #5
Thank you all for your replies! I will bring up the ocular migraines possibility with my eye doctor. For Rebekah, I got tested for hypothyroidism, and I don't have it, but I know my mom did, and my brother does (he is 19).
04-02-2005, 01:23 PM #6
How high is your prolactin? I had a pituitary tumor, and mine was 38 and after it was removed, it is now 4.9. Anything over 20 is considered high. I would not go on a CAT SCAN, they are not very effective in detecting tumors of the pituitary gland since it is so small, think the size of a pea. I would get an MRI, they suck, but it's the only way to know for sure. Even for some tumors, they can't see them, but if your prolactin is way high, you most likey have a tumor. If you have diabetes it could explain your vision problems, but not if you are just insulin-resistant. My pituitary tumor/prolactin did suppress my testosterone, it never came up unusual until after the tumor was out, it then went up to 43 and now it is in the low 30s now that I am on Met. Talk to your doctor about the MRI, most doctors order them for pit. tumor explorations not CAT SCANS.
04-02-2005, 03:41 PM #7
Had to Reply!
I have an elevated prolactin level, 1st test was 27, 2nd test 3 weeks later was 57. I had an MRI done, which came back normal, i had been diagnosed with PCOS b4 the prolactin was discovered and was put on metformin. My ob/gyn is "taking another look" at my MRI, i have heard that Met can cause the "contrast" on the MRI to not work that great.. Well i was on met when it was done, so i will discuss that with her when i see her on Tuesday.
As far as why prolactin levels may be elevated, causes could be, pituitary tumor, liver or kidney disease, or hypothyroidism. Also sometimes they just dont know why...
My ob/gyn has put me on bromocriptine 2.5 mg once a day for one week, i start two a day on Monday.. They are horrible but i keep pushing myself saying that they are supposed to help. She will recheck my prolactin in one month.
Now i too have ocular migraines, and i see floaters everyday all day.... There is a website for pituitary tumors... i cant remember what it is.. but if you search for elevated prolactin levels u will get it. They have alot of information in there u can ask your doctor. I had my eyes examined and they are healthy, so it is not an "eye" problem.
It is very disturbing to think you might have a tumor,, but seriously, read the tumor boards.. 99% of pituitary tumors are non cancerous. And the meds are supposed to decrease the size of it.. i hope this helps you, i know its a long post but i have the exact same thing going on, and im still reading the boards when i can, i dont have a specialist in the area, so alot of my questions and suggestions come from those who have had similiar symptoms.
Good luck to you!!
oh another reason of elevated prolactin levels could be cause from anit-psychotic meds.. im on paxil.. for anxiety, not sure if that has anything to do with it, but will find outDX w/PCOS IR 02/28/04
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04-14-2005, 09:25 AM #8
how high is your prolactin?
mine is 30 and I was told to get my testosterone levels done , I heard if it is over 100...it could be pituitary gland, and may need MRI
04-14-2005, 11:55 PM #9
mines 21 and my testosterones high too...here normal for prolactin is 1-10. mine was 32 once then 21 later.
04-15-2005, 06:13 PM #10
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I had high prolactin levels and my testosterone was and still is high. I had horrible headaches almost every night when I got home from work and tylenol wasn't even working any more. My dr said it was the high prolactin levels. My thyroid levels have always been in the normal range and I've never had any vision problems. My dr gave me parlodel for the prolactin and 2 1/2 months later, my prolactin level is down to 3.1. It started at 11.3 I've had 4 headaches in the last 2 1/2 months.